sorry taken so long to reply . well i did go for my visit re xeloda and megace and he decided to give me a chemo break of a month … well i felt not too bad then but this past wek i have been in bed all week with a nasty virus felt so ill .
my hubby went down to oncoloogy and said he could not brar to see me like this a minute longer . anyway to cut a long story short i managed to drag myself oit of bed
oday with my heavy lgs , sore shoulder ( right one ) etc and saw oncol and nurse . well … my liver enzymes have hit the roof same with my markers . white blood count at 28 !!! still dont know where the virus is so cultures need doing now .
anyway weekly taxol starts tomorrow at 12 , i feel so nervous as didnt do great on taxotere .
xeloda did not do the job for long and i am sad about this . why cant it stay away even for a short time??
Tracey!!!
I have been worried about you,
I hear you - its crap really, wish I could say something that would cheer you up about xeloda not working better. I wish it could stay away for longer as well. Your husband sounds like he did a good job going down to oncology and sorting you out an appointment, whats a normal white blood count? that does sound very low,
I think maybe you will actually feel a bit better getting on the taxol and starting something there.
Sending you a cyber hug!,
take care
Cathy
Hi!
Cathy - a normal white blood count is between 3.3 and 11.
Tracey.
Can you please tell me how much your markers show? Mine (S-ALP) is 80 and I need some comparison.
Love
Ca-Va
ca va my ca i53 are 1,ooo
Hi Tracy
Like Cathy I have been wondering how you are, sorry to hear you have been so rough. Shame the Xeloda hasn’t worked for you I so wish we could all have a miracle, I sometimes think its all a bad dream, then unfortunately reality kicks. Keep going my love, we are all here for you.
Sending a huge hug
Beli x
Hi Tracy,
sorry to hear your news hope taxol works well for you. I had 12 tax started in Feb my liver was in a really bad way after 6, a scan showed 50% shrinkage. Having a chemo break at the moment but due to go back on it Sep. I found it pretty hard going spent alot of the day in bed usually managed to get up very late morning. After a shower needed a rest. Dont want to scare you as it was worth it. Others have had a much easier time with it so maybe for me it was because my liver was in a bit of a mess. Hope you have even better shrinkage than I did. I took 1 teaspoon of manuka honey 30+ I think it helps with the immune system.
Good luck with the taxol.
Love Debsxxx
debs did you have many symptoms before the tax? i seem to have loads dark wee , shoulder pain etc . i have been so low i just fel like swallowing a load of pills . sorry .x
yes very dark wee and smelly, really tired and for the first time in 4 years really sick, plus dizzy. I just put it down to all the media fuss that was going on. I had shoulder and back pain so had rads for that which made me really knackered for first tax,BUT it did get better.
Love Debsxxx
Hi Tracy, it’s good to hear from you. We do worry when things go quiet, even tho thankfully it’s often cos people are out and about.
I had taxol last year, and weekly for a couple of months. I found it okay, especially when weekly, I hardly had any side effects. It was just my blooming blood count that was always the problem. My hair started to grow back and my tumour shrunk significantly.
Let’s hope this one does it for you too.
All the best
love Jacquie x
Hi Tracy
Good to hear from you even though the news isn’t great. Like Jacquie I had weekly taxol last year and tolerated it pretty well - worked throughout the 18 sessions though on reduced hours towards the end. Keeping everything crossed that taxol works well for you.
Kay x
Hi Girls
I am having carboplatin every 3 weeks and am wondering if its working?I lay awake at night anxious now and am gettting really low as tired I look about 9mnths pregnant but I dont feel like I am gettting worse just fed up with this huge liver…I can’t beare to look at my stomach !!I am stil using wheelchair as not much use of these legs although I think they aren’t as bad…I just want some normality to my life…to be able to walk my son in his pushchair and put him to bed again…I just feel so helpless…
Tracey1964…how are you …
P xxxxx