Saw Onco consultant yesterday; good and bad news. Bad news neck lynph gland has not decreased, good news it’s not increased either. Wants to keep me on Exemestane and Denosumab injections for another 8 weeks as he feels they haven’t had enough time to make a difference yet (2 injections and 5 weeks of exemestane so far). Having another CT scan before I see him again in early Sept. He is also arranging rads for back pain. OH is still head in sand and thinks everything is going to turn out OK!!!
Hi Nythejan,
It never easy when you get a mixed bag of news because it leaves a lot of uncertainty but sometimes we need to hope that the treatment we are receiving allows us a good while of stability and I really hope that’s what you get for a long time to come.
My husband comes to all my oncologists appointments and knows exactly whats going on but has the ostrich sydrome where he thinks I going to out live him even through he knows whats going on. There are times when we talk and he’s has said to me that it’s his way of dealing with the disease and I have to accept that even through hes knows the outcome isn’t going to be good.
I don’t know where you are with treatments but there are a more options out there and I know we are all diiferent but we have to keep hoping and living to the best of our ability.
take care Nythejan and good luck with your treatment.
Love
Chris xx
my husband has the same ostrich syndrome, chris, he will never accept that my secondaries won’t ever go away . He thinks I,ll be here forever. we have decided not to go into too much detail to our 4 older kids as they are so happy and busy with their lives, I don’t want them worrying about how long I’ve got left. They know my cancer has come back and I have to have treatment sometimes for it. It’s the uncertainty I hate. I’ve Ben stable from dec to last week then was told although bones and lungs stable, 2 mets had grown larger on the liver. Such a shock they’ve grown from hardly anything to nearly 2cm each! Small so my onc says !! I’m starting oral chemo on 7th so worried about that and side effects and what happens if that doesn’t work then what. Sorry to go on just having a bad day. Much love to you all x
Hello, I am playing the waiting game too. I was only diagnosed with my primary in February of this year and as I had 9 infected lymph nodes they did a ct scan which picked up a couple of small lung nodules. My onc said after I had finished my chemo (Fec-t) they would do another scan and if nodukes unchanged then more likely to be scar tissue than cancer spread. I finished the chemo end of June and had my ct scan a couple weeks after that, anyway I have just been given the results which are that the original nodules are unchanged but there are now additional nodules on the outside of my lungs! They are too small to biopsy so another ct scan in 3 months to see if they have changed or not! Am terrified as if this is the cancer spread then its done it whilst I was on chemo and that cant be good! As my radiologist stated it does mean the cancer has behaved aggressively to grow during chemo! I just can’t think what else they could be, they weren’t on the original scan so to my mind they can only be cancer what else could cause them in 6 months!