Hi ladies
I’m a newbie to this group unfortunately. I’m only 28 and recently been diagnosed with bc and bone mets following a pet scan. Had two sessions of FEC so far which haven’t been too bad. Just struggling to come to terms with this whole thing, can’t think of anything but! Any support advice would be REALLY appreciated! My onc doesn’t seem too concerned with the two bone mets I have and just brushed over the fact they were there, not sure why?!!
xx
Hi Tish
Sorry you have had to join us, but you will find heaps of support on here, and from ladies in the same position as you. I was dx with bc in July and told 10 days later had spread to my liver. I am older than you tho, cos 39, with 2 children under 4.
Glad to hear that your FEC were ok. I have had 3 x FEC and have just started my 3 lots of taxotere, the first one last week.
Not much advice I can give you really, but hang in there, and you will get some good responses. These forums have been a lifeline to me.
Take care and let us know how you are.
Love
Dawn
xx
Hey Tish
So sorry to see you’ve had to join this bit of the forum!
I got BC at 28 and had bone mets but they didnt bother checking that properly until a year later so was dx with bone mets at 29. I have the mets in my spine and sternum but know what you mean about people brushing over stuff- get them to explain why they’re not too concerned cause its a big deal getting mets! I didnt cry when i got dx with BC but i sobbed for days when i found out i had mets!
If you’ve got mets i didnt think you had to continue with the FEC?? dont take my word for that i pay not attention what they say to me as a live with my head in the sand work full time and party like its well not 1999 but sometime after 
I get angry , i dont really get upset but i can feel it coming on think im in mourning for my previous life where i partied and kickboxed and had a wicked time i now live under the uncertainty of well everything and feel im living month by month.
Where are you being treated?
Andf anytime you wana chat you just shout!
Love lynn
Hi Lynn
Thanks for the message, glad to see I’m not the only one here with the same thoughts, I just feel as I want my old life back and don’t want to deal with this rubbish!!! I was the same, when they told me about the bc I dealt well and never cried once but then when the second blow came I went into desparation and didn’t know what to do with myself.
Not sure about having to continue with the FEC, I think I’m still going to be having it, got my 3rd session next week, what treatment are you on? Do you have any pain from your mets at all, I’ve got no symptoms whatsoever which is why it came as such a shock!!
I live in Birmingham so being treated there, how about you?
Tish xx
Hi Dawn
Thanks for your message, sorry to hear you liver mets, must be even harder to deal with having two young children, it’s hard enough with just me to deal with!
Do you know what treatment you’ll be having after your taxotere? Did you still have the surgery for your bc? I’ve heard that people don’t when they have mets but I’m still scheduled to have mine following the chemo and then some radiotherapy followed by tamoxifen.
Tish xx
Hi Tish
You may find the secondary live chat sessions on a Tuesday evening at 8.30 pm - 9.30 pm of interest, live chat is Breast Cancer Care’s online chat facility where you can talk to others in real time. It is facilitated by an expert moderator and a nurse who are on hand to point you to sources of help and information. But for most people, the chance to talk to others in a similar situation is what counts, simply use the same login details for both the live chat and the forums.
Kind Regards
Sam
Moderator
Breast Cancer Care
Hi Tish,
I just wanted to say hello and that I’m thinking of you. I am also 28. I was dx at 27 in march of this year. Had left mastectomy and chemo and I’m in the middle of radiotherapy now.
I did not cry either when i found out I had BC. However, I was pretty upset when they told me just before I started chemo that I had 20 out of 23 nodes positive for cancer and that they were investigating a lesion in my liver for liver mets. Thankfully, it seems that the lesion was nothing, it did not show up in the following cat and mri scans (over the moon I was). However, I had to wait until I was half way thru chemo to get that good news. So many emotions and thoughts ran thru my head while I awaited that news.
My heart goes out to women like you, Dawn and Lynn and they’re right, you will get great suppost on this site. They are a great bunch.
Take care and chat soon. By the way my name is trish, not a million miles from tish!
Txx
Thanks Trish, really appreciate the message, bet that was a massive relief about your liver, I can imagine!!
Well session 3 of chemo is next week and then I’ve got another pet scan to see what’s going on following that, fingers crossed it’s all working fine, the onc said he was pleased with the progress so far when I saw him last time to I guess that’s good news (I think!)
Speak soon
Tish xx
Hey tish
Sorry been having rough week so havent been on here.
Im orginally from Birmingham well dudley…but havent lived there since i was 19 all my family are there still so totter up motorway quite alot to see them. I live in west london which is cool cause i go out alot and have got a good oncologist…ok they were gettin on my nerves last week but that was more to do with the BC nurses messing up my results and stuff.
Whens your last FEC?? and how you finding it? (I had 6)
Lynnc xx
Hi Tish, so sorry to hear your news. I was diagnosed with bc and bone mets in 2003.
Good Luck with your treatment…xx
Hi Lynn
Sorry to hear you’ve had a bad week, what’s been happening then? My BC nurse is brilliant to be fair, went to see her last week cuz I was feeling really down, feel a little better today, although I’ve been at work all day which was depressing in itself!!! The nurse was telling me last week to carry on drinking wine if I want so that’s exactly what I’ve been doing…quite a lot of it too! lol! Only way I feel a bit more relaxed about things, and it helps me sleep too!!
