Aaaaaaaaargh Emily … I’m screaming for you!! What a bloody nightmare … do you think it’s because of Christmas n stuff?? I know I only had my op 6 days ago but I had resigned myself to the fact that I would probably have quite a wait for results … did they ring and tell you not to go tomorrow?
I really feel for you, the waiting is the actual worst xxxxx
CRASHED!!!
Sorry you lovely people but this morning I’ve come down to earth with the biggest bump ever!!!
Full on meltdown and need some words of wisdom …
How often does bc take over your body without you knowing?
How come I’ve lost weight?? It’s Christmas for gods sake??
What percentage of sentinel lymph node biopsies come pack positive for nasty cells?
In a very sorry state and I’m phoning BCN … hope they answer!!!
xxxxxx
Sarah - don’t panic, we’re all here for you. A crash post surgery is normal, my BCN warned me that I would land with a bump, and because I felt so well I thought I’d avoided it but 5 days after my operation I woke up just like you have today. Be kind to yourself, and remember it will pass. Big hugs coming your way.
love Jane x
You are all the most amazing ladies ever!!!
Yes, I woke this morning and bump … I told my hubby that I didn’t think I could bear anymore surgery or anything at all … I’ve had a tickly cough on and off since before surgery so I obviously have lung cancer too!! Then … it’s in my blood, it’s everywhere!! The big C that is …
I’ve now spoken to the BCN who has told me IM NORMAL … haha … who knew??
She was lovely but they can’t actually make anything right can they? They don’t have magic wands either … she was very reassuring about everything so far and reiterated that we are discussed in meetings and the best possible treatment for us individually is decided in them …
I do feel better, just tired with emotional stress I think
Thank you everybody!!! I will be back later to check in on you all xxxxx
You made me laugh Sarah, I also have had a tickley cough since surgery and had convinced myself it had spread to my lungs, when in reality I probably caught it in the hospital.
I am also suffering with earache, which seems to appear before every appointment - I’ve got it this morning and I have an appointment to drain my seroma at 4.30pm this afternoon - weird or what?
(Edited as I am not going for my chemo & rads today - obviously not had enough coffee this morning).
Hugs to you.
Susan
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It’s so good to read all your comments. I sometimes feel like I am going mad with all of this. I am 4 weeks post MX and physically doing well but mentally a bit of a wreck. I too have a tickle cough, thought chest, aching shoulder… I was proactive and started antidepressants but seem to have had a reaction when I increased my dose so I am now covered with an itchy rash. I guess we are all going through similar things and it really helps to hear other people’s stories xx
Thanks Susan. It’s good to read everyone else’s comments. I feel for everyone on here and all the anxiety but I am drawing courage from how strong you all are. xx
Back from the hospital, throughly drained, I filled up 3 bottles and 2 syringes of blood like fluid. My haemotoma had dissipated into the fluid build up, so that was good news. My non boob hurts now and I have random stabbing pains, but at least the pressure has gone.
Emily - My HER2 status still hasn’t come back, so I won’t know this until 17th January. I’m tired and fed up, so I’m going to watch a film on television and try and forget this all ever happened.
Have a good evening ladies.
Hello… I have been watching the threads for a couple of weeks as I have been playing the waiting game too. I have surgery tomorrow! Petrified! I am lucky that it is lumpectomy and nodes but have no idea what stage cancer is yet … I have had the cough/cold that is doing the rounds for the last two weeks and although seem better today still have a slight cough … I just hope they don’t refuse me tomorrow … I need to get this done! Sorry to sound so selfish when you are all going through so much. I wish you all a good day tomorrow x
Forgot to mention that despite Christmas I have also lost a lot of weight … eating whatever I feel like but not as much as normal …
Susan, it’s such a relief to get drained, isn’t it. Sounds like you had quite a collection.
Emily, big hugs. I’m playing the waiting game too and have some really bad days but also some better days. Such a roller coaster. I think your counsellor friend is right and thoughts and feelings change over time. It’s difficult to find acceptance until you know exactly what you are accepting.
I got out for a walk with my dog today and got my hair cut short! I find it tough getting out some days and just want to hibernate but other days I feel a bit more like me.
Hope you all have a relaxing evening xx
Thank you lady bowler xx
Hiiiii, I’m back … ok you can all breathe, I’m a bit better this evening … wow!! What a morning
First of all - welcome Jo xx I feel you had a baptism of fire this morning … stick with us, we can be funny ?? I’m not always so bloody miserable … honest!!
Kimjayne- I’m one week post op, had a mastectomy last Thursday so I understand exactly how you are feeling today … we will all be thinking of you tomorrow and waiting for you to let us know how you are … I was soooooo scared but then soooo proud of myself afterwards … big hugs xxx
Silver - what can I say?? Bloody wow … lol … you must be feeling so much better!! When did the seroma start? I’m feeling more sore today, it’s so weird, almost like I’m starting to bruise when there has been nothing!! and of course, my emotional big crash this morning … nasty nasty brain working overtime! xxxx
Emily T - so damned infuriating for you … I’m waiting for nodes and stage result and of course what treatment they are going to suggest … I had my her2 result before surgery … do they test it again do you know?
Emma and Jane - thank you for your kind words, it means sooo much when people understand … xxx
Strudel - so lovely to see your name today, even if it is to learn that you have crashed too … it’s just so bloody awful isn’t it? As if we don’t have enough to put up with without crashing!!
