Hello @boobitis and @suedot it’s good to get your updates. Oh the twists and turns of this journey.
1 Like
@sassy3 that itching sounds horrible and seems to be troubling quite a few. The nuisance side effects of the various drugs do seem to get rather shrugged off by both consultants and GPs. It’s wearing and keep nagging. @benji please keep moving through the darkness, I found a lovely quote a few months ago “ if you are unable to see the light I will sit with you in the dark”. That’s what this forum does so stick with us; Perhaps yourself and your husband can talk about where you are just enough to recognise you need to accompany each other through this dark patch. There will be good times again and your relationship will be stronger for surviving this. This shit show inevitably affects our mood, think aromatase inhibitors do too so maybe your body does need a rest. I’m struggling on with A I’s for now, interesting my consultant suggested tamoxifen if I needed to stop AI’s. I’m keeping notes as I think AI side effects may well be brand related because I can’t explain the variations any other way. Wishing you and all our special folk on here all the best as we head for 2026.
1 Like
Thanks ladies for the lovely thoughts and reading this thread I can see there are soo many different journeys.
Apart from this diagnosis I have been lucky to not suffer from any heath issues really in my life , apart from the recent meno symptoms the last few years I have been pretty fit and now I am consumed by how much damage chemo and tablets will play on my health. I walk a lot and this is my escape and scared it will go.
I lost my husband 6 years ago on Friday to bowel cancer and he was the fittest he had ever been when he was diagnosed. until these MRI scans come back I haven’t told my son or mam.. I am just researching and researching
Things like red light therapy while doing chemo or LED gel nails I have never not had my nails done.. I have lost plenty of toe nails over the years with walking and running. but I just like having some colour in my nails even if the rest of me looks rough.. any one else used any of these.
last question I am going back to the dentist as been up all night in pain with my gums, the same side as my breast tumours and the pain from drinking even water, this has been on and off for about 6 weeks and can’t wonder if it’s now related to the cancer.. I have aches and pains and twitching in my pelvis and thighs and my boob around the nipple is soo sore still since the biopsies. Feel like a hypochondriac. Anyone had this?
last I just want to say I love the openness on this feed, I can feel the hugs and thoughts as I feel at the moment I can’t talk to anyone as they don’t get it. I have holidays booked for Jan, the breast team have told me to go, maybe as it might be the last for a long time abroad. But I don’t want to drink, I will be no company at all to my friends. It’s shite..