I am fed up with my sister…Who’s jealous that I am getting more attention than she is off close friends and family…Sorry, she can have the Cancer, the Chemo and all the attention I’m getting and I’ll have her life! I didn’t want the Cancer or the attention anyway!!!
I know exactly what you mean aramis, my sister is like that too. Always has been. When my ex-husband left me, I phoned her to thank her for some flowers she’d sent and she spent an hour telling me about all her husband’s annoying faults. I would have swapped then, and I would have when I got my dx.
…people asking how I am…going on about my hair (one bloke in partiuclar teling me that it’s okay and there are plenty of bald people in the world, I know, I told you that’s okay and I don’t actually miss it)…people asking me how I am…yes i’ve said it again because seem not able to ask only once, they repeat the question over an over again looking for a different answer - they aren’t going to get one because my condition hasn’t change in the last 30 seconds!..I echo - people telling me all about the other people that they who have had ‘it’ - are they me, no so it’s irrelevant then, shut up!
ooh, that was a nice rant…
I’m fed up of the assumption that once I’ve done chemo “thats it” - it’s NOT ARGHHHHHHHH, I have a month of rads, 5 years Tamoxifen and my body has to recover from all it’s been assaulted with since March this year, Surgery, Chemo, SEs,Rads and Drugs.
I *wish* that would be it.
Though v grateful that last chemo is on Tues.
but I don’t think I “understood” about breast cancer before I had it diagnosed - often feel bad about way I’ve treated friends, colleagues, family about this… it’s so hard to “understand” unless you’ve been here…
On that note am about to write to hospital to complain about having to go in for another blood test - seems they’ve only just started to document this aa an “incident” - well they should try having me veins after 6 FEC and 4 TAX and when it’s difficult to get a blood test done… it’s a really traumatic incident for me…
El K, any time anyone asks “is that all done then?” I look shocked and exclaim “No, not by a long shot! I’ve done the chemo but I’m just starting radiotherapy, have a year’s worth of Herceptin intravenously every three weeks, and at least 5 years of hormone therapy, so it’s very far from over! But at least the chemo’s done, as that was completely horrible.” I don’t tell them off but I make sure I’ve explained that BC treatment isn’t just shoving lots of chemicals into us and that’s that. Most people don’t mind being on the receiving end of a brief explanation, if you do it the right way - as with many of the comments we’ve had tone of voice, facial expressions and general context all make a great big difference.
Fran, read about your blood test, how positively pants for you. You have every right to be fed up and I hope they cough up for the taxi!
I’m fed up with my bra showing… non of my clothes fit over the lovely MX bras i have…there is always some bit showing (OK there isnt if i wear a high enough neck line, but its SUMMER)I know i can go shopping and get new clothes… but guess what I’m fed up of not having the energy to!
Peole telling me I’m lucky because I don’t need to have chemo as there was no node involvement.
Yeah- it could be a lot worse and I truly feel for all you girls who are undergoing chemo and rads - but to me lucky is winning the pools, not losing a breast…
I’m also fed up of my mum telling anyone who’ll listen about what I’ve gone through. I acknowledge she needs support too and I’ve told her it’s fine to confide in close relatives and friends - but not random neighbours who don’t even know me. Do they really need to hear about my seroma and the fact that my first inplant after LD recon went necrotic? Er no.
I’m also fed up with the postcode lottery. The treatment I’m receiving in Leicester is exemplary. Just wish it was the same across the UK
Im fed up with being the person who has “COPED SO WELL”
I really haven’t… but of course that’s not the person they see… but then that’s my fault for putting on an act.
Toffee… just remember as I’ve said before when asked “how are you?” for the umpteenth time…smile and say FINE
F***ed up
Insecure
Neurotic
Exhausted and only you know what you really mean!!!
Not my idea, it was in a really good book I bought in Canada “I am not my breast cancer”
X
I’m also fed up with playing pin the tail on the donkey with my stick on nipple every morning!!!
Fed up of being fat having gained 2 stone since dx.
Fed up of people staring at my bald head cos its too hot to wear a wig and why should I?
Fed up of people thinking that just cos I look ok I must be feeling it!
Fed up of telling people its my last chemo next week and them saying “Oh is that it then?” NO IT’S NOT!!
Fed up of my mum attributing all my chemo side effects to old age. I’m only 49!
All of the above - except the stick-on nip!
Currently sick of last-minute packing up ready to move house tomorrow.
Fed up of being fed up !!!
Fed up of worrying about every ache and pain and what they mean!
Fed up with with people thinking I’m “better” just because my hair is growing back and they think I’m now “ok”! (it’s just that this chemo is kind to my scalp and you can’t see the ravages of radiotherapy…)
fed up not being able to taste any food properly…but doesn’t stop me eating…
at the moment, i am not fed up lol x
only starting chemo tomorrow but fed up all ready with people telling me how brave I am.
because I am putting on a smile and saying I am ok when in fact I am terrified of what lies ahead.
good luck mary brim x
What a great thread and a mimic every single persons comment, they are all so true. I’m really fed up with it. Only 2 fec in so far followed by several weeks of rads. I’m fed up with the mood swings, really sore mouth even though it isn’t stopping me from eating and gaining weight. Not being able to plan anything with my kids is getting to me. People telling me I look well, I just find that patronising. My closest friends avoiding me cos they don’t know what to say. I’m sure I’ll think of some more so no doubt I’ll be back
Good luck tomoz mary xx