Hi,
thanks everyone who posted. I am doing well now, not sore, but in the peeling stage. The trick is definitely to stop the radiated skin touching other skin. As soon as I take the dressings off, some sort of reaction starts up again.
I have not felt tired at all on rads Kinden. They did say you must eat and drink a lot while on rads, which suited me!!! I guess we are all different in our reactions
Lily x
Hi,
I am new to this I have had Lump removed Oct 10th showed I had stage 2 Invasive Ductal Carcinoma then had Sentinel Node Biopsy to remove Lymph Nodes 5th Dec: I have an appointment to see Oncology Doc on 26th Jan,I was told I will have 5 weeks of Radiotherapy, I am trying to get this in my head as nothing seems to stay in there for long lol I don’t know what to expect as Surgeon has never been forthcoming with the way he was going to do my treatment only found out from my GP and Macmillan Nurse what he was going to do. I am at Queens in Romford for all this treatment and just want to say that reading all your messages has helped me a lot so keep your comments coming please !!
Also would like to speak to anyone who lives nearby that is been through this.
Pam xx
i Pam,
Hi, how are you managing? There are people from Romford on here, I live near Chelmsford so a bit further over. Your post is on a radiotherapy section so people might miss it here. I just noticed by chance, as I have now finished rads.Might be an idea to put a post on chemo or rads section, whichever you are doing next to pick uo some more contacts.
Just wanted to wish you lots of luck and you are very welcome to join us on the Essex girls thread ‘undergoing treatment for cancer’ section and meeting up if you are able to cope with the drive.
Lots of luck with your treatment
Lily x
Hi Pam,
I too had a grade 2 invasive ductal and had SNB. I am now waiting to start 4 weeks of radiotherapy at Mount Vernon in Rickmansworth/Northwood. You could try putting “Queens” into the search box and see if it comes up in any recent posts.
My surgeon and his team were great; he told me exactly what he was going to do and was happy to answer questions. The oncology team is a little harder going! Because I knew i was likely to forget to ask important questions - or forget the answers - I made a list of questions in advance and left space for me to fill in the answers. I found two of BCC’s publications really useful for suggesting questions - the Ask about Your Medicines one and Understanding Your Pathology Report. I was given one of the Resource Packs by my bc nurse and that has some ideas of what to ask too.
Eliza xx
Hi Pam. I live in north-east London but am having my five weeks of radiotherapy at Queens in Romford, starting on 9 February. Sounds like you might be getting away with just rads and no chemotherapy. Is that so?
Hi to all starting radiotherapy.
Have second zap today out of 23 and worrying about the burn. Just wondered is anyone taking vitamin E tablets to help prepare.?My oncologist in France is against any creams until I need it probably after 12 zaps.
Mustarm
I had my radiotherapy two weeks ago and have just started having probs with itchy burn that is driving me mad . I have seen a breast care nurse and she gave me Flamazie cream that is helping a bit. How long will this torture last?.
Hi Abby,
I have put for you below the link to BCC’s publication regarding radiotherapy which you might find useful to read.
Radiotherapy: breastcancercare.org.uk/server/show/nav.718/changeTemplate/PublicationDisplay/publicationId/117
Also the link to the area of the website covering radiotherapy:
breastcancercare.org.uk/server/show/nav.718/changeTemplate/PublicationDisplay/publicationId/117
Kind regards,
Jo, Facilitator
Hi Abby,
you should be over the worst point now and on the way back to normal. Ask your doc for the actiformcool dressings, they are especially for radiotherapy burns and amazing. Just like getting a fire extinguisher on it, better immediately. I think the trick is to stop the boob skin from touching the skin underneath. If it helps, once mine started improving it completely disappeared unlike some friends who still have a vivid mark.
Good luck
Lily x
Thanks girls for you help…Abby x