I wonder where our friend Mysti is?? And Nicky?? I hope they come back to say hello and let us know how they are
Pam - I know you don’t log in so often but hi xx
AND Helena - you are always here with your calming words and your huggles – thank you xxxxx
BLOODY THANK YOU - ALL OF YOU xxxx
Hope all goes well tomorrow kimjane - I had my surgery exactly 4 weeks ago tomorrow, but it feels like yesterday! The day went really quickly though as there was so much happening before the operation.
Strudel - was wondering where you had been - keep talking to us; I hate the waiting when I haven’t got a date, even if it’s a few weeks off, I find I can cope knowing when I’ll get the next bit of information.
Emily - I would be feeling so fed up waiting. Can never understand why they can’t give you the results they already have. I had my her2 status back after my biopsy, together with the oestrogen receptor status and score. Have they said when you can ride again? I remember when I had my horse I broke my ankle (not riding!), and it was so frustrating not being able to ride. I haven’t driven yet, was going to start this week, but since my fall on Monday, I can’t get the car into reverse, first or third gear, as my left arm won’t go that far forward.
Helena - you are certainly giving us all the benefit of your experience. My oh made me start taking the anastrozole last night - never before have I worried about taking medication, but for some reason am really worried about the possible side effects. I’m still having menopausal hot flushes without medication to make them worse, and I suffer with painful joints too - although my BCN today said as I already have joint problems I might not notice if they are slightly worse.
Susan - hope you are feeling more comfortable after having all that fluid drained - that must have been one enormous seroma.
Emma - granddaughter distraction sound wonderful - children are great levellers during times of stress.
Sarah - I think the bruising takes time to come out - I still have bruises from 4 weeks ago.
Good to hear from you Pam!
Jo C welcome to our group - this is a brilliant place for support, hugs and lots of giggles too. We all have an understanding of the emotional aspect of a cancer diagnosis. So many friends have been in touch since my operation saying that I must be glad the operation is over and I can get back to normal - I just smile but want to shout “what’s normal about having cancer, the operation is only the first step!”.
ive been for post op Physio today, and caught up with my BCN. Physio was hard - I have 6 exercises, 10 repetitions of each, to do 3 times a day! Won’t have time to do much else I think!! I mentioned a pain under my arm, and also below my breast on my ribs, and I have developed cording - apparently it’s unusual to get it under the breast, but hey ho - the story of my life! I have lots of stretches to do, and if that doesn’t clear it, will be shown how to massage the areas to break the cords down. The swelling I have is fluid, but not a seroma, so hopefully the exercises will help shift it, although the Physio said its a balance between keeping things moving and overdoing it!
Jane x
Hi everyone,
Thought I’d pop into this thread and say hello, as it seems pretty friendly. I’ve been through a pretty quick journey, 6 weeks from finding a lump, to biopsies to diagnosis to chemo, which starts on Monday. I’ve poked my head into the January 17 chemo thread too.
I’ve got a 28mm lump, invasive ductal (with some DCIS), but I’m ER-/HER2+, grade 3. The type that both my surgeon and oncologist described as agressive. Though they both looked uncomfortable when I used that expression back at them. (I’m going to suggest they use assertive from now on.) So I get to jump straight to chemo; 4 rounds of EC, then 4 of Docetaxel plus Herceptin and Perjeta. Good timing on the latter as NICE only approved it on the 16th of November. I’m ok so far, getting through with a mix of dark humour and bloody mindedness, but of course I’m actually pretty scared. Not about chemo, or surgery/rads, only about dying too soon. I blithely assumed I’d make 100, so 55 feels way too early to have intimations of my own mortality. Because I won’t have a sentinel node biopsy until surgery (est June/July) we don’t really know the stage for certain, but it’s currently deemed stage 2 by virtue of the size of the tumour. I’m getting a CT scan as soon as the NHS recovers from Christmas, hopefully then I can stop imagining the worst. Though I appreciate I probably have a lifetime of imagining the worst in front of me.
Anyway it’s lovely to virtually meet you all, even if the circumstances could be nicer.
Ali
Kimjayne - don’t know if you will see this, this morning but thinking of you and look forward to seeing you back on here … xxxx
Hi all,
Having a bit of a wobble today. I hate mornings and just want to go back to sleep! I guess it’s the whole long-term prospects that is getting to me. My consultant is so reassuring and says that everything is treatable but I want to know I have a future. I’m 47 and have 5 daughters and want many more years with them before I pop off. I guess it’s a day at a time and finding some enjoyment every day helps.
Kimjane, good luck today. Let us know how you are doing. xx
Thanks for all the welcomes. I knew this was a good place to jump in. I’m loving all the advice, humour and support. So much that I’m planning on spending most of my time on here, already got me out of emptying the dishwasher this morning!
Ok, I’m off to fulfil possibly the least glamorous shopping list ever: digital thermometer, laxatives, antibacterial salve etc. Think I’ll resist the urge to ‘FB live’ it.
Hope everyone has an ok day. None of you know me yet, but I’ll be thinking of you all. (It’s like a weird version of speed-dating, isn’t it?)
Ali
Thanks Helena. Good luck with your rads today. No frost here either and I’m up in the Derbyshire hills! Have to say though, I love sunny, frosty mornings as long as it doesn’t involve any car de-icing ?