Thats ok cassa. I went off tea on each chemo too! I had the same meds as petal88 for the sore mouth. Also used my daughters toothpaste as adult one really stings! Found paracetamol & hot water bottle did the trick for the pains. My doc did give me codeine just incase but i always managed without it - plus it makes you constipated so i avoided! If you do use the difflam mouthwash you can dilute each time you use with water & use every 3 hrs if you want - thats what my doc told me anyway xxx
Good luck today everyone.
Sugar, I look forward to hearing your dr’s views on Clarityn, this keeps popping up and as it’s only an anti-histamine, if it helps, SE’s would surely be minimal.
Wendy, what injection is it you have for 5 days after chemo? I had my Herceptin sub-cutaneously at the same time as first chemo but unfortunately I don’t know which SE’s are due to which treatment - I do know I felt much worse after I gave myself the Neulasta injection to boost white blood cells.
Petal, are you all finished with chemo now? How many did you have and which cocktail?
Wishing you all a comfortable day. I’m lying here listening to a thunderstorm!! Ruby xxx
Thats ok cassa,hope it works for you. What day are you on now?
Sugar i never got the sickness ausea on tax either - i dont think many people do?,thats more on fec. Thats why i didnt bother with my anti sickness meds towards the end. My oncologist told me not to take ibroprufen for some reason - cant remember why now - think to do with bloods but i know lots of ladies have done so on other posts too.
Wp23 my pains where awfull first round - felt like i was in labour but 2nd & 3rd - hardly any - just niggles. As hard as it is i think it helps to keep moving. I had the same toilet problems as you. Never asked about it but read on here it was normal & all the chemo passing through your body just makes you sore. Used heamaroid cream & vaseline. Horrible at the time but does all go back to normal between each chemo. I have only ever had herceptin along side chemo so dont know what the se’s are. I think not much though. I have my next herceptin on its own on 7th aug so will let you know!
Xxx
Thanks for that sugar. Lots of info on here x
…Hi all .I saw my onco today and he DOES not recommend clarityn for filigrastim pain. He is stopping my filigrastim next cycle instead!! I will have to be very careful to try and avoid infection. Will keep you informed re progress. I now have my supply of lanzoprazole ready for my crippling indigestion.
I am now feeling more positive about my 2nd session on Weds 30th.
Yes Cassa only 2 more to go so nearly there, then of course the herceptin injections. I think I can cope with those much better :smileyvery-happy:
Take Care everyone. Onward and upwards, each cycle is one step closer to beating our cancer and enjoying as normal . x x
Hi Casa
I only have one injection 24 hrs after chemo too. Is it Neulasta you have? I’m wondering if it’s that injection that causes the bone pain as it’s this that kicks your bone marrow into producing more white cells isn’t it?? I had to inject myself - did you? I had a rough night last night - this indigestion is a crippler, think I’m going to knock dinner on the head and just snack earlier in the evening. Is anyone else worse at night?? Wishing you all a pain free day xxxx
Petal
Are u all finished with chemo now?
Xx
Sorry Petal just read your previous post again so no need to reply to last question. I’m so jealous of you being closer to the end of treatments but it sounds like you had a fairly rough time of it so enjoy the thought of no more chemo or radiotherapy xxx
Hi Cassa - looks like it was the Neulasta I was reacting badly too. Doctors told me the pains I was having were from the bone marrow over working in my sternum, spine and thighs so they’ve given me stronger (Naproxen) painkillers to mask the pain until marrow has stopped doing its work. They are working nicely and I’m hoping for a few more hours sleep tonight. Cycle 2 they are going to use the smaller dose injections over a few days rather than the slow release biggie. Here’s to a good night and an even better tomorro for everyone xxx
Ok girls i need to sort something out in my head before 2nd cycle on 15th Aug. I had one injection (Neulasta) which i gave myself, in the tummy, 24 hrs after 1st cycle which was to boost my white cell count. This is apparently what caused all my pains (worse in my sternum) which are still bad now on day 9 but controlled with serious painkillers. So a) did anyone else have this injection and what were their side effects and b) are the filgrastrim injections to boost white count and are they always given over a few days?
sugar8 - why have u stopped filgrastrim now? Are u having somethjng else instead? I’m 51 - how old are you? Im so glad your 2nd cycle is proving to be better than your first - gives me hope.
