I’ve had 2, the first one was with the main oncologist and she was great. The second was just a week after my first dose, I think they thought I’d have started a week before at least when my appointment came through (there was a delay getting my start date) and then I saw a different bloke who wasn’t helpful at all! I’ve got my 3rd appointment in 2 weeks so just before dose 4. So does that make it the same as you? Xxx
I’m going to write down a few questions like what are the side effects of T, can I have strong painkillers prescribed just I case I can’t handle the bone/muscle pain in just paracetamol and will my hair start to grow back! It hasn’t completely gone, got a fine covering still, although there’s still that chance it will go in the next couple of weeks, just wishful thinking as I’m not cold capping - but what’s left is definitely growing!
Tempting to ask for the main oncologist, but I’m never brave enough!!
Xxx
Hi all, Kim, I spent more time in bed on this cycle, I think it was a mixture of feeling rough and also feeling like I couldn’t be bothered to get up. My next cycle is due on 14th, my arm is still sore, I need to call and sort out the picc line for next week, but I keep putting it off. I’m just really scared of it. My onc appointments have all been booked for 2 days after each cycle so I need to call and get the next one changed. Mechelle, I’ve been a lot lower mentally this time and had a couple of nights at the weekend when I couldn’t stop crying and feeling like I didn’t want to do it any more. Love to all. Sissy xx
Claire, it’s really hard emotionally and physically. I miss being at work so much, I’m hoping to be able to go back to work before and during rads, even if it’s only for a couple of hours a shift. In my head I’ve worked out that if all goes to plan I could be back on 16/05/16.
Does anyone else keep getting what I call ‘the fear?’. Before chemo started I was feeling so positive but now I just keep worrying about everything and worrying that it won’t work! Xx
I had the fear before chemotherapy, but it was more about it coming back. I haven’t been told what the likelihood is, and I’m not going to ask! I’ll always think I’ll be the wrong side of the percentage.
At the moment I’m just living week by week trying to cope with these side effects grateful each day my temperature is normal - I’d never taken my own temperature or my children’s for now!!
I also miss school hugely. Even got jealous that I couldn’t go in today for the after school maths training! I’d usually be involved with the year 6’s doing 1-2-1 after school maths tuition to prepare them for their SATs. And I’m going to be gutted I can’t be there for SATs week, I’m usually a designated reader. You want to be there supporting the kids through the tough times as well as the good times.
I was on the way home the other day and bumped into a family walking home from school and told the lad is be back before he left for High School - he has behaviour issues, but as unruly as he can be, he has a heart of gold and I used to work with him last year. Then further up the road I met another year 6 girl mucking around in her little brothers bike and she called out 'ave you 'ad your ‘air cut?’ !! Bless her, I didn’t let on it was a wig!
I’m not sure if I’ll try and go back during radiotherapy, which hopefully will start in June. It’s an hour to the hospital so it would depend on timing and how tired I get. But I should be allowed to drop in more before starting a phased return.
Started today off quite well, even got showered and dressed, but definitely going downhill now - tired and achey and shaky. Won’t be long before I’m back in the pjs!!
Xxx
Thank you Kim, really helpful.
I hate what this is doing to me. Had 2 chemo now and due 3rd on Monday and due to see my oncolgist on Friday, I have been thru all emotions and feelings and at the moment I really can’t take anymore chemo and just want this removed from my body and life to go back to the way it was. After my first chemo I felt terrible and on more than one day I remember calling my mum as she dont live local to me and was crying and adament I wasn’t going to have anymore sessions, but had my 2nd chemo and totally different how I felt not really any side effects more like my normal self apart from emotional. FElt like my normal self now for 10 days but today really feeling like I’ve had enough dont want treatment monday just want it all over and carry on with my life and be normal. No one really to talk to that understands what I’m going thru. Is this normal or has anyone else felt like this im so confused
It is definitely normal Nathalie!! Are you having FEC followed by T? On Monday you will be half way through - no more of that nasty red stuff after then, no more of the sicky hungover feeling. (Well as far as I’ve heard!) You can do this, you can get through this horrible, sh177y treatment which is ultimately saving our lives. You’ve done 2 - and despite how you’ve been feeling are doing brilliantly, especially coping with young children and not having your mum close.
You’re entitled to feel the way you do - remember that!
Keep posting on here - rant and complain as much as you like!
