Thanks I have just found a thread on here about cancer fatigue. So I’m pleased to have found that. Got to also speak to the hospital on Thursday about this. I have appointment today at 10.00am with my doctor. So also will speak to him this morning. I’ve realised we are all different but so glad we have each other. Very glad I found this place for support. Thank you all so much. X
My appointment at barts if this Thursday at 16.30. Have my dad and daughter going. Also my friend is coming. I have my gp this morning at 10.00am x
Emma - hope everything goes ok for today,
I’m getting my tough pants on for tomorrow.
Nicki - you sound like you have good support. Let us know how you get on at the doctors too & good luck for you appointment tomorrow.
That should say today not too - bloody phone ?
To all the lady’s on this thread expecting news and appointments today. Sending you all a hug and thinking of you all today…Please also let me know how you all get on xxx
Hi everyone just come from the doctors. I’m so so scared about tomorrow…I’m so scared in case it had spread and what I think is fatigue is actually cancer in other places of my body…my under arm was clear when they did ultra Scan however I feel terrified. Xxx
Hi, my name is Sarah and I’m 51 … up to now grade 2 invasive lobular cancer measuring 4cm and this is my last day of having a pair of boobs … just 1 boob from tomorrow.
I am apparently going to smell awful ??
Thanks for all your messages for tomorrow xxxx
Gosh there is a lot happening tomorrow!!
I have been for my sentinel node radiation injection today ready for tomorrow (or whatever it is … lol)
I am one of the people that doesn’t want to know too much about anything … I just keep going to the appointments and trust that they are fixing me ?
Jane, Nicky and silver - hope all goes well tomorrow, I will report in when I’m home
Sarah xxxx
Sarah when’s your op then ?
Hi pam, tomorrow is my op day!!
Got to be at hospital for 7.30am xx
Kimjane - I am having my operation tomorrow and my husband is unable to stay also, the hospital states that no family or friends can stay with you. My husband is the same as yours and has said he won’t be leaving the hospital and will stay close by in the restaurant and so on. This is purely because he knows what I am like with anxiety and says he would rather be at the hospital should he get ‘the’ call that I am panicking … I agree with Helena and to just reassure him that you are in the best hands and that you are going to be ok … xx
Thanks Emma & Helena, you made
me smile.
It’s amazing what a few words on here from you ladies can do.
I think I know where pants are & I’m gonna put them back on. I need to get a shovel & root killer for that creeper as well.
Nighty night - will update you when I get back. I have s physio appointment at 2pm then results at 3.30pm.
Thank you em and silver my thoughts are with you for tomorrow…I’m a bit confused to where everyone is at with there diagnoses etc. Please forgive me. I hope that anyone going for ops…having test results etc hoping praying wishing for positive wonderful news…I have my results from my biopsy. I’m so scared. I’m still getting really sweaty and changing my pj’s through the night. Terrible neck upper and lower back pains. Sore tonge sore lips just really run down. Shooting pains in legs exhaustion and severe tiredness. I don’t get these aches and pains all over? Doctor said it’s exhaustion and I also have scriosist arthritis ibs also back spasm…However this feels different. Completely different. Even my skin to touch feels sore…had shooting pains going up from my neck to my head as well. Thing is it’s really came on since last Thursday after biopsy? After I came away from hospital it all seemed to get worse? I had it a bit before but now its full on? May be it’s shock as well? Just want to know the results of biopsy tomorrow and go from there…staying positive as can be…will let you all know how it goes. Night night sweet dreams xxx
Hello all! Got good news today - oncologist explained that the isolated cancer cells are not to be worried about - he explained that a few years ago the treatment would have been a full node clearance and chemo, however research has shown that the radiotherapy and anastrozole will have the same outcome, so radiotherapy here I come! Have a planning appointment the first week in January and should start a couple of weeks later. Think it sounds the same as you Helena, 15 sessions plus 5 booster sessions. I’ve also got to have a bone density scan within the first 3 months of the anastrozole. He was brilliant, spent over 45 minutes with us, answered all of my questions and drew my oh lots of diagrams which he found really helpful. I don’t think I’d appreciated all of the side effects that you can get from radiotherapy, but as he said, you’d be unlucky to get most of them. We discussed the oncotype testing, and he feels that because my tumour had been picked up so early, and is a low grade, then there would be no benefit from the testing - it was nothing to do with my age!!
its really strange though - I should be so happy but I feel numb, it’s as though after all the times I’ve been given positive news, only to then be told something negative, I’m really frightened that I’ll get a phone call telling me they’ve made a mistake with something! Need to give myself a strict talking to I think.
thinking about you Sarah, Susan and Nicky - hope today has been OK for you all.
Emily - carrying buckets!! My BCN said not even to lift a kettle for several weeks!! I bet she went pale at the thought! Glad you enjoyed your night out. I’ve not managed a night out, but have been out for lunch a couple of times, and it’s true, you feel so much more positive after laughter with friends.
Jane X
Hi lovely ladies,
I am now cancer free, according to my consultant there is no cancer anywhere in my body.
But to give me the best chance of it not returning, I still have to have chemo and radiotherapy, but not for another 4 - 6 weeks. This was not a surprise, because my my tumour was grade 3 and 5cm (not 3.7cm) I already knew this would be the course of treatment I would need.
My consultant said that had I been an ‘A’ or ‘B’ cup, it would have attached itself to the chest wall, but because I was an ‘F’ cup, it was still mobile - first time I’ve been glad of big boobs.
I do have a seroma and she was going to drain it, although I’m not in any discomfort, but when I told her that there was a hemetoma, she has left it and I have to go and see my surgeon on the 29th.
I can have a bath tonight and put some deodorant on.
I am so happy.
I hope everyone else has good news.
Susan - great news that you are concer free - we’ll still be here to support you through your treatment - never fear - we’re like one big happy family!
Jane x
Hi everyone,
I’ve just got back from barts. Firstly silver that is such amazing news about you now being cancer free!! I’m so happy for you…you have given me hope! I got my results and I have grade 2 invasive ductal breast cancer. I’m 34 c cup size…They are happy it hasn’t spread to my armpit. Had bloods done and then went with my lovely nurse hannah to go over everything that’s going to be happening next. They are saying because I’m 45 and the tumour is 3cm that they want to give me chemotherapy to shrink it before sugery? It’s more for cosmetic reasons.
Hannah said I will be going for scans to check the rest of me to see if it has spread! Especially the bones? This worried me sick as I have not been feeling well generally. Breathless back pain lower back pain and neck pain headaches?? I will be receiving 6/8 month’s of chemotherapy?? Is this normal procedure? Also have to take out the marina coil asap. That apparently let’s of hormones which is feeding it. I’m not sure if I just want to get rib of my breast? Bit worried keeping it my life is more important than I pair of boobs…I am single but may be they could reconstruction new ones?? So this is me…This is where my journey begins…feel shaky tbh and everlything feels so sereal…just got to close my eye for a bit…so so tired xx
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Emma …why were you told to come off the coil my oncologist told me to go on it but sending hubby for the snip I’m only 41…so will have to go on tamoxifen for 10 years really don’t want any more children 2 boys aged 6 and 14 and a daft cockapoo are enough ??