Hi
Bit of a surprise to be awaiting hysteroscopy,just wondered if anyone has had similar experience with similar thickness of lining?
I’ve had scans after a couple of bleeds on tamoxifen which I’ve been on for 2.5 years.
They showed slightly thickened endometrial lining, plus cystic area on lining, and benign ovarian cysts. My breast consultant and bcn were not overly worried, said that under 14-16mm on tamoxifen was usually not investigated further, that cystic area very small, and that as my lining had gone down from 11mm first scan to 7mm latest scan it wasn’t looking sinister, but would discuss at MDM.
As a result I was referred on to Onestop gynae clinic,but really wasn’t expecting anything further apart from possibly scans to monitor.
It was a bit of a surprise at gynae clinic to hear that anything over 4mm on tamoxifen needed looking at, that cystic area needed biopsy. The fact that it isn’t clear whether I am post-menopausal or not (I was 37 when started taking tamoxifen, no regular periods since chemotherapy)was an issue in the decision. I’ve got to have it under a general (another one?!I’m feeling a bit upset about that part) which I understnd is usual for women on tamoxifen-to get a decent sample. Sorry this is a bit long winded, anyone been in similar position? Thanks, C
Bump
Hi COT
My friend had a similar experience after 18 months of Tamox. She had an odd dark colour discharge and went for the hysteroscopy. She had t under local as she is terrified of general (first general was for MX an DIEP recon so what a first!) Suffice to say she has not had discharge since and it was not sinister. Also know several people who have had cysts and there are fine and well.
Good luck!
Love
Jane x
hi cup of tea
i had a hysteroscopy, D and C, pipelle and insertion of mirena 9 months after starting tamox as i had prolonged, frequent periods and flooding… cant remember if the lining was thickened at that time or not.
but more recently had a scan the day prior to TAH and BSO as BRCA2 carrier and had thickened uterus however it wasnt unduly thickened on pathology… so maybe they are just erring on the safe side.
Lulu x
hello, i have had 2 hysteroscopies, i was on tamox for about a year and had bleeding all checked and was fine, 2nd one after being on tamox for approx 2 years all ok again have a bit of endometrisis, have since done the recommended 2 and half years on tamox and now on exemestane .
Annie
Hi Jane, Lulu and Annie
Many thanks for your replies, they really help. I was so upset at the general (I know its a very short procedure, been through much bigger etc, but was a surprise and it threw me a bit)that I didn’t ask enough at the time, so its very useful to hear your experiences.
C x
I had a hysteroscopy 4 years ago following my reporting continuous discharge plus some bleeding when I hadn’t had a period for 9 months. The procedure was done without anaesthetic which was standard at that time. A large polyp was found which, after some effort, the gynaecologist said he ‘couldn’t get near’ due to the position of my womb. I felt very queasy and had quite bad cramps for a couple of days following the procedure. I went back a few weeks later and had it removed under general anaesthetic. I was under for a very short while, felt fine afterwards and suffered no ill effects at all. He confirmed womb thickening (10mm in my case) and polyps are very likely to be tamoxifen related.
I took part in some research later to do with the hysteroscopy experience and it was discussed whether performing it under general anaesthetic might become more commonplace/given as an option at outset.
Best wishes
Hi Cup of tea
I have had bleeding issues on Tamoxifen with thickened lining- !cm and 5mm. I have had 2 hysteroscopies which i had under local as I would not have a general!!
Both were clear . I had apolyp which was removed but otherwise ok. The procedure was uncomfortable and I had some cramp next day but DEFINITELY better than a general!!
I have now finished Tamoxiden after five years last week and I have another ultrasounds scan in two weeks to ensure my womb lining has gone back to normal.
Good Luck
Alise x
Hi
Timetraveller and Alise, it’s interesting to read your replies, thank-you for responding.
At the start of the appt I was told it would be under a local there and then, which I would have expected, but when the reg checked with consultant, he said the sample they needed was too large (I think this must be the cystic area) and they would not perform the procedure without a general.
I did practically beg to have a local(not proud of myself!) but she said it was not an option, and also said this was not unusual with women on tamoxifen. From reading the replies, it looks as if it depends on the situation. I’m glad they are thorough, and certainly don’t want to be in agony, just disappointed!
Best wishes to all
C x
wow; its a relief to read this thread! I had a haemorrhage for three days back in May, and subsequent follow up re thickening of the lining (which seems minimal) and histology which is on-going. However my main problem is that I have an enlarged uterus; I look 18 weeks pregnant; has anyone else had this? I have been o Tamoxifen since last September.
Dear nidavellir
After the hysteroscopy I talked about above, I had a further hysteroscopy 2/3 years later where another couple of large polyps and a fibroid were found (but not removed at this stage). The consultant described my uterus as ‘irregular and bulky,’ although it wasn’t noticeable then as you say yours is. I later chose to have a hysterectomy for a variety of reasons, and seemed right timing as had just gone through natural menopause.