Hi all,
I have not posted for a while, After WLE, ANC, Chemo,Rads I am now taking Tamoxifen and having Herceptin and I am aching all over, my legs feel really heavy and I’m so tired… My mind is doing overtime and at times convincing myself that the C is back. I am so stressed and tense all the time my shoulders and top of back feel achey and tense, I’m having one of those horrible days of dread and all I can think about is this… It’s so not fair on my 2 year old daughter.
Hope everyone is doing okay?
Donna xx
hi bunny3 , hope you are starting to feel a little better , welcome to the hell that is tamoxifen , i have beeen on it about 9 weeks now and am still suffering from lead legs , mood swings and awful sleep pattern, unfortunatly the s e`s of tamoxifen can be awful and i guess its really just a waiting game to see if they settle , fingers crossed eh ? my oh has been a saint because at times i am quite volatile and must be unbearable but bless him he says nothing and lets me get over it , be patient with yourself , you have had one heck of a journey , i know its hard but we have just got to try and cope , the benefits must surely outweigh the downside - thats what i keep telling myself when the urge to stop taking them enters my head ,hope you feel better real soon xxx
I’ve heard a lot of people say that they get very achey on those extra drugs, if that’s any consolation? But I’d have a word with your bc nurse if you can?
Bits of panic and feeling really tense sound very ‘normal’ to me. It’s a heck of a thing we’re going through, especially with a little one to look after and think about too.
Have a virtual cup of tea…it’s not much consolation, I know…
Ann x
bunny3, I think this is par the course. You have had a lot of treatment, and I think this is normal really. I have the tense neck, pain in my shoulders, headache caused by this, achey lead legs, and I only had WLE and rads. Today I am feeling a bit better as I had a great nights sleep, but I know I will feel tired and listless again soon, and the aching legs will stop me walking etc. I am 2 months post rads and someone toldme that it takes about a year to feel normal again. Cant come too soon for me. I know you may worry about it “coming back” but please don’t, easier said than done I know. You have done all you can, and we are all such brave women. Cyber hugs to you, hope you feel better soon. chris xx
Some people find that counselling can help a lot, to get the cancer into perspective. For so many months it’s been priority number 1, but once active treatment draws to an end we need to reshuffle our lives to concentrate on other things, while not forgetting about cancer completely as I don’t think any of us can. I find having Herceptin keeps it more in my mind that I’d like, but gives a bit of reassurance at the same time, in a funny kind of way.
There’s an excellent article by Dr Peter Harvey, I’m sure someone will come along with the link to it, or you can google “Peter Harvey” and “counselling” and “cancer” and you’ll find it. I’ve found it really helpful as the article really hits the nub of the issue for me.
If you have a support centre linked to your hospital, or a Haven or similar, you may be able to get counselling to help you get past this.