i had first treatment of herceptin with vinorelbine last thursday and felt great and was on cloud nine thinking no side effects! By Monday thoough not so good , really bad headache started and sore mouth. i am using difflam for my mouth but has anyone else had this treatment and had the headaches and will it improve . I wonder if perhaps it is just stress because thursday i have to go back for second vinorelbine and am worried that i will not be feeling well when i go
As you can tell in abit of a panic so help please girls!
Skelts
Sorry to hear of your headaches.
I had vineralbine between sept 06 to jan 07. 2 weeks on and 1 off plus 3 weekly herceptin and zometa. I did not have any headaches and I can’t recall the other 3 women who were having it at the same time did either. We’re all unique!!!
I always find I’m very thirsty on the weeks I have herceptin so wonder if that and the heat may have caused you to be slightly dehydrated and that gave you a headache.
Have you read the vineralbine info from the homepage on site - have to admit I haven’t but could be worth a look.
Sore mouths have always been a problem for me on various chemos and have found that difflam can be helpful but sometimes I’ve had oral thrush so needed nystatin to help with this and also sulcraflate is very soothing. It’s one of those things I hate about chemo is the sore mouth and how everything tastes horrid.
I found vineralbine the easiest to tolerate but we are all different.
I found I got a lot of leg and chest cramps on vineralbine and that my nails were very breakable. I also got diarrhoea but most people seem to get constipation. It also caused me some tingling in my fingers and toes which improved once I stopped - I already had peripheral neuropathy from the taxotere in 2006 which has never gone away and did worsen on vineralbine but returned back to where I’d started from. I also got tired from cycle 4 -5 and needed an afternoon sleep but was OK till then. I even did quite a bit of travelling during that time.
Really hope you get on ok. I got my best results from vineralbine so hope you do too.
I start weekly taxol this week if LFTs OK. I wanted him to give me vineralbine again but he refused.
Kate
Sorry to hear about our headaches. I had my first vinorabline 2 weeks ago. I thought I was great until the Sunday, then very sore mouth could not eat or drink. No mouth ulcers it just felt like my gums and jaw were inflammed. By the Tuesday I also developed pain up the side of my head and headache. It was so bad I could not have treatment last week. I am up again tomorrow and I will see what will happen then. Last Friday I attended my Chiropractor and he said that my head pain was coming from my neck and shoulders and after some treatment I got a lot better. The Drs kept giving my more painkillers which made me sick (awful) and my Consultant also sent my for Brian CT which was normal thankfully. Sorry if this does not help you but I will keep you informed how I fair tomorrow.
Hope your feeling better soon. (ps) if you can see a Chiropractor it really helped with my pain.
thanks for your comments , had second vinorabline today was told it can cause headaches and to drink lots of water so i will give that a go .,Just got rid of headache from last week so hope the water works . Let me know how you got on as well cheezy
All the best Skelts
Hi Skelts, I have been on vinorelbine for 14 months. I have had severe muscle cramps in legs, chest, back and arms. My fingernails have been breaking at the ends like little layers peeling off. Kate I had wondered if this was from chemo but now that you mention your nails breaking I’m sure it is. No “bathroom issues” and no headaches. I was told to drink at least two quarts of liquid a day while on this chemo.I hope the liquid helps your headache. I did have some tiredness but that seems to have gone away. IGood luck Skelts!! Funnyface