Take care, lots of love xxx
Nathalie, I’ve felt exactly like that before each cycle and I tell my husband that I’m not going and that I don’t want to do it any more. The thought of doing it three more times fills me with dread, but I’m sure it will come round quickly. Apparently cycles 3 and 4 are the toughest. Xx
Same here Claire! I’m a day behind you, waiting for Mark to administer the next injection when he gets back from the gym, then it’s the last of the antisickness steroids with breakfast. So going by the last 2, I won’t feel sicky so much but I’ll be in for the energy crash and aches for a few days!! Hoping I don’t have meltdown this time too.
I’m starting to get nervous for T too. Been given double the dosage of my steroid to start taking the day before - so I can only imagine what the after steroid crash will be like!! Also concerned about my nails, they’ve started to bruise at the base where the half moon should be - I’m really hoping they don’t get worse!!! Definitely not googling anything - but I do check on the December ladies for a realistic account of T .
Good luck today Cassy, half way! 
Hope everyone else is in the way up and feeling better, and the appointment with your oncologist went well Ellie
Xxx
Haha! We posted at the same time! So pleased it went well xx
Hi Claire, I think we’ve all found this third one tough emotionally, how you are now is how I was feeling last weekend, now a week on from then I’m feeling in a better mindset, though one more week and it’s got to be done all over again, it’s relentless! Have you planned some nice things for your good 7-10 days? I find it helps to have something to look forward to! Xx
Totally with you on that one Claire! Day 6, in bed, can’t be bothered to get up as I’ve no energy to do anything anyway, plus I ache and all I can smell is chemicals!! Not helping that it seems like every mum I know is being treated to a nice meal out somewhere posh (downside of Facebook!) Urgh!
Trying to tell myself I’ll be on the up in a few days!!
Definately ache more this time - plus feels like sunburn to touch my shoulders and upper arms, is no4 going to give us worse pain? Going to have to get the painkillers sorted if that’s the case 
Hope everyone else is doing well in your different stages xxx
Sorry to hear Kim and Claire you are feeling so rubbish, when we are going through the fog we feel so down in every way, and wonder how we are going to make it through to the end, but we will do. You will soon be out the other end and feeling normalise again, I found this time it took 10 days.
I’ve just posted in the ‘surgery’ section about advice on double mastectomy with no reconstruction, not sure if any of you have been through double mastectomy with no reconstruction or know anyone that has, if so it would be great to hear your views.
Big hugs to everyone.
Debbie x
Thanks for posting this Claire, it was really good to watch. I was impressed by how much hair she has left from the cold cap. Next Monday I’ll be starting the T part, feel quite anxious about it it as not sure what to expect?! At least now with the FEC we knew what the SE’s were and that they were manageable. Hope you’re feeling a bit better today xx
Just cried my way through watching that, especially at the end when her boys came in! Happy tears for her mind. She sums it up perfectly. Can’t wait to get there -
3 May can’t come soon enough!!
Thanks for posting Claire. Hope you’re feeling better today. I’m definitely feeling less achey so apart from being emotionally shot to pieces, I’m hoping to be able to function today!
Who is our first T starter? I know some of us aren’t on FEC-T, so I must have a good look through to see where we all are and get an idea of our ending dates. It is good to be at the stage where I am actually thinking end, I know it’s a way off yet, but how great is summer going to be for us all?!
On that optimistic note, hope you all have the best week possible xxx
This is my hair at the moment. There’s a very thin patchy layer. It seems to have stopped falling out and some of what’s left has started to grow. I don’t know whether the T part of it will make what’s left fall out? I’m not really sure what to do about it. My husband thinks I should shave it down to the skin but I’m not sure whether to or not. I’ve tried to wear my wig out a couple of times, but never get out the door with it! I find that it’s a bit itchy. Sissy xx
Sissy, mine is the same, doesn’t seem to be dropping out as much now. Before when I pulled it, it came out easily at the roots, now it doesn’t seem to. What is there is also growing. I’m going to see how it goes after the first T (maybe up to the good week as that seems to be when I get the most hairloss) and if no more has shed then shave what’s there (grade 2?) so any new growth can catch it up. That said, I might loose it all next week!!
I do wear my wig out, but it’s so rare it’s still a shock to see myself in it! Xxx
Wow I know how she feels , just completed my final chemo today, I’m from the November thread but follow all your posts and occasionally post on different threads. Please don’t be scared of the T girls, it’s not too bad, just like Victoria said worst days 2-8 but then after that mostly back to normal, even managed quite a few meals out drinks with friends etc. Hardly had any sickness or nausea, a few aches and pains manageable with varying degrees of painkillers. But remember your next one brings you 2 thirds of the way there and you can do this, believe me if I can anyone can, I’m a true wimp!! Stay strong girls xxxxxx