HER2+ and need some buddies

I had 2 tumours one was her2 positive and the one was her2 negative, the phesgo and chemo obliterated the positive tumour and the negative tumour halved in size which they didnt think the chemo would touch and this was removed through surgery, get my 7th kadcyla this wednesday so half way there x

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@gromit12 Great news so happy for you

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I’m now coming up on 3 weeks post last Kadcyla and starting to feel normal-ish. Still don’t know how @gromit12 did 2 ultra marathons in this period PFC though. I did a half marathon distance yesterday and my body battery was dead according to my Garmin :joy: I’ve got 6 weeks to go until my 50k so we’ll see how that all goes. If I hadn’t committed to raising money for BCN, I might be tempted to defer to next year! :joy:

I think @salbert posted a while back about making up for lost time and I feel like I’m definitely doing that now that I’m ā€œon the other sideā€. Have done so many things that we talked about doing someday because I don’t want to put anything off anymore.


Photo proof from the cricket on Saturday (with loads of sun protection :joy:)

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@kartoffel think my ultra marathons pushed me over the edge!!! So looking forward to my 2 weeks in Greece- no sunrise runs this year, but lots of watersports and chilling on the beach. Which ultra are you doing?

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@hedgehog my tumour shrunk very little with EC and Docetaxel and each ultrasound I was gutted. The surgeon said that in surgery the actual tumour contained a lot a dead cells which weren’t apparent on ultrasound so may not have ā€œshrunkā€ but lots of dead bits. But I did end up having Kadcyla. But clear margins in first op xx

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@gromit12 Oh Greece sounds wonderful! I could eat my body weight in feta cheese… :laughing: I’m doing the Chiltern 50 at the end of September.

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Hi all,

I’ve been told today after several rounds of carbo, docetaxel and phesgo and mastectomy that there were still some very small bits of residual cells in the tissue they removed. I am going to be starting kadcyla for an additional 12 months. It’s upset me that it didn’t all bugger off but I am also dreading it, I have 2 children aged 5 and 2 and found the 5 months of chemo hard being a mum as it made me feel so rotten. I’m told it’s side affects are not as harsh and just wondered anyone who had kadcyla how they found it and what side affects they suffered?

Hello. Came accross this post. Ive just been diagnosed with 35mm grade 3 invasive ductal and her2 3+. Got my mri on Thursday. There happy its not in my lymph nodes. Got to start Chemo first to reduce the size before they remove it. Trying to be strong for those around me and I think I’m a little bit still in shock and feeling all floaty in the air like. More scared than Ive told people. X