You are nearly there! Xx
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Well done @heya_25 I hope you are feeling okā¦ both physically and mentally xx
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Hi @heya_25 glad youāre feeling good. Where are you based as Iām interested in why they done it as a day case. I had my alnc on Sunday and they made me stay in. Do you have drains?
Mine went really well (touch wood) and apart from some stiffness, pain has been minimal and Iāve been out and about. Radio to go and then all big treatment done 
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@jnra Iām in Oxfordshire. I donāt have drains but I do have a Pico vacuum dressing. I have been told I will have a seroma. Iām really tired although Iāve not slept well the last 2 nights as I normally sleep on my right which is my affected side. I have some discomfort and stiffness, Iām trying to use my arm and have been moving around today. I have radiotherapy to go too and hormone and other tablets. Hope you recover well
Oh interesting, Iāve just googled it. Wish I had one of those. My drain is huge, like a bottle of milk!!!
Iām also having tamoxifen and Abemaciclib, bit nervous about symptoms but Iām just going to be optimistic and hope for the best!
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Iām starting anastrazole soon and abemaciclib in September after radiotherapy. Iām nervous about the symptoms too.
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@jnra How are you feeling under your arm and in that general area? Iām numb still a couple of days later so have more pain in my chest area. I was expecting it to be the other way round.
hey @heya_25 I donāt have any pain really. I donāt know if itās because I have my slnb so itās numb anyway but itās fine unless I do the exercises and then feel a pinch and really stiff. Also, I have that weird burning sensation on my skin sometimes when I touch it but itās not too bad
When I had my mastectomy itās was definitely more pain in the chest are but considering what we have had done, the pain isnāt too bad.
Iāve been drinking lots of water and going for walks so not sure if thatās helping. How are you feeling, are you on heavy painkillers? They gave my codeine but I havenāt needed themā¦
Thanks @jnra . The pain isnāt too bad, they gave me codeine as well but so far I havenāt needed it. I think the bone pain from filgrastim injections was worse! Iām planning to try a short walk today, need to keep moving!
@jnra @heya_25 well done to you both for getting through your surgeries. They sound pretty major compared with my lumpectomy and sentinel node removal.
Iāve started Letrozole already (because of high risk of return) and itās not too bad. My legs are a bit creaky but maybe no more than before, I was post menopausal and any hot flushes are much more manageable than what drove me onto HRT before.
Radiotherapy is next, then zoledronic acid and abemaciclib. I worry about the abema most, but, looking at other peopleās experiences, it seems that most can tolerate quite happily. They reduce your dose very quickly if itās really awful. Fingers crossed we all manage it ok 
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Hi @fimac1
Iām over from the April chemo starters. Iāve been having Docetaxel and Cyclophosphamide. My mastectomy/reconstructed side definately feels tender and sore more so since Iāve been having chemo. It really ramps up the first week, then slowly gets better, but as the rounds have gone on, never completely goes by the next chemo cycleā¦
Iām going to mention again to my oncologist.
Let us know what your says too.
Hey, Iāve not had operation yetā¦.still have that joy to come 
My boob hasnāt been as bad, just my arm so thinking it may be nerve pain/damage that you get with chemo.
Afternoon everyone, hope youāre all good and surviving this heat. I love it but Iām struggling at night 
So I had my alnc on 8 June and all was fine until they took out the drain. It started swelling the next day and is still swollen now under my arm. Feels like a big bulge. Iām convinced itās a seromaā¦ anyadvice from anyone who has had similar? I donāt want it to delay my radiotherapyā¦.
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Iām still having to wear my surgical stockings, so definitely struggling in the heat! I had my surgery on 13th June. I didnāt have a drain but have a negative pressure Pico dressing at the moment. I have some fluid/swelling in my chest which the nurse last Friday said will likely increase. I was very clearly told I will get a seroma and the approach here seems to be your body needs to find a way to drain the fluid, we will drain it if it becomes a problem and we have to but weād rather try not to due to the risk of infection and you will just produce more fluid again.
Hey, yes I read that online. Just so annoying, itās literally one thing after another 
just hope it goes soonā¦for both of us!!!
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Hi everyone
I saw this recommended by a few people, and I canāt remember if anyone has mentioned it on here, but hereās the link to the moving forward course. I know many of you have a little way to go before hospital treatments end, but thereās nearly a 3 month wait.
I donāt start 3 weeks of radiotherapy until the end of July, so hoping to be finished with regular hospital appointments by 18th September, when my course starts.
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Hi everyone, been a while since I posted on the forum.
Got my last chemo this Wednesday with Therapeutic Mammoplasty on both breast due 14th August. When I was with the surgeon last week, she mentioned that I may get more chemo after my operation which is the first I had heard of this. I know I am due radio therapy plus more Phesgo. Iām HER2+, with Invasive Ductal carcinoma in one breast annd associated lymph nodes and pre-cancer in other breast. Iāve already had 4xEC, 1xDocetaxil and will have had 9xPaclitaxil. Anyone else had chemo after their operation?
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Hi @fimac1
Mine was IDC in one breast and DCIS in the other. I can say āwasā as I had a double mastectomy and reconstruction 12 days ago so the nasty cancerous 
has hopefully all gone!
I had 6 cycles of docetaxol, carboplatin and phesgo. I consented to a total of 18 trastuzumab so understood that following the first 6 cycles Iād need 12 more trastuzumab.
I saw the breast surgeon and oncologist around the 5th cycle to discuss surgical options and how I was tolerating the treatment. The oncologist informed me at this appointment that if any residual cancer found Iād need more chemo (14 cycles of Kadcycla). Iād read on the āHER-2 need some buddiesā thread of other women needing further treatment so it wasnāt a surprise to
me, but until that consultation, there had been no mention of it to me.
I had expressed at my initial consultation with the surgeon, when asked if I had any further questions I said that what Iād been told at that appointment was enough. I said that I wanted to be told the information as the need arose. I didnāt want to be overloaded and overwhelmed. I needed some control. Had I been told early on that more chemo after surgery was a possibility, what I know was already a long treatment path may have felt insurmountable. I knew to write off all of 2025 as my annus horribilis. When I look back, my routine mammogram which picked up an anomaly was mid October. The 3 months from that day of investigations, the ever changing news then starting treatment dragged by slowly in comparison to the last 6 months of treatment. That time has flown by so fast.
This week Iām expecting a call to be invited to see surgeon for the pathology results. Whilst the thought of more chemo isnāt a particularly joyous one, especially as it will extend this aspect of treatment by another couple of months, if thatās what I need to do then Iāll get on with it. Whatās another few more months if it gives me a greater chance of a longer life. Iām grateful thereās more tools in the bag to try to make me good again!
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Hi @mrsjelly
Thanks for responding. Yeah, maybe itās just withholding some info as damage limitation. It was just a bit of a surprise as it had never been mentioned. When I asked the oncologist about radiotherapy and when it would start she just said āletās get chemo and the operation done before we look at the next stageā.
I feel a bit better that others havenāt been told 100% everything at first appointments. Hope you are healing well
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