Truly sorry you have to go through all this again. It’s devastating to face it for a third round. Thinking of you. X
So sorry the news is not good, I was surprised I got recurrence on my recon side, I thought that the whole point of mx was to stop exactly that.
I had to have CT scan which thankfully showed no spread, its just the waiting for results that is so stressful. Hopefully when you have your lumps removed they will get clear margins.
Take care.
Jan
I too have had a recurrence on my mx side (not yet had my recon) and just restarted on Chemo, sadly this seems to be quite common.
Good luck with your treatment.
hi im nearly 39 and had breast cancer 10 years ago.Had left mini flap op chemo ,radio and tamoxofen.Then over a year ago i found a small lump on the same breast near arm pit but not near original site.I had m.r.i’s biopsy and ultra sound scan but the results showed all was ok.I was pregnant with my son in the summer this year and the lump felt harder so i rang hosp for an appt to get it looked at again.They did a biopsy again and this time it came back positive and was told i had breast cancer again.It is a stage 2 grade 2 with good clear margins and one node within the breast had micro matastisies.Too say i was upset is putting it lightly ,i was still pregnant at the time and the tests and the waiting were horendous.Luckily it hadnt spread else where.I am just about to have my 5th chemo of fec ,only one more to go hurray!!! I had a left mastectomy this time.I havent had reconstruction yet and am debating wether to have the other breast removed now as well. i really dont know how i have got through this without going mad, but my family are great.I have 3 children aged 5, 4 and a half a my baby 4 months.Us women are so strong,having breast cancer again is awful but we will all get through it.Eventually!!! lol
Thank you for all you kind words. Good luck for your final couple of FECs OkeyDokey and hats off to you for going through all of that with 3 children… Wow…
I have now got some dates, no thanks to my BCN though, had to call up CT myself and get the info.
CT scan on 16 Nov with results on 17 Nov (pretty impressive service by NHS!).
Op to remove the offending lumps on 30 Nov, (hopefully I should be OK for the Christmas hols and more importantly for our holiday in New Zealand in February!!)
Will keep you posted.
Hugs
Anne Marie
xxxxxxxxxxx
Had CT scan this afternoon. It was absolutely fine, took all of 4 minutes and wasn’t at all claustrophobic.
I had the contrast dye pushed through and that felt a bit weird for all of 30 seconds like I’d drunk 10 vodkas and wet myself!.. LOL.
Scan results tomorrow at 2.10pm. Everything crossed that it doesn’t show any further spread… Will keep you posted.
Anne Marie
xxx
4mins?! Bet it took you longer to find a parking space! Really really hoping for you to get the results you are hoping for. X
Good luck for tomorrow Anne-Marie, be sure to let us know. Big cuddles.
Lynnx
Neither good news or bad news…
The CT scan has got them concerned but they can’t confirm exactly what the anomalies are. There are some nodules/scarring on the base of the left lung which has partially collapsed and is a bit ‘spongy’… Will need an MRI scan to investigate further. There is something up with the L3 (mid/lower back)they are not sure what this is and I will need a bone scan and finally… there is a very small ‘node’ on the back of the liver - will need a repeat CT scan in 4-6 months’ time to compare.
They did an immediate mammogram on my right breast which they said was absolutely fine - the only bit of good news of the day.
I am absolutely shattered - mainly with having to tell my family - so hard… OH has been fantastic, leaving me alone (to watch ‘come dine with me’… don’t ask!) and cooking me a lovely steak dinner.
I will still have the WLE on the 30th Nov when the cons will be able to regrade/restage and this might give some idea as to whether the CT scan results indicate secondaries or not…
Big hugs to you all, (especially Tina xxx),
xxx
Devastating news for you and your family. Saying how sorry I am doesnt really seem the right thing to say! More tests, procedures & waiting for results. Maybe, just maybe there could be innocent explanations for the ct scan findings… Hopefully the op will give a definite pathology. Sending you a very very big hug. There are many ladies here who may have more relevant experiences and can help. xxxxx
Why? I have just received my second primary diagnosis six years to both the day and date of the first diagnosis. Have date for second mastectomy in December. I can cope but it hurts to see my family go through this again. Know what you are going through mentally and emotionally. With you al the way. xxx
Will get bone scan/MRI results this Friday.
Everything crossed…
xx
All your words are reassuring. I had mastectomy for high grade DCIS, LD Flap reconstruction, no chemo, no rads in November 2009. Presented a pea-sized lump in reconstructed breast 6 months ago, but GP said it was nothing. Pushed to get appointment with breast unit and just heard today that I have third grade, stage two BC. Waiting for MRI, CT Scan etc and chemo starts Monday week. Why didn’t I push harder?
Having read your experiences, this seems more usual than I thought. It feels like the reconstruction was a waste as I have been told I will lose it.
The awful panicky feeling is terrible, but reading others with sensible level heads - puts it into a bit of perspective.
Thanks everyone
Dear All,
Again it was ‘good news’ and ‘not so good news’. The good news is that it was just a cyst on my liver, the not so good news is that I have mets in both my spine (L3) and sternum… Never thought I’d be happy with a diagnosis like that but the cons said that it looked like it was very slow growing as it had taken 10 years to get to that stage and that the anomalies on my lung look like scarring.
Cons has prescribed Letrozole and some biphosphonates (not sure which one yet as GP needs to prescribe biphosphonate). The really good news is that this means that we can still go to New Zealand in Feb next year!!!
Still having the WLE next Tuesday when we should get an even better picture of the grade/stage, ER and HER status.
big hugs to you all and thank you soo much for all your good wishes.
xxxxxxx
Annie,
I have sent you a PM
Hugs
Anne Marie
Bonetumour.org looks like an informative site. The stage iv dx for you has saddened me greatly, I hope your medical team will work hard to give you the best treatment available! XXX
Hi Annie
I’m really sorry you have joined us in the bone mets club - but it is good that it seems to be very slow growing, and the so-called indolent bone mets are very treatable. Hope all goes well with the WLE next week.
finty xx
Thanks Tina and Finty. Good to hear that my bone mets are ‘indolent’- does that mean that they are a little lazy…?! I wouldn’t be surprised - I’m a bit that way myself sometimes. The lazier the better I say.
Hopefully the WLE goes well - they did say they might need to do some more radiotherapy depending on what they find.
Take care and hugs to all
xxxxx
May lazy&slow long continue. X
Hi Annie - yes it does! It’s a term oncs use to describe very slow developing cancers - I’m not sure whether they have any other distinguishing features, and whether there is any way to tell if your cancer is indolent, other than from the rate of progression. But apparently it is know that a proportion of bc bone mets are indolent, and won’t go beyond the bones - so can be managed for long periods with bisphosphonates and whatever other targeted therapies are appropriate. So my very uneducated guess would be you have a good chance of being in this category, given it has taken 10 years to show up. Worth asking your onc about it anyway.
My onc thinks I might also be in this category - too early to tell yet. But she advised the best chance was also to go after the primary bc aggressively - so I had WLE, chemo and rads - now having a year on Avastin and Zometa before moving onto Femara.
finty xx