Inflammatory Breast Cancer - extremely worried

Hi there,

I’m hoping to speak to an IBC specialist or anyone really about this.

I have already gone through treatment for Breast cancer with a mastectomy, dose dense chemo, finishing radiotherapy before Christmas last year.

I then got this breast infection of sorts 10 days ago in the mastectomy site.

I had an ultrasound and nothing was picked up and I am due to have a biopsy tomorrow as it hasn’t gotten any better and I have an open blister now, sorry if it sounds gross. 

I am completely in despair and haven’t slept for a few days now I am so worried. 

My husband keeps telling me how rare it is but I can’t see any other explanation for this. 

I have 19 mth old twins and at least last year I could say they won’t notice the change in their lifestyle. 

This year they would and I was so determined that 2016 was going to be fun filled and now I get landed with this. 

My head is already down the route of the fact that it is IBC and it is secondary cancer, I feel so lost and in a fog right now at how this could happen so soon after the last one and remember that this time last year we were going through the same thing trying to learn about my cancer and how we were going to tell family and friends… this time round it seems so much worse.

I could really do with speaking to a professioaln about this but unfortunately I’m abroad and can’t use the free number so if someone can provide me with a number I can call I would really appreciate it. 

Thank you so much 


Hi Lindy, 

It sounds like you have been going through a really difficult time. The users on this forum are very supportive and I am sure they will be along soon to share their experiences and offer a reassuring ear.

We do have an overseas number if you would like to talk. You can reach this at (+44) 20 7620 0077. Unfortunately we are unable to offer the overseas number for free. You could also email our Ask the Nurse service here. They will be able to respond to any questions you may have over email.

Best wishes,