Thank you for your comments , it’ll help me greatly when discussing it Friday
Wishing you well
Thank you for sharing your experience, I’ll be having in depth conversations on Friday, I feel that it’s too standardised and they’re not assessing each individual!
Wishing you well
Hi thank you for sharing your knowledge with me it’s definitely helping me decide !
Good luck next week 
It will be definitely worth asking what it is about your cancer that makes them recommend oestrogen blocking. The stats from my biopsy and then the tissue removed in my first surgery showed that it was grade 3, 8/8 oestrogen receptive with a high proliferation index. Although it was removed with clear margins it had shown spread to 2 sentinel nodes. It had imaged small (14 mm) with no apparent lymph node involvement apparent from the ultrasound scan.
I’ve had a lot of treatment in the name of curative therapy. I wobbled a bit over the 19 radiotherapy sessions and then the lymph node clearance, but then decided to just do all that was recommended. The extra lymph nodes were clear, but I came to view that as something encouraging to know which couldn’t be known if they’d not been taken out. It got me out of some radiotherapy and maybe some letrozole years.
I have been lucky in that this was definitely a lump to catch smallish and also that at just under 68, now nearly 72 I’ve been ok with it all more or less, definitely not reacting too severely. I was not on any prescriptions and feeling fine, post menopausal and retired. I’m about to finish abemaciclib and will have a bit under 3 years of the prescribed 5 left on the letrozole. It hadn’t been bothering me too much before the abemaciclib was added.
I think that different aspects of my cancer and more severe reactions to treatment may well have led me to different decisions about accepting or persevering with some of my treatment. Likely that different statistics on the cancer would have led to different treatment plan anyway.
I don’t feel as well as I used to for sure, but hoping to improve once I’m only left with the letrozole, and then again when it’s finished.
One thing has been that I’ve felt that the reasons for and potential benefits ( plus some potential risks) to me have been explained for each recommended treatment and I’ve really valued that. I’ve also felt that I would have had a perfect right to refuse some or desist once started if it was just too much.
All the very best as you decide what you need. xx
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