Invasive lobular breast cancer

i had mx for ilc on 22/2. Aged 37. Two tumors on 15mm one 17 mm with DCIS covering area of 10 x 8. US said nodes clear but they took out 3 for testing - get all my results tomorrow and I feel ill right now about the thought x

Good luck tomorrow Flower x

Good luck tomorrow, PM or phone me if you need.

Fiona. xx

Hi Turquoise,
Thanks for your info. It helps a lot to know that your treatments were relatively spaced out.
I go for consultation with Plastic surgeon tomorrow and then on friday I have appt. with my breast surgeon to discuss the mastectomy. The joy!

ho folks you might have seen from my other post that I got my results. So from the scans I had 2 tumors 17mm & 15mm. Path results revealed 3 : 31mm, 19mm &14mm. Also out of 3 nodes taked for SNB one tested positive. I am inconsolable. After being told it was early and stage on I now find it has gone to my nodes and i am stage 2/3. I am booked for a node clearance this Friday. I really cant take anymore bad news x

Hi Flower20

First I was told by the consultant he didn’t think it was cancer but mastitis. Then he saw the mammogram and it all went quiet. Then he said he thought it was cancer and that although the tumour was very large, that it wasn’t in my nodes. Wrong!
I saw a different consultant who felt them and said straight away it was. It was such a blow after being told they were clear and I felt devastated.
Turns out I had 9/17 affected.

I’m now 3 years post diagnosis and treatment finished over 2 years ago and I don’t have any gut wrenching feeling when I say about it anymore. In fact I rarely think about it. Okay so the statistics aren’t quite so good perhaps with node involvement but with any statistic who knows what side you’ll fall on. Plus there is so much treatment these days.

As someone said to me, see your lymph nodes as doing their job in blocking the cancer. I saw it as knights on white horses preventing the cancer from going any further. May sound daft but it worked for me.

Hope the node clearance goes well on Friday.
take care, Elinda x

Hi Flower,
Oh hun its awful… its a lot to take in at the moment, I was advised from the off i have grade 3 invasive and im now waiting to find out if nodes are involved find that out tomorrow at my post op appointment, I was advised would prob need rads and then medication and then told chemo would be needed so its awful when you get conflicting advise, please try to stay positive I no its sooo hard but have a good cry, scream and hissy fit when you want to it works for me x Keep posting it helps talking to all the lovely ladies on here, this has got to get easier i keep telling myself that or id go do-dally , take care

Hugs (((( x ))))

Janice x

Hi Flower,

I know it all seems awful but it is still all likely to be fine in the end. Chemo works so well these days, I know of several ladies wth positive LN who are fine 10-20yrs later.

The chemo is doable, I’ve now done 4 out of 6 , it is not the best way to spend 4 1/2 months, but it does work.

I know you are used to pressure and stress in your life and I’m sure with your family and friends you will get through.

Take care.

Love Fi xxx

Hi . I was diagnosed with invasive lobular breast cancer September after a routine mammogram. I was so lucky as there was nothing to be felt and it was described to me as showing more of as thickened area rather than a defined lump. Then has ultra sound, biopsy and mri scan
and it was decided that as it was only one very small area I could just have lumpectomy. At follow up after surgery was told the tumour was only 9mm and lyph nodes were clear but was aggressive grade 3 and so I needed adjuvant treatment which involves everything they can throw at me basically. whcich is fine if it stops it recurring. Started chemo at end of November and had last one yesterday.Hurrah! Had 3 cycles of FEC followed by 3 cycles of Taxotere with Herceptin.Now carrying on with Herceptin for another 15 times at 3 weekly intervals. Three weeks of daily radiotherapy to start in about 3/4 weeks. then Letrasol for at least 5 years. Still seems like lots ahead but do feel the worst is over now that chemo has finished. little bit conceren about possible side effects of ahead but hopefully they wont be too bad. Lost hair within 14 days of first chemo which wasnt nice but you get used to wearing a wig after a while. I had no sickness partly due to antiemetic drugs they give you but Im actually not a very sickly person anyway. felt very bloated with Fec but taxotere knocked me for six and have felt quite wiped out for up to 10 days afterwards. Anyway onwards now, have managed to keep fairly positive so far except for the odd blip on the worst days. If it keeps the nastys at bay Im up for it.
Good luck to us all.

Are any of you ladies avoiding certain foods or adding certain food to your diet?
I’ve read a few things online about soya and other foods on breastcancer.org/
and wondering in anyones doctors told them to avoid or eat anything in particular?

We’ve had a massive amount of debate on this forum about diet. If you want to look at some of it there is a thread called ‘for those interested in research on diet and breast cancer’. You’ll also see what BCC says on the subject too.

One woman on this forum was given a diet sheet by her doctor but I think that’s extremely rare and I think most probably never mention diet at all.

Elinda x

When I asked my onc re diet he said there was a lot of advice re no dairy, lots of certain veg etc, but he said he was very definite in saying that none of it was proven scientifically

Sorry about all spelling errors on my first post above. Chemo brain after treatment yesterday!

Sorry about all spelling errors on my first post above. Chemo brain after treatment yesterday! Re diet i was told at the start of chemo not to worry about diet too much and if I had cravings (which I didnt)to indulge them as there would be plenty of times when I wouldnt feel like eating anything much. This was good advice for me as I didnt get hung up about what I was eating when there were other things to cope with. I have lost weight as lack of taste meant food was not enjoyable and so I naturally ate less. Fruit was the only thing I really fancied and anything dairy on my worst days was the last thing that I felt like. My advice is dont worry about it too much. Just do whatever gets you through it best.

I ate as healthily as I possibly could during all my treatment which included no cakes, chocolate or anything fatty. I had a lot of vegetable soups and veg juices and healthy meals like fish or chicken with vegetables and a carb. I couldn’t face coffee and drank quite a bit of green tea. I snacked on things like oat cakes and fruit.
I couldn’t see the point of putting my body through chemo and then stuffing it full of unhealthy things.

This was quite a change for me and I started it as soon as I was diagnosed as it felt the right thing for me. Now just over 2 years since finishing treatment I’ve relaxed things but not to what they were before. I don’t drink, I do eat chocolate but cheese is a very occasional treat once a month. I’ve kept up the vegetables.

I think each of us needs to do what feels right. For some it’s not worrying about what they eat, for others the sense of having some control through food feels right.

If you feel inspired to revamp your diet then I’d recommend the healthy recipe thread as there are some great ideas.

take care, Elinda x

Thanks people :0)
I saw my doc today and she’s said there is no evidence to suggest doing anything with your diet other than eat healthily and do exercise. She did say there is always speculation about drink being a possible cause but no hard evidence. I do like a glass of wine myself and always have. I’d hate to cut it out completely but I do feel less inclined to indulge as much now.
I do plenty of exercise as I have a dog I walk 3 times a day and I recently turned vegan after being vegetarian for 28 years previously and I do eat a good variety of foods and don’t indulge in fatty foods suck as cakes, choc, biscuits etc
This weekend I’m on PJ hunt for buttoned PJ’s…hardly any out there now!

Eek! they brought my op date forward a week…I’m set to go in on the 14th now!
Had to tell 3 clients today about this which I wasn’t expecting I’d have to do :0(
Hopefully i’ll be in full working order again soon and back to work too!

I got some button front pj from marks and Spencer on line