The waiting is the worst thing, Sam, and all of us are so sorry that you’re in there right now. But it will get better when you know how to treat it. It always does. Many hugs sent…
Hello sam3 thank you so much for reaching out and holding my hand, that’s what it feels like. Today’s the day. I managed to sleep about 6 hours in the end! Getting to sleep at the moment is proving hard.
I just wanted today to get here and now i want it done!
I really appreciate you taking the time. Xx
Good luck today xx
Good Luck today
Sending hugs xx
Good luck today, here if you need to vent later
My sleep has been awful, it’s impossible to relax- I get that. My doc prescribed some sleeping tablets (short term) and diazepam for during day if I’m struggling. I try to take only if necessary. Don’t be afraid to ask your doc for help managing anxiety.
Thinking of you today xo
Hello
The consultant told me it is breast cancer. Took biopsies and I get the results next Tuesday and what next treatment wise. I have told my children (all adults). Feeling so much better now i know and the important people know. Waiting was hell.
My plan is to park it as much as i can for the coming week. But as i have never been through this before I have no idea how ill feel as the days go by. Thank you for thinking of me. I appreciate it. Xx
Hey there.
Sending big hugs to you re your news and now the awful wait…
I’ve had well meaning visitors so not been around. I’m wiped out and I’ve not even had any treatment yet, think we underestimate how exhausted we are emotionally with it all.
It just blows you away doesn’t it.
I found telling my family and being worried about their own reactions almost worse, like you’re wanting to protect them.
The waiting is so hard.
I’m trying to concentrate on the fact that every day forward is a day towards hopefully getting rid of it, I’m not too sure that’s working too well!
How are you feeling tonight? How are your ‘kids’? My 21 year old daughter is a nurse and I think she has a list of what’s going in my hospital bag already!
I am sorry this was the news you received. I had my diagnosis 29th april but found that once all the appointments started to come in i began to feel better knowing i was on the path to getting rid of it. My treatment plan was for chemo first, followed by surgery and radiotherapy. I am due to have round 5 of 6 chemos tomorrow and surgery will be in November. Your treatment plan will all be dependent on the "type " of cancer. I have found that chemo has not been as bad as i anticipated and that side effects have been manageable. Should you require chemo you will leave each session with a selection of medication to relieve symptoms. Be guided by your oncologist, nurses and information and chat on here … and don’t google … some of the reading on there can be very negative and you need to remain positive.
Over the coming weeks you will likely go through a whole range of emotions and your thoughts will go off at all tangents… this is normal. Take it a day at a time and concentrate only on each stage of your treatment as it happens There will always be someone on here that can answer your queries and share experiences.
Sending you love, hugs and wishes for a speedy recovery xxx
Sorry for the radio silence. Those emotions are up down and all around. I just realised I have had the lovely messages or i have forgotten about them. Its a bit like that right now. Actually Im in disbelief then waves of OMG this is happening and then hurry up and happen thoughts. Can’t actually believe i have cancer. I have 5 children, 4 local and 1 4 hours drive away. The distant one is struggling the most.
We’re sort of carrying on as normal but all aware theres a big black cloud in the room. Even joking about treating me like a princess and other stuff. Its my life at stake is the way im thinking and I am not in the mood for cancers BS or letting it take over. I know on the horizon it will have more control. Tuesdays appointment can’t get here soon enough. I just want more info and yes I am fearing the worst. Im journaling to get it out of my head so i am sleeping but waking early. I am also following a brilliant UK breast cancer surgeon who also has breast cancer called Liz O’Riordan. She’s brilliant.
Thank you for stopping by and listening. I find the forum helpful and everyone’s stories are helpful. X
Wow waiting really is the worst thing about all this. I feel incredibly calm after my diagnosis meeting today. I have invasive ductal bc grade 2. 2.4cm. ER and PR positive HER2 negative. (All this new language i now know about).
I have to stop my HRT immediately which is a bit upsetting but understandable and have my Mirena coil removed. So much to take in.
Im going to have lumpectomy with a few nodes taken for checking. Then radiation then endocrin therapy for 5 years.
I felt sudden relief when the consultant told me. I had imagined the worst type coming back but its common and found early so they told me.
I realise things could change as I move forward but today I feel it is a good day. I’ve got some hoops to jump through and some new experiences i didn’t want to deal with. But here I am. Best advice I have had is to take each day/step as it comes. Tomorrow i may feel different (well, im telling my parents tomorrow which wont be great) but I am keeping it in perspective its not rare and its not aggressive and there are treatments and I am grateful for that. Thank you xx
So good to hear you’ve got news at last. Well done for being so positive. It’s strange feeling relief when it’s still worrying news isn’t it? I felt the same.
Hope all goes as smoothly as possible telling your folks tomorrow.
Spoke to my community MacMillan nurse today and went to Clan for details of the complementary therapies they offer. All becoming a bit real.
Another step forward.
Hi
I had the same diagnosis as you a year ago, September 13th, unfortunately my nodes came back with cancer in them to, so I had to have a auxiliary clearance which turned out to be all clear. I then had oncodx test to determine if chemo would be beneficial which came back at 11, I went on to have 5 days radiotherapy and now have letrozole for 10 years and ibandronic acid for the next three years, at Ct planning something was seen on one of my kidneys which they have said is a benign cyst, so like you say take things one day at a time and be kind to yourself, because things change all the time.
I’m now waiting for my first annual mammogram appointment.
Hope all goes well telling your parents tomorrow
Sending hugs
Hello Indigo2
One thing that hasn’t changed is waking early and immediately remembering i have BC. Here i am before 05:30 am. I do hope you are ok. Im grateful for your contact. Isn’t it funny how we torture ourselves with our own minds. I get cross with myself for going so dark and thinking the worst. I think it’s just a way of preparing but don’t think it really helps. None of us want to be here doing this. Keep updating and I hope you are well looked after xx
Great attitude @square-boob and you’re absolutely right, this is the most common histology of breast cancer so eminently treatable. I had the same myself albeit Grade 1 and had the lumpectomy, radiotherapy and endocrine treatment, in my case Letrozole as I was post menopausal. Recently had my two-year mammo check and all clear. No doubt, a couple of years down the line that is where you’ll be too. The active treatment will be over by Christmas and you can go into the New Year with even more positivity than you have now.
Hello there folks.
Have turned into a bit of a night owl, well and an early owl as well if the truth be told. Mastectomy next Thursday and of course heavy on my mind.
Hope everyone is trying to power on.
Indigo
Hi @indigo2
Fellow night owl here just reaching out to say hello though I will be turning in soon . My treatment is finished but a bit stressed for other reasons .Hope you can get some rest and will be thinking of you next week - you will be ok xx
Thanks Joanne
So glad your treatment is finished, so pleased for you.
Yes I’m contemplating snuggling down, but that head of mine just starts whirring
Good night, sleep well.
You too - I found an audio book helpful the other week when I was struggling to get off . Xx
Hi Indigo2
Its no good now it is dark for longer is it. I get off to sleep but wake around 4 and then that’s me done. It affects the whole day. I have surgery next Friday- a lumpectomy. I can only imagine how you feel about your operation. So much more to it and recovery time needed. I have just been reading about what to expect. I can never decide if reading stuff is helpful or not. I have decided from what I have read is to to take good care of myself, keep my self care boundaries in place and not do anything I don’t feel up to. I am the care giver of my huge family. The one who shops, cleans, cooks, makes the cogs keep whirring. But if cancer isn’t a reason to stop I don’t know what is. I have been having some strange thoughts about it all. I don’t know how to air them. Maybe on here. Good luck with yours. x