Hi I was diagnosed with the above and had a lumpectomy and snb on on Wednesday. I just wondered if anyone else has had the same and what follow up treatment they have had or are having. I feel I should feel more relieved than I do following my op but I just seem to think of more and more questions and what ifs. Unusual for a person whose glass is usually half full.
Sam xx
Hi samjs
I’m sorry to read that you are having a tough time at the moment. I’m sure the users of this site will be along to support you soon.
In the meantime maybe you would like to talk to a member of our helpline staff who are there to offer emotional support as well as practical information. The free phone number is 0808 800 6000 and the lines are open Monday to Friday 9.00 to 5.00 and Saturday 10.00 to 2.00.
Best wishes Sam, BCC Facilitator
I also was diagnosed with the same have had a WLE and a SLNB nodes were clear there was no vascular invasion and although I was offered chemo I declined as it would only have given me an extra 3 to 4 per cent of it not coming back also oncologist said that my prognosis was very good so have Decided to go with just rads which should be happening within the next couple of weeks or so hope this helps I have faith in the nhs and have had fabulous treatment from my local hospital plus my oncologist is a dream… It makes a difference!!! Good luck!! :))
Hi Sam I am sorry to hear you are having a tough time. The diagnosis is tough and sometimes the treatment is tougher. I was diagnosed nearly a year ago, initially with grade 2 Invasive Ductal Carcinoma. I had primary chemo (chemo first) to try to shrink the tumour, from August - December. I wasn’t given a choice of chemo or not - I was told they pretty much were going to throw chemo and anything else they thought necessary at me due to my age (43) etc. I had a FNA prior to chemo which also confirmed lymph node involvement. Feb this year I had a WLE and full clearance. The path came back with an area of high grade DCIS on the edge of the margin plus another small tumour. I was also upgraded to Grade 3. Reexcision in March again did not achieve clear margins and found more high grade DCIS. I had a mastectomy and DIEP recon in May (that didn’t go to plan either! ) and I am due to get path results back Tuesday.Although things haven’t always gone smoothly for me I have always felt my team are doing their best for me and they have explained every thing every step of the way.
What you need to find out from your surgeon is (A) what grade the tumour is?(B) how many nodes involved and if there is any lymphovascular invasion? (C) Hormone receptor status and (D) if it is Her2 + or -?. They should advise all of this at your follow up and you can request your path results if you want the full details. This will then inform you on the next phase of your treatment. Waiting for these results can seem to take forever and you will worry I am sure whilst you are waiting for them. But once you know what your plan is this will help (I know that sounds rubbish but it’s true - -you will feel a bit more empowered that you are fighting this darn thing. Good luck with these results and I wish you well on the next stage of your treatment. Em x