Got another sess of FEC this week, had 3 so far, think I’ll probably be having 6 too, not affected me too badly actually which was a relief after all the horror stories I’d heard! What treatment are you having now? I’m gonna be on Tamoxifen eventually when I get through chemo etc…
Do you get much pain from your bone mets? I haven’t had anything at all, that’s why the diagnosis came as such a shock i think!
Speak soon
Tish xx
Hi Belinda
Thanks for the message, how are you getting on with your bone mets? What treatment are you having for them? Did you ever have chemo?
Sorry for all the questions, I’m just amazed about how everybody seems to go down a different treatment route!!
Tish xx
Hi Tish, haven’t had chemo yet, had Tamoxifen for 15 months and I’ve been on Arimidex since Spring 2005.
I have monthly Prostap jabs to keep my periods away. (Prostap works like Zoladex)
Also been on bisphosphonates to strengthen my bones since early 2004. At first I had Pamidronate infusions but now have tablets instead, Ibandronate.
I don’t have any bone pain either…I was in shock for months after my diagnosis. Look after yourself Tish…you do sort of get your head round it all eventually…Take Care…xx
Hi Tish,
Hope you are doing ok. I think you are right to enjoy your glasses of wine. I just wanted to wish you the best of luck with chemo this week. Glad you have a nice BC nurse. Mine is great too. I’ve booked a holiday for me and my boyf for when i finish treatment.
Thinking of you.
Txx
Hi
I was diagnosed with BC, with liver and bone mets at same time at the grand age of 39. Again like you the bone mets were not really mentioned, despite me being in some pain with my back and neck, and it took me months to find out what they meant -i understand that whilst I have them they are non specific to a certain area?. I am happy to say that (fingers crossed) I had 8 sessions of FEC (originally down for 6) then radio, and the last scan showed only a tiny pinprick on my liver which the last chemo should have wiped out (I go for results of latest scan tomorrow so I am saying lots of prayers tonite!) I only get back pain if ive overdone it, and have no other real problems at moment. I am on tamoxifen and ibandronic acid to strengthen my bones.
I also found FEC okay to handle-not pleasant but worth the slight suffering for the results -so I hope you continue to manage these and good luck with your treatment. You will be back to that ‘old life’ before yopu know it -though you’ll may find you want to make a few changes as i’ve found this condition certainly changes your outlook on life!
Hi mrswilky
Thanks for your message, hopefully my FEC will be as effective as yours was! Next session tomorrow, not that I’m looking forward to it but at least it’s one more out the way I guess! Did you ever have surgery as that’s what they plan to do for me followed by rads and then tamoxifen?
Keeping my fingers crossed for you for your scan results tomorrow, let’s hope that last little spot’s been zapped away!!
Let me know how you get on.
Tish xx
Hi Tish,
Thanx-i won’t be able to walk to appt as i’ll have my legs, toes etc crossed!
I didnt have surgery unfortunately -I was very ill when i was diagnosed, extremely aenemic and barely able to walk and i don’t think they thought I would get through the chemo-(so theres always hope for everyone despite what the professionals think!.) I saw the registrar last visit to hosp, and she mentioned that the surgeon should really review me now, so I am gonna mention it to onc when I see him tomorrow. I guess it may depend on the results of the scan!
Good luck for your treatment-as you say its another one out of the way-and despite not really wanting to suffer, I did used to pray that my bloods would be good for treatment so that it was over with as soon as possible.
Take care Debbiexx
Hi Debbie
Gosh it does sound like you’ve been through the mill, but it’s brilliant news to hear you’ve improved so much since your diagnosis!! Just shows, if we all keep fighting…!
I’m the same with the chemo, don’t really want it but then I always hope my bloods are ok so I can get it out the way! My onc said he was pleased with the progress after my last session so hopefully he’ll say the same tomorrow too.
Again, fingers and everything crossed for you tomorrow, speak soon.
Tish xx
Hi Tish -
jUST AN UPDATE -WENT TO SEE ONC ON THURS BUT HE WAS ON HOLS SO SAW REGSITRAR -she says that met on liver has shrunk to 7mmx5mm and I havent had any treatment except tamoxifen sonce last scan so its great news,whilst. She also confirmed that i had mets to pelvis and lower veterbrae but they had gone no worse-my onc always said that my backache was not related to cancer, and my bone cancer was non specific (i have questioned him several times on this!) So I came away with mixed emotions but on the positive side I dont go back till Jan and I can concentrate on enjoying my xmas,
Hope you are okay and that your treatment isn’t making you suffer too much.
Take Care
Debbiex
Hiya Debbie
That’s brilliant then that you haven’t got to to back until Jan, at least you have a bit of time to relax over christmas and try and forget about things for a little while (if at all possible, I know how hard that is!). Good news too that your liver met has shrunk, that’s the way we want things to go ey?!
I had my chemo last week, felt absolutely fine after it, much better than after the last couple of sessions, no sickness whatsoever! Yippee! Plus my onc was pleased, said progress so far was ‘brilliant’ so that was a much needed boost!!
Back at work now and back to normality for a little while, hey ho, only time I haven’t complained about going into work!!
Take care, look after yourself and keep in touch.
Tish xx