<Empty imported post>
I was on eribulin nov last year for 6 cycles (so 12 doses over 18weeks)
It worked ok for me, there were a few other women on it at the time but I’m not sure how many (if any of them) are still on it
I think it is usually for a max of 8 cycles
After my 6th cycle my onc decided to give me a break and try me on exemestane and fulvestran (sp?) - I am waiting for blood test results to see how I’m doing now
Good luck with the eribulin. If you want me to tell you about the se’s I had then do ask, but I think they vary from person to person so you may not have the same as me
Cheers
Mx
I’m on Eribulin at the moment, starting cycle 3 tomorrow then a scan in 2 weeks to see whether it’s worked (lung and brain secondaries). Side effects wise I’ve found it a breeze and have been having gcsf jabs after day 8 which have been excellent.
Hi … started Eribulin 2 weeks ago and have found the side effects so much better than other chemos. Can still lead a good quality of life (so far!). There are 4 of us at my hospital on this chemo and they have had some good results so fingers crossed! All I can say is thank god for the National Cancer Drugs Fund… my PCT do not fund it. Good luck with your treatment. Pauline xx
Hi, I’ve not taken Eribulin, but I’ve just come from a meeting with my oncologist and mentioned it. Her face lit up and she got very excited about the good results it’s been getting. Just thought I’d pass that on. Good luck x
thank you all for your replies. Im due to start my first of round three friday, had a few problems initially with my intestines stopped working so am now on constant constipation treatment. Yuk. Also on morphine for rib pain, memtioned this to oncologist and his attitude was “well if its in your rib then we can just Zap that with radiotherapy”. Very uninterested. After my first round my hair started to come out in mass, but thankfully i have very thick hair and it seems to have stopped coming out. For once, i havent lost my hair. Wahooooo. Taking my girls in with me tomorrow for chemo for the first time. Think it will help. Maisie (9yrs) is finding chemo this time around pretty tough. she just wants a mum who hasnt got cancer. She has gone very quiet. We are very open about it as ive been doing it for 5 years now, but as she and my two other younger children get older, they understand more. Can i ask Francescap29 what injections you have and what are they for? My main tumour in chest wall has definately shrunk but not as much as i would like. Havin scan after round 4.Thanks for reply guys, really helped.
Gcsf is a white blood cell-boosting jab. You inject daily for 5 days after day 8 and it just helps keep your WBC up. It’s a bit of a faff as you have to make it up yourself at home but once you’ve worked it out, it’s a doddle. some people say it can give you bone ache but I’ve never felt that. Ask your onc about it. I had it when i was on gemcarbo too thankfuly as that was a b1tch of a drug.
I’ve just started cycle 3 of Eribulin and will have a scan on 11th June. Apart from being quite tired for a couple of days it’s the easiest one I’ve been on, and I’ve stopped taking the steroids as found they were doing me more harm than good in terms of not sleeping.
Hi there,My oncologist has offered me Eribulin as a last attempt to control my Sec BC.I have just completed 18 weekly treatments of Paclitaxel/Carboplatin and sadly it has not worked for me.I qualify for the Drug Fund in my area so no problem there but I don’t know anyone else who has had this new drug.I have posted in the forum and then saw that there was this thread.I would be grateful for any feedback on side effects (i know it’s different for each person) but I’m usually quite sickly with all previous chemos.Does anyone know how long they can continue to treat you with Eribulin if it is showing good results?I’m really confused about what to do for the best.I’m only 44 and feel I must not give up now after living 5 years with secondaries.I have a 15 year old daughter and feel I have to give it a try for her sake too.I look forward to hearing from you,with best wishes Tracy xx
Hi tracy, if you’ve had carboplatin and a taxane then you will find this MUCH easier. Promise. It’s totally non-sicky and it’s a tiny amount they give you anyway. I had my IV anti-sickness halved after the first cycle and now I don’t even bother taking steroids. I think they can give up to 8 cycles although not 100 pc on that. Initial data has been encouraging on eribulin I think - I know a few people who have been on it and it did well for them. Only one person reported it not working so I’d say go for it, as it’s much more tolerable than carbo which completely floored me every time, as did taxotere. The CDF wouldn’t shell out all that money if your onc didn’t think there was a good chance. If you can get some GCSF jabs to take home at the same time, all the better as I think it can clobber your neuts a bit.
Good luck x