Hi. Recently diagnosed with 2 idc tumours 33mm and 11mm upper right quadrant grade 2. Dcis nuclear grade. 2 biopsies. Surgeon said stage 1 with no lymph involvement. Hormone positive her2 neg
Lumpecyomy booked for November. Surgeon said I wouldn’t need breast MRI but just before I was due to get savi scout the radiographer wanted to get MRI.
Had the MRI and 24hrs later got a call from breast nurse to come in next week for ultrasound on other areas and possible biopsy.
I’ve spent the last 5 weeks since diagnosis in a horrendous rollercoaster of emotions and had just calmed down alot and now this.
I’ve been so stressed that I’m on ssri since and have high BP since so on medication for that.
The call has thrown me into a spin. I’m so bloody fed up of it already
Hey,
I’m sorry to hear of your recent diagnosis. I got my diagnosis in August, most of us would agree the stage you are in currently, is the worst. It’s such a rollercoaster of emotions whilst waiting for results and as you’ve experienced, being called back for further investigations. Then further waiting, it’s difficult to not be consumed with worry.
On the flip side, it’s also reassuring to know that they are doing further scans so that they can get the definitive state of play for you. At least then the ongoing treatment plan can be confirmed to give you best outcome. I initially had a mammogram, ultrasound & biopsies on my first appointment & then had to go back for a contrast MRI as I have two types of BC, one of which is lobular. I saw this as a positive, even if something else was detected , the earlier it’s detected the better.
You’re not alone in feeling this way. Make sure to reach out to your breast cancer nurse as needed, and Breast cancer Now have a helpline if you want to speak to a BCN nurse.
Thank you Trixie
Breast MRI went ok and I was recalled for more biopsies on the right. They took 5 samples and I was back for the results yesterday. All benign but they aren’t happy and feel more cancer has been missed so they want a MRI guided biopsy so my surgery has been postponed and I’m waiting to get a phonecall about the MRI. I’m so disappointed and upset. My surgery was meant to be this Friday
I can so empathise with where you are now. My story was almost identical last year. Diagnosed, surgery booked then cancelled when MRI threw up more stuff, biopsy done and came back benign, surgery booked again, disagreement at MDT about surgeon’s plan and the biopsy so MRI guided suggested, expert reviewed, decided wasn’t needed, surgery finally done seven weeks later… It was torture, so I can absolutely understand how you are feeling now.
But, and it is a big but, with the benefit of hindsight I am now glad all this happened. Although it was awful at the time it meant I did eventually have the right surgery which gave me the best possible outcomes. Hang tight, you’ll get there. x
Aww no, I’m so sorry to hear this. We prepare ourselves for one path forward and then a curve ball comes along.
Allow yourself time to respond and then reset. As hard as it is, at least by having the guided MRI, the medical team should be for armed with all the info they need to ensure the right next steps are confirmed for you.
If there’s one consistency on this journey is that it’s not linear
Thanks. Found today tough as I thought I would be organising my stuff for surgery and finishing other things off.
I’m finding the waiting very stressful send it’s making me so anxious. I still haven’t received a date for the MRI biopsy. It’s so frustrating to not have any sort of timeline.
I’m googling mastectomy now and reconstruction now as that might be a slight possibility. For the last 6 weeks it was definitely going to be a wle.
The surgeon says her preference is still for a wle but Mx could be considered but reconstruction unlikely for at least 18 months.
Hello, I’m sorry you are so anxious, I feel your pain. I’ve also been googling mastectomys today. I have breast cancer but thats all I know. I’m waiting on further results for the type which worries me, I had my results from an mri which found another suspicious area and so now I’m also waiting on the results of that. I don’t know if I will need a lumpectomy or mastectomy. I don’t know if I will be on hormone medication, if I need chemo, if I need radiotherapy. It’s very hard not having all the facts isnt it!
I have taken alot of comfort from this forum though and I hope you have found some also. You have already spent so much time waiting but everyone says the same thing that the waiting is the hardest part.
I’ve tried to keep my focus on the things I can control. Eating as healthy as I can. Watching relaxing and positive tv. Today I went for a super long walk on my own whilst listening to music which was really great. It definitely helped take my mind off things.
I hope you get some answers soon 
How are you getting on foxgem?
I had been politely asking via email daily if there was any update on the mri biopys or a timeline at least for same. BCN rang on Tuesday and said the biopysy radiologist in the other hospital who do the scans said they don’t think it’s necessary so breastcheck have decided to go ahead with the surgery next week.
I had to go up yesterday for 2 savi scout localisations and asked the radiologist who was doing it why they had now decided not to do it, it seems the mri biopsy radiologists is only just back from holidays and they only do breast mri biopys only one day a week and and I would be waiting weeks for the mri biopsy.
I honestly don’t know what to think, the breastcheck clinic wanted me to have the mri biopsy but the radiologist in the other hospital feels it will all be caught on the lumpectomy but that’s another curveball as only Tueday they mentioned that 1/4 of breast now being removed and possibly drains and they are booking an overnight bed just in case for me. I didn’t get to see the surgeon yesterday and won’t see her till day of surgery and I’m wondering about some reconstruction of the breast and filler possibly? In a way I think i’m supposed to beel grateful that the surgery is going ahead and I’m being awkward asking questions as I’m a public patient.
Hiya, I’m ok thank you. Still waiting for a plan, still on the emotional rollercoaster but I think I am coping quite well. My husband might have a different opinion haha
Its so hard for us to follow their thinking isnt it because we just arent trained to know whats best for us. I think others further into this journey will say to ask as many questions as you need. It is still your body remember.
I think we have to have faith that their goal is to fix us and they know the best way to do that. If they dont think waiting weeks for the biopsy will benefit you then id say thats positive. They dont want to keep you hanging around any longer than necessary.
If it was me id definitely ask the bcn for a bit more info about what to expect and about the reconstruction. Atleast id want to know what their intentions actually are. You dont want to expect one thing from the surgery and wake up and be in a totally different situation so any info they can give you will be helpful. Pester them 
I’m certain they won’t mind