I thought of you when I heard this. Hope the link works!
Hello lovely ladies,
I got my results today after mastectomy, so the bad news that there is 4mm of cancer tumour left near the skin and the good news will need just radiotherapy and phesgo injection no more chemo or kadcyla.
My wound still not healed and leaking so had my dressing changed today , more sterile strips and will go back to breast clinic Friday to check it, maybe will take another month or more to heal.
Trying to keep thinking positive but still overwhelming.
I just finished my radiotherapy last i had 5 days after diep reconstruction, my left side took longer to heal but finally got there just in time for treatment
xx
I know people have talked about the Moving Forward course on here, but Iâve just signed up for my local in-person one in October. Anyone else signed up for the one in Windsor?
@sez It was a fundraiser for The Orpheus Centre which is a performing arts college for students with special educational needs. We sang songs from some original musicals that my old drama teacher wrote and it went really well. I thoroughly enjoyed myself. And donât stress about the 2kg. Chippy teas are good for morale and we need to do all we can to keep our spirits up during treatment.
@mrsjelly Thatâs a great little poem there. Definitely brings some of our ladies on here to mind.
Keep going our @hasnae87. It is hard to stay positive, we all know just how hard and overwhelming it can be. We are holding your hand.
Well done on finishing radiotherapy @shannon27. Slap that bench!
@kartoffel I did the Moving Forward course not so long ago. Definitely worth doing.
Tomorrow I have my MRI scan and mammogram as itâs exactly a year since my mastectomy. Trying not to worry but have to confess to failing at present. Still, I managed to polish off a jacket spud for lunch so itâs not affected my appetite!
I distract myself with films and music before big tests (mammograms, MRIs and all that jazz) and turn my brain off. Hope youâre able to do something similar and not get too stressed.
@salbert i hope the scans went okay, i have been told i wont need any scans etc now. I had double mastectomy but was told even ct etc no need now. May i ask why you having another ct scan? And i hope the bump is nothing to worry about. As it just come on all of a sudden? At least you had a scan today. Any lump or bumps is just a big worry now and traumatising.
@naughty_boob i been taking pain killers but today felt so rough that i had to ask my partner to take day off so he could watch our daughter because i felt that rough⊠can barely walk upstairs
not too bad at mo so hopefully its getting better now⊠did not expect it to be this bad.x
@salbert just realised you said its tomorrow! I read it wrong and i hope all goes well. ![]()
![]()
Sorry you are feeling rough. I remember the first infusion I had 3 months after finishing chemo and I was in tears. I didnât think Iâd feel that bad again but luckily it was a few days.
Sending you virtual hug and hope you feel better soon.
@shannon27 great news radiotherapy is finished. It can hit you in a week or so, feeling fatigued, so be kind to yourself.
@hasnae87 sorry to hear a small amount of cancer remains but pleased they say it can be treated within your existing plan. You have gone through so much with treatment and your husband issues. Thinking if you.
@salbert Hope your singing went well for the WI. Best of luck to tomorrow. You got this.
![]()
Hi all,
Yesterday I got my core biopsy results: I have grade 3 HER2+ cancer, and a positive lymph node.
Iâm being referred for a CT scan and bone scan.
Also told I will need Herceptin and chemotherapy. Do you have the chemo before or after surgery?
I also need a biopsy on the nipple on the same breast because of some changes there too.
My lump (only 11mm) was found on a routine mammogram 5 weeks ago now.
So far, the news at each appointment has been worse than I thought/hoped. So Iâm finding it hard to stay positive about CT and bone scan ![]()
Hello and welcome @dilly -so sorry youâre having to deal with the worry and shock of feedback from your mammogram and investigations. Treatment regimes are very individualised, focused on so many factors about tumour size, type etc so the order of surgery/chemo will be determined by what your team thinks is best for your particular case. Do ask lots of questions. We all know the feeling of walking back to the car/ journey home and after wondering what this or that means. The time before you get a plan is one of the hardest, once you know a bit more you can break it down into bits you can plan for and tackle. The bcn nurses on here are great for helping you clarify things you arenât clear about. Take care, really hope youâve got some good support around you. You can already start planning how you are going to look after yourself. Very best wishes
Hi @hasnae87 I do hope you are beginning to feel a little better, given how poorly the chemo was making you feel its good you donât need more, hopefully that last little bit can be dealt with soon.
Thinking of you @salbert today, how soon do you get feedback?
@jeml hope you are feeling a bit better and can get another break.
I need to go find me a bench, although I feel a while away from any bench slapping. Second dose has been absolutely horrendous. Completely different side effects from the first time and have lasted so much longer, especially the nausea and low mood. Today I woke up to what feels like a shedding tongue which is er interesting.
Anyway, I wanted to pop on and let you know Iâll be thinking of you today and I hope the scans go well and you get some answers about the bump. Are the scans youâre getting today part of your general check up each year? If so thatâs incredible. My hospital just mentioned mammograms, yet they didnât detect the lump in the first place so not sure I have much confidence. Keep us posted about how you get on. X
@salbert potatoes always are a good choice to help with mood. I highly endorse your choice! ![]()
@hasnae87 good news at least that you wonât need more chemo or kadcyla
Weâll have to go for that cup of coffee soon to celebrate.
@salbert hope all goes/went well today, thinking of you x
Honestly its proper knocked me! I feel more better today but still not right and keep feeling funny and having hot sweats. I had a good cry yesterday too its reminded me too much of the chemo days, not as bad obviously but still felt pretty shitty ![]()
![]()
I just put my therapy guneapiggies out on grass for a bit and its took all my strength and now i am laid down lol
In these dark moments we have, i go back to this photo in June when i was on the beach and remind myself how strong i actually am⊠it was hot this day and i felt very empowered and got my chesticle out
Fabulous photo, we are stronger than we think but we do need reminding sometimes.
Hope you feel better soon. I agree itâs not as bad as chemo but surprising how it can throw you.
Take care
![]()
@kartoffel well done on getting through it. I had my first one on Wednesday snd it does feel lik itâs never going to finish.
I finally got some sleeping tablets!
Woot woot
In my giddiness from finally having a clinician say I could have them (not sure if it was a doctor or pharmacist or what) I canât remember what he said they were called. Also Iâll be stopping pregabalin too (as I didnât notice anything except some dizziness/wooziness the day after I increased the dose) and starting something else Iâve forgotten the name of for the thigh pain. ![]()
Theyâre only giving me four days of sleeping tablets so I assume Iâll be in a coma all weekend. More proof this âwe donât want to cause any addictions to medicationsâ guff is just that, they gave me a months worth of painkillers that are controlled drugs, all possible to cause addiction but when it comes to sleeping tablets I literally get x4 tablets (not even a full box).
Wonât be slapping any benches but could slap whoevers idea it was to be so inconsistent about pain/sleep medication.
Hope @salbert had a good day re scans.
Pleased to hear @hasnae87 wonât need more chemo, itâs not remotely pleasant for anyone but those it hits so hard get my unending sympathy.