Well done to everyone for getting through another day - we’re all a day closer to the end of treatment - hip hip hooray ???
Ruby xxx
Thank you for all your input ladies - I think I understand it all a bit better now. I’m day 10 today and definitely feel as if the bone pains are improving. I will talk to my Onc before next cycle about the options for white cell booster.
Petal - it really sounds as if you’ve had a terrible year, you poor thing. My heart goes out to you xxx
Sugar - you were between the devil and the deep blue sea. Injection -v- infection?? I suppose we all have to just take the advice of our doctors.
Debs - it’s all so confusing isn’t it - what sort of infection did you pick up? What treatment did u get for that when you were admitted? Where are U in your treatment schedule?
Wendy - I think it sounds better to have the injections spread out a bit rather than have the whole lot in one go, even if it is the most expensive. I think it shot my bone marrow into complete overdrive straight away and the sternum pain was just unbearable!
Casa - how r u doing today. I’ve been much better but then I’m on very strong painkillers so that might be why !!! Think I’ll stay on then for 12 weeks ??
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Good morning ladies and it certainly is for me - a full nights sleep without sleeping tablet so hurrah for day 10/11 (do u count the day of treatment as day 1 or the day after??). The family and I are all off to Southampton to visit in laws for the weekend (I’ve checked there are no bugs in the house!!) so hopefully might get a few walks on the beach!
I do wish everyone a really good weekend and a few brief moments when you forget about all this ‘crap’ and can look forward to life without cancer (never mind cancer treatments!)
Love to all xxx
Good afternoon everyone, hope it’s going well. Day 12 after first TC&H and I’m left with a really tight feeling just at my breast bone. Anyone else had this? I’m presuming it’s the bone marrow thing still happening. Other than that I seem to be symptom free apart from a yucky mouth and a bit of a sore mouth.
How is everyone else doing?
Love Ruby x
Hi Cassa - no not really concerned about the chest tightness but would like to get rid of it before I have my 2nd chemo treatment. Xx
Debs
That all sounds horrendous - what a tough time you’ve had. Hopefully the radiotherapy will be a breeze in comparison ?
My weekend was lovely as I was definitely starting to come out of the woods after chemo 1- I can’t believe I’ve only got ten more days before I do it all again!! I went for two lovely walks on Lepe Beach - do you know it?
How is everyone else feeling tonight? It seems very quiet, hope that means everyone is getting on with other, more enjoyable, things!!
Hugs to all
Ruby ?
Hi girlies
I can’t wait for radiotherapy coz it means chemo will be over!!!
Debs - so your advice is practice lying naked from the waist up with your arms above your head with axman drawing pictures on you!! My husband will be delighted!!!
It’s so nice that you’re so near to the hospital, I have a 45 minute drive or one hour train journey - not much fun!
Hope you’re not sore tonight
Night night ladies
Ruby xxx
Hi Petal and Cassa
I’ve only had one tax and one Herceptin so far (2nd due this Friday) and most of my side effects were due, they think, to the Neulasta injection I had to boost my white cells the day after treatment - mostly severe bone pain. I’ve not had any bloating that I’ve noticed. I’m also due to have radiotherapy followed by hormone therapy but I don’t know which yet.
Petal - what does the ‘pre-chemo’ you had after third Herceptin consist of? Is it blood tests? I do hope that bloated feeling subsides and the swelling goes down quickly - not sure how to combat that one, maybe movement or is too uncomfortable?
Cassa - I wish you loads of luck for tomorro, hope it all goes well on the day and that the following few days are easy ones for you. I know I feel a lot happier this cycle knowing I’ve got some stronger painkillers for the bone pains I suffered and knowing what’s going to happen on the day and days following - don’t know if that will make it easier to handle or not. A lot of it is ‘mind games’ at the moment I feel!!
Anyway, I’ll be thinking of you.
Night everyone
Ruby x
Hi sugar
I only had two nodes out with lumpectomy and there were minimal cancer cells just in first one. Surgeon 99% sure it’s not gone further but I’m having chemo, Herceptin, rads and hormone as I was positive for ask. If you had no node involvement I suspect it’s simply not necessary to have radio as you’re having other treatments. Just ask all your questions until you’re reassured xxx