Thank you. It’s so overwhelming with everyone having different scans at different points in their treatment. I only had an MRI prior to chemo, because my lymph nodes looked ok on that I didn’t have any other scans.
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Sorry to hear the news is not good . There are a few people on this thread who had residual cancer and moved onto another treatment called Kadcyla. I know it’s very disheartening but I’m sure your team have a plan to treat you. This journey is a rocky road. Fingers crossed the CT and bone scan confirmed what they have found and nothing more.
It’s sounds like you have a lot to deal with. A levels and GCSE are a stressful time for everyone without cancer poking its nose in. As already said try to find something you enjoy to distract yourself.
Take care
@salbert can’t believe it’s Eurovision again. Oh yes, the crochet yellow suit. Enjoy 
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@waveylocks Delays are most unwelcome when it comes to breast cancer treatment as we all just want to get on with it. Hope the time passes quickly until 17th June.
@fam I’ve not heard of that trial. What does it entail?
@evicting_00_squatter It’s always a kick in the teeth to be told there is residual cancer and I know personally what it is like to be told that they don’t have clear margins and that it’s in the lymph nodes. It’s like a punch to the stomach that knocks you off your feet just as you are climbing back up again. Then the scanxiety sets in. Many of us know this well but I would say do all you can not to let your mind jump ahead. I have learned from the last two and a half years of this forum that what you are going through is fairly common. Of course you are scared and my heart goes out to you. I’m giving you a big virtual hug. They have to do the CT and bone scans and I just hope they happen quickly so that you can get going on the next part of your treatment plan. When I was at the point that you are at, I got great comfort from hearing about my friend’s sister who reached her 11 year anniversary of being told she has Stage 4 breast cancer in January of this year. She has her treatment when she is called in and for the rest of the time she gets on with her life and doesn’t pay it too much heed. If anyone wants to follow her on Instagram she is juliafsparkle. I felt that if I was given the worst possible news then I could be like her. As @carrie5 says, we are no ordinary ladies so we face it head on and carry each other during the tough times. Try to distract yourself as much as you can and if you need to splurge then come and do it here. Sending you love and strength. 
@carrie5 and @naughty_boob Does a bear s**t in the woods? You bet I’m dancing to Eurovision. The standard at both semi-finals this week has been phenomenal!! I’m off to Devon after I finish teaching tomorrow morning for a Eurovision party. My sequins, score cards and Baileys to toast Sir Terry are at the ready. As is my cheese and pineapple hedgehog which I am unable to arrive without. Even in the midst of chemo 2 years ago, I did not let bc DARE to take away my Eurovision and it didn’t. Not remotely.
Have a sparkly weekend, wonderful women and to those who are struggling, I wish you peace and some mental respite.
xx
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@evicting_00_squatter sending you all my love. I wish I could say something more useful. We will be here to mop you up if you need it. x
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Thanks Salbert. So this trial is testing if 5 days of radiotherspy with higher dose given on each day is equivalent to 15 days of lower dose. This includes pts who need a boost dose and that is given separately. The total dose in 15 day arm is more than 5 day groups.
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I wasn’t on a trial but had 5 days higher dose radiotherapy instead of 15 days lower dose. I was at Velindre in Cardiff. I was advised that it’s better for you as you have less hospital travel/time and that previous research had shown it was just as effective as 15 days.
The Fast Forward trial was between 2011-2014 and published in 2010.
For me being 30 miles away from the hospital, 5 days was so much better.
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I also had 5 days radiotherapy instead of the 15
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@evicting_00_squatter thinking of you..
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Thank you for the support and the comforting story of your amazing friends sister.
Incredibly I’ve just got back from my CT scan, seen within 24 hours of discussing it with my surgeon!
Bone scan on Monday. 
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@evicting_00_squatter i had residual cancer cells and had to have a re- incision, its quite common so don’t worry, you’ve been through one surgery so you’ll get through another. I had kadcyla and its doable its nothing like chemo, I just finished kadcyla on january 2026 and my energy levels are increasing every week which is good getting back to near normal lol , shoulder still has mobility issues but I can deal with that x
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Thanks @caz591 I think it’s the positive lymph that’s knocked me the most, I’d been told it was clear on the MRI and numerous ultrasounds.
Whilst I’d rather have stayed on Phesgo as it’s a sub-cut injection, I had suspected that I would have some residual disease, and the outcomes on Kadcyla do seem very good.
The margin is very frustrating as it’s such a small amount and I’d been healing nicely but it’s worth it for the extra piece of mind xx
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Thanks @Jaygo I saw that you’re not going on Kadcyla after all but couldn’t find the post with the explanation ?
Hi @evicting_00_squatter I can’t remember that post, but I think it was because what they thought was a fresh tumour turned out just to be old scar tissue and that the chemo had done its job and zapped the original tumour. So, the mop up doesn’t have to be quite as thorough. xxx
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Oh amazing news 
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Hi ladies, just reporting in that they let crazy carrie out again today and I managed a decent caving trip, lots of clambering and crawling. I sat on a rock for a while in a huge cavern waiting to go back up on the winch just taking it all in. I had a silly grin on my face at the sheer joy of doing something I couldn’t do mid chemo last year. I slapped the rock on your behalf, no benches down there. We’ve got this ladies.
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Hello all
I am in my post-Eurovision slump, where everything feels a lot less sparkly and I pack my sequins away for another year. Devon was a long way to go for a party but it was worth it and I was happy for Bulgaria to win, this being the first time for them. I have always wanted to visit Sofia so am now toying with the idea of a visit next May….
@fam I always wondered why some people get given 5 days of radiotherapy and others 15 days and this possibly explains it. I got 15 but it’s interesting that others on here got 5. That was a whole lot less mileage for you @naughty_boob
@evicting_00_squatter Great that they’ve got on with your scans so quickly. I had the same experience and fortunately they also got my results to me way quicker than I was expecting for which I was extremely grateful as my head was a mess. Keeping everything crossed for you and do keep us posted.
Our dear Caving @carrie5 This makes my heart sing. I also experienced a moment of sheer joy on the way to Devon while sitting at a petrol station. It was just that moment of realisation that I was doing something I loved without fear sitting on my shoulder and I also sat there smiling. I didn’t slap the petrol pump but now I wish I had!
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Hello, me again! First of all thank you for all your responses to my last post about my diagnosis and scanxiety! They helped me feel much less alone in all of this.
Had my CT results today. Mostly good news I think…liver and lungs were clear and the lymphnode in my neck is just prominent rather than swollen so no concern there. They did say there is a swollen node on my pectoral muscle that would probably need to be looked at but that wouldnt change anything in terms of treatment plan. The only other thing was two what she called ‘islands’ on my right hip that would likely need further scans. The oncologist didn’t seem too concerned and said they may be scarring - she said it would need to be discussed at the MD meeting and the Radiologist would decide how to proceed.
Has anyone had anything similar to this? I’ve never heard of islands in the bones and am trying to avoid Google!
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Thank you. I’m quite worried after the bone scan today as the doctor who checked the initial 2D scans asked the radiographer to do some additional 3D images and then an additional CT scan of the area 
They said my surgeon should get the results tomorrow which is also worryingly quick.
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@salbert from what I heard, there were a lot of chaps who were happy for her to win. 
I suspect they report quickly as treatment needs to be started in a timely manner. Reporting our imaging will be prioritised.
I recall having an MRI late on a Monday afternoon and results were ready for the MDT on the Wednesday. The BC Nurse rang to tell me the outcome of the MDT after it had taken place. It felt alarming at the time but I was glad that it was done quickly so that I knew the next steps. X
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