I am just so scared and worried all the time, it’s such a rare and aggressive cancer :(. I have scans to see if my first lot of chemo has done anything to cancer, just hoping it hasn’t spread 
It’s terrifying the whole thing but what i would say is, despite it being a rare and aggressive cancer, there is so much knowledge which is now being shared with specialist centres like the one in Birmingham that your team will absolutely be tapping into. I’m almost at the other side, i’m in this sort of limbo between treatment finishing which is strange not to be in the cycle of regular visits to the hospital (for the first time in a year) and waiting to hear when reconstruction might be possible. The best advice i got, which i think was here was to take each stage one step at a time. We are not in control of this, we have to trust the treatment plan, and i tried to stop myself thinking or worrying ahead, it had to be just focussed on dealing exactly with what was in front us of me. Do you have support at home? I found my kids were a good distraction and they hated seeing me look sick but it did make me focus on what they had going on and having to put scan anxiety out my mind a bit! I found even after the second chemo, the pain in my breast got better, albeit you are then managing the chemo symptoms which arent pleasant at all .
Mine was only a little bit bigger than the other boob, hard and dimpled. It was never sore or very red.
Hello there,
I was diagnosed in Jan with HER2, 5 weeks after giving birth to my precious baby. I had just turned 34. I was so depressed and scared but here I am, 6 month later and cancer free. The treatment and surgery were brutal but worth it. I achieved a PcR and I’m about to start my radiation (4 weeks). I will be in Herceptin and Perjeta until Jan next year and after that I shall put all these behind me. Btw I want to let everyone who didn’t achieve a PcR know that your odds are still excellent so don’t sweat it 
Hi
Iv just joined this forum today
I had Triple negative ibc 8 years ago
6 Nodules affected
Complete mastectomy and nodule removal
Back then had chemo and radio
Wasnt any immuno available
2 months ago been told its come back near sternum and now secondary cancer
Not sure if anyone if anyonr has had recurrence and where or what the outlook is
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