Am two weeks into rads and am sore and bone tired already. I have had to admit defeat and got doc to sign me off for another month so I’m back on statutory sick pay as my boss doesn’t pay sick pay. So am pretty fed up as it’s Christmas and I wanted to make some money. Sorry about the rant but I feel very down today.
Need lots of hugs to get me out of my funk.
Thanks
Jill
Jill,
Here’s a hug for you (((((((((((((((((((((((((X))))))))))))))))))))))))
So sorry you’re feeling so down - it will get better - it has to, doesn’t it?!
Love,
Sally xx
Thanks Sally.
It’s just some days are better than others and today has been pants!
Jilly
xx
Hello Jill, I am sending lots of hugs
(((((((((((((((((((((((((((((((((((((X))))))))))))))))))))))))))))))))))))
Jill are you not entitled to incapacity benifit at this time?
Rest quietly
Pat
Hi Gilly
{{{{{{{{{{{{xxx}}}}}}}}}}}}}}
lots hugs
As for christmas presents the best present for anyone who loves you needs is a hug from you and knowing you are doing everything you can do to get clear of the disease.
No amount of money can buy that
Love from
Linda
XXXXXXXXXXXXXX
Hiya Pat
don’t know about incapacity benefit. I think it’s means tested and as hubby’s still working I don’t think I’d get it, but I will look into it.
Thanks for that and thanks for the lovely hug.
Take care
Jilly
xx
Dear Lindsyloo
Thanks for your hug, it’s at times like this that you realise there are some lovely people out there, and even when it feels like it you’re not as alone as you might think you are
Thanks mate
Jilly
xx
Hi Jill,
Sending huge hugs for you ((((((((((((((((((((((((((((((0)))))))))))))))))))))))))))))))))
and keeping my fingers crossed that I don’t end up feeling the same ! - just heading off for my 7th radiotherapy session - spent the weekend creaming everything in sight and my nipple is feeling decidedly bruised. Ah well - only another 18 sessions to go !!!
Like you - if I don’t work I don’t get paid, and as it’s on a sessional basis there’s no ‘compensation’ from the state. I’ve got one morning session on Thursday this week so there’s a little bit of money I’ll get in January! - so much for Christmas !
Maddy xxx
Hi Maddy
thanks for your hug, very much appreciated.
I hope very much you’ll be OK. I think creaming everything in site is the way to go!
Good luck on the money front, I think Linda above is right. The best pressy is good health, hopefully next year will see us all on the road to recovery.
Take care
Jilly
xx
Hi Jilly
I have been told that because I have been in full time employment for at least 2 years, I am entitled to incapacity benefit. I have no partner but they didn’t ask about that so I’m assuming that it makes no difference.
I have also recently had a redundancy payment which they said would not be affected.
So see what you can do about getting it. I’m due to start Rads in January so will be joining you lot shortly!
Cecelia. x
Hi Jilly
I know exactly what you mean have had my 7th rad today am sore, red and tired and very down today, I to only get ssp and have been signed of since september and with christmas coming I was hoping to go back whilst having the rads, but I just can’t summon up the engergy also cannot bear a bra on either. So not much point in going to worl looking decididly lop sided. 12 daughter keeps going on about how she would like this for xmas and that although she has been great alll through my treatment I don’t think the financial side has hit her and I just can’t run to all thoose expensive presents like all her friends will be having. Don’t think its fair this b*****y stuff affects everyone in the family and this time of year is even worse. (sorry rant over needed to get this off my chest)
Heatherxx
HI Jilly,
PLEASE HAVE THIS HUG FROM ME!!! sory didnt realise i was shouting, its a big hug…
xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
have you tried applying to macmillan for their one off payment, if you are strapped at the mo for a little extra , they may be able to help.
The macmillan benefits helpline is 0808 801 0304, they are very helpful, and will advise you re other benefits too.
goodluck nd let us know how you get on,
Julie xx
Hi Jilly,
I have just been on Incapacity Benefit. My company doesn`t pay sick pay so I was 6 months on SSP. Towards the end of the 6 months and with radiotherapy still to have I applied for Incapacity Benefit which I got in my own right (nothing to do with my husbands earnings) It was £290 each 4 weeks so definitely better than nothing. You apply either by phone (all questions are filled in over the phone and they then send out completed questionaire to be checked and signed) or your local Job Centre. A sick note from your doctor and details of your appointments of your treatment (as proof) have to be sent in with the questionaire.
I found it very easy although its the first time I have ever applied for any benefits.
Best wishes for the rest of your treatment.
MargaretC
Hi Jilly
I had rads this time last year. 15 sessions and 4 boosters which brought me to 22nd December. For some people, me included, rads isn’t the walk in the park that some say it is although I suppose that compared to chemo it is. I didn’t have chemo so don’t know. I felt very tired and very thirsty but it does pass. I remember every morning passing a resucitation bed in a corridor which had a note on saying it wasn’t to be moved. I ached to lie down on it and go to sleep. And I used to see a lot of patients nodding off in the waiting room.
When I had finished rads they advised me not to give in too much to the tiredness as it would rule my life but you have to do what is best for you and your body. I think at this time of year, it is really hard. I would go shopping with my arm still hurting from WLE and tiredness form rads and feel really spaced out. Often I would give up and go home or, if my OH was with me, I would find a chair and let him do all the work. I got some funny looks sitting near checkouts at Tesco while hubby did all the packing etc. Especially when I reappeared just to pay. I am sure that the Assistants thought I was bone idle, but the trouble is, most of the time I look really well and have a rosy glow due to Tamoxifen induced hot flushes. Very galling when you feel crap…lol. Anyway, it will soon be over…hang onto that thought
Love
Debbie
xx
hi jill
had radiotherapy in april this year not nice i used aloe vera gell from holland and barretts each evening after rad very cooling and soothing
Hey up ladies! thanks for your many hugs. I really appreciate them. I’m in the process of seeing what money I can get. Thanks for your suggestions. Am now as red as Santa and as tired as his reindeers on christmas day! Am using hydrocortisone cream the radiologists have given me but you can only use it on specific areas not all over which is where I’m itching. Hope you all had a Merry Christmas and that the New Year holds only good news for all of us.
Big hugs ladies!!
Jilly
xx