Hi Peacock
Good to hear from you although sorry to hear your latest news. Let us know your next treatment plan, as you know from the past we are all here to cyber support you
. I’m coming up to my annual check which always a worrying time although anything new will come as a surprise because I feel well and my energy levels have finally come back to normal for a lady of my senior years, also OH decided to diet and in supporting him I have finally, 4 years down the line, lost the weight put on through chemo
Take care
Andie
So sorry Peacock to read of your second primary :(. Have you started chemo already or do you get an OP first?
Ch xx
Hi Peacock,
What a shock it must be to have a new primary, I’m so sorry. We are all vigilant about looking for signs but never think that we could be unlucky enough to have a 2nd cancer. I don’t visit the site much anymore. Like you’ve I’ve begun to put it behind me. I’ll visit more often now that I know you need support.
Hi Andi. Good to hear you are still doing well. Congratulations on your weight loss. I actually lost weight during treatment but I’ve put it all back on again. Don’t fancy it as a diet method so I think I’ll stick with being slightly overweight. Lol.
Jan x
Hello ladies
I was looking back on some of the IBC threads (Fitzy’s in particular) and came across this - what with one thing and another I haven’t replied, sorry for that.
Thanks to all the oldies and newies for support. I had a lumpectomy and SNB on 13 June the surgeon took 9 mms so got clear margins as the tumour was only 5, nothing in the nodes and grade 1. I feel peeved that they keep telling me it’s only a pretend cancer 
, yeah right I wish!!
Unfortunately I have to go down the rads route again which I am starting next week for 25 sessions. As it was both ER and PR positive they’re suggesting hormonals/AI but because I have osteoperenia (keep getting fractured ribs for no reason) they think tamoxifen might be better as that helps bones apparently.
It’s good to hear from everyone, glad to hear Jan you are coping with work and 5 miles a day walking, you put me to shame. Andi well done on that weight loss, I’m very jealous and hope treatment is going well for the newbies.
xxx
Hello to every 1 I’m new on here on was told feb 2012 that I had ibc I’d never heard of it I had 6 rounds of chemo hated it so much I finished chemo June then had a macstantme July and lymp nodes removed was told that when they check it there was 16mm in my breast and 5 of my lymp nodes had cancer in them that scares me i start radiotherapy next wk 15 not looking forward to just can’t wait for it to be over ;((
Hi Rackelle
you have most of the treatment behind you, rads will fly past. DX in Nov last year, I now started going to the gym two months ago and really enjoy it, also started working again (self employed dog grooming in my back garden, so I take it as easy as I want lol). Life is s l o w l y going back to “normal”. MX side still quite sensitive to touch, well at the side below the armpit.
Hope all is well with everyone,
lots of love from 3N3
Hello to all of you very lovely people out there. My dear big sister was given the news that she has IBC, a month ago. She’s gone through 2 chemos and has to see her specialist tomorrow. Fingers X’d it hasn’t spread? The week following her 2nd treatment she has been very withdrawn and sleeping most of the time, bless her. Some may say sleep is the best way to heal? I have suggested that she contacts you guys, but at the moment, she doesn’t want to do anything. I know it’s early days - 6 weeks ago she was getting ready for her holiday- What is the best way I can help her? I have found this site so helpful,but it’s you guys out there and my dear sis who are going through it…and coming out after chemo and everything that follows is so good to hear…xx
Theresa
Hi everyone - was diagnosed with IBC 27th March waiting for appointments is really getting to me. Is it normal to wait 1 to 2 weeks ? Easter break causing a delay/backlog. Just want to know what i am faced with although i know i have got to have chemo amd masectomy and then take Tamoxofen.Its already a week since diagnosis. What about cancelations ? Told them i was available anytime …day or night.
Janey try not to panic, it’s pretty normal to have to wait, I did. The good news is I am now 8 years in remission despite lymph node involvement and possible liver mets - the chemo did its stuff. You will feel much better when your treatment program starts.
I managed to work right through all of the treatment so hopefully you won’t find it as bad as you are anticipating, of course that doesn’t suit all, so don’t feel pressure to do that - it just helped me keep things normal in a very abnormal situation.
Keep calm and face it head on - thinking of you.
Hi there
ive just been diagnosed with very similar to your diagnosis and wondered how you were getting on?
Hi Katherine,
Am starting chemo monday 29th April.
EC chemo, 6x 3 weeks.
Ct scans show some spots on my lungs.
After 3 lots have to have more scans - may have to alter treatment.
Having a day at Centre Parcs with my mum tomorrow and having a Chinese Saturday 
How are you Katherine ?
Hello everyone
I was diagnosed last week as a grade 2 IBC. I have two seperate tumours which are approx 2cm’s each and there were cancer cells detected in one of the nodes which was enlarged under my arm. I have been for bone scan and have a CT scan tomorrow. Will have my pre chemo visit on Friday so its all going pretty fast. I dont have all my results yet but I know my cancer is Oestrogen positive but haven’t got HER2 result yet. Will start chemo very soon then have MX followed by Radiotherapy.
was not expecting this when I went to screening two weeks ago following a few trips to doctors resulting in a referral.
Im 46 and have three children, daughter age 20 daughter age 7 and son age 4.
pretty scary stuff but I;m staying positive and hoping Ive caught this early.
Hazel
Sorry Hazkev to read of your DX. I also had a grade 2 (IBC). I’m now 18 months post dx and feeling very well and do all normal life again. When women on this forum always say there is light at the end of the tunnel, it is very true (well for the good majority of us). Of course BC could come back anytime, but meantime I enjoy my life and not having it spoiled by negative thoughts. Hope all goes well with your treatment.
Love from 3N3 xxx
I’m now 5 years (just) past my IBC dx - I remain NED at this stage and my second primary was nothing to do with IBC.
All the best to newcomers
Peacock - that is great news. I am just over 2 years past IBC dx, and also had a later diagnosis of a second primary on the other side with further treatment, and currently NED too.
Christine