Hey everyone just wanted to wish my Pink sisters a Very Merry Christmas! Thinking of the newly diagnosed and the ones going through chemo remember there is light at the end of what seems like a very dark tunnel..
I donāt pop on here much but grateful to each and everyone of you lovely bunch jem
Gosh, yes Christmas week is once again here and hard to believe it is now 2 years since bloody breast cancer utterly ruined it. To show it whoās boss, this year I partied until the early hours at our local pubās Christmas party on Saturday night then had to sing a solo, perform a poem and do a reading at the carol concert yesterday. That was NOT a good day for a hangover but I just feel glad I can do it again. What a massive difference to how I felt two years back. @arty1 and @naughty_boob Iām sending healing vibes your way so that you are back on form for Christmas.
@sassy3 Woohoo!!! Another HER2 buddy done and dusted. Such good news and yes, isnāt it the best Christmas present in the world. Totally agree.
@hollyhock63 That itchy skin condition is definitely a thing. Too many people have reported it now for it to be anything other than another lovely side effect. Some great tips shared for dealing with it. Thanks for yours. And yours @jayveebee And yours @buggeringon Great name!!
@carrie5 I absolutely love you. You never cease to make me smile with your next unpredictable escapade. Never a dull moment with you. Your amazing words of wisdom are appreciated so very much on this forum. You can never leave! I absolutely agree @anb1 she is an inspiration.
Merry Christmas @hoggie Itās always lovely to hear from old friends and itās wonderful to hear that this forum has helped you through this year. Sending you love too.
Excellent link to share on here @naughty_boob Good practical advice as ever, even when youāre under the weather yourself.
And talking of old friends, @pennyp and @jeml itās always heartwarming to hear from our other pink sisters and to get an update on how they are doing once they are out the other side. Merry Christmas and big hugs to you both.
Merry Xmas everyone this xmas I will be having a full xmas dinner and not just 2 Brussels sprouts I had last year. Those of you going through chemo as @jeml said you will get through it. I get my last kadcyla on 7th January woo hoo. I have just found out I have a frozen shoulder due to surgery and radiotherapy trauma, I have to get a steroid injection at end of January if my oncologist says its OK. Xx
Havenāt been on this thread for a while but wanted to wish you all a Merry Christmas and to just say thanks for being there. I have finally finished my dox/carbo/Phesgo and itās a week tomorrow since I had my complete single mastectomy and lymph clearance. Staying flat for now.
Hoping that I can finally taste my Christmas Dinner and will be enjoying lots of family time. Next steps, results and hopefully planning on the 15/01 then onto radiotherapy with either more Phesgo or an intravenous one I canāt remember what itās called. Maybe you ladies may know or those on a similar path to mine.
Here here! This time last year i was rough from my double mastectomy i had it on the 18th December so christmas day was a bit of a rough one.. this year however i am going to host christmas eve tomorrow and enjoy every bloody minute of it!
Hope everyone has a wonderful Christmas, whatever stage of the journey youāre at. Hope you manage to find joy in the small things, even if Christmas looks different to years gone by. Wishing everyone a happy and healthy 2026 xxx
Hi @emma-jayne I do so hope you can taste those roast potatoes. And everything else of course, but particularly those spuds. Lovely things. Your treatment path sounds like mine. I had radiotherapy in October 2024 after my mastectomy in August 2024 and Phesgo ended intravenously in April 2025. I had a reconstruction in May 2025. I have 3 x zoledronic acids left to go (next one in Feb 2026) and got the all clear from my first annual mammograms in August of this year. You are getting there.
I love how there are now so many familiar names and faces dropping by to spread the love and Christmas goodwill. Thatās solidarity, sisters!
@hollyhock63 Iām so sorry to hear that youāre suffering. Itās pure torture! The way you describe it reflects exactly my own experience. I finished chemo at the beginning of September, so Iām convinced itās the Phesgo, specifically hyaluronidase, which is added to the subcutaneous formula, to aid the absorption of pertuzumab & trastuzumab.
It has been so bad that I have asked my oncologist to swap me onto the IV infusion instead. In fact I am currently receiving my first infusion. Iām keeping everything crossed that the itchiness subsides as a result, otherwise I may consider finishing treatment early. Iām on my 10th cycle now, so still have another 8 to go.
I will keep you posted on how I get on. Keeping everything crossed as my poor arms are completely shot to pieces.
Wishing you and every other amazing woman on this thread, the most fabulous Christmas. I hope you are all able to spend it with the people you care most about.
Thank you for being my first port of call, whenever I needed help or reassurance. You ladies rock!
Thank you, I hope your infusion goes well and the side effects reduce or (even better) disappear entirely! Iām really interested to hear how things go. Have a lovely itch free Christmas xx
Just caught up with all the messages. I finished Phesgo in September so am hoping to ween myself off Buscopan for diarrhoea soon as itās been 3 months nearly (I have IBS anyway). My nails are still very weak and I am itchy on my back and scalp (have had an itchy scalp since my early 40ās). I also had itchy forearms but it seemed to get better when I stopped the blood thinners. My oncologist said it was Phesgo and suggested me just having Herceptin but I was determined to stick it out as I didnāt have pcr and was refused Kadcyla (long story). The Herceptin was also offered due to my diarrhoea.
I had my last echo recently and all is fine Iām told although my EF was 60 which sounds quite low to me.
I have a CT in Jan to monitor my lung nodules which if unchanged will be my last hopefully and then an oncology appointment in Feb.
Just want to say thanks for all the support and to wish everyone a Merry Xmas and healthy 2026.
Hi everyone- just dropping in to wish you all a Merry Christmas x itās a quiet one here as my daughter has gone to her dads so itās just me and hubby .. last year I felt like death on Christmas Day as Iād just had chemo on the 19th .. that year has gone quickly ..
Hi @sweatybettyhq26 Welcome to the group. We are a fabulous lot. We are here for you.
@arty1 yes feeling better. Still a bit of lower lung/rib pain only when I breathe really deep. I have an oncology call first week of January and if itās still lingering I will mention it.
@jeml so lovely to hear from you. Hope you and your little one have a fabulous Christmas and Santa bought her āeverythingā she wants.
@salbert hope you feel better after the hangover, hereās to a wonderful Christmas for you and yours.
Hello @sweatybettyhq26 so sorry you are having such a scary time and having to await more information. We know on here what a lonely and frightening time that can be. Its hard not to disappear down rabbit holes of āwhat might be the worse case scenarioā. I hope there are people around who can try and distract you a bit. No one can say it will all be fine, but there will be a plan of how to go forward soon. Just over a year ago I got the shitty information about being her2/oestrogen+ and grade 3. What might happen next felt overwhelming and impossible but it wasnāt. You take your plan a bit at a time and tackle each part as it comes. Its not fun but but itās do-able as the ladies on here say. Weāve got through our various plans- surgery, chemotherapy, radiotherapy and the ongoing targeted and hormone treatments. We have learned how to be kind to ourselves in the bad bits and celebrate the good bits, and perhaps appreciate those a bit more. Stick with us, we use humour, swearing, doing silly things, anything that gets us through. All the very best.