@demimiray It’s so hard not to let thoughts run away with themselves isn’t it? I’m paranoid about the next MRI I’m meant to have in April and what if they find something. I was originally told I had one tumour on my right side but during the MRI in October (I was diagnosed in September after finding a lump in the shower in August) they saw something suspicious on my left side that they’d monitor again in 6 months.
After that, I had a lumpectomy on the (only at that time!)right tumour in November but didn’t get clear margins so had a re-excision in December during which they got the clear margins on my right side but found two more small tumours. My lymph node had shown as clear in November and at that stage I was meant to just have radiotherapy but it quickly progressed to chemo first after the second op. Everything happened very rapidly! As a result I’m left thinking what’s next even when I’m told things are going well…
I think not working and doing something that gave you peace today was a good idea - I hope that helped x
Hope everyone had a better day than me … physically ok but feeling quite down. I have put weight on thanks to chemotherapy and comfort eating and I know I should exercise but don’t feel like it and cycle two is looming! Tomorrow is another day I suppose! X
Hi - I’m on dose dense EC every 2 weeks for 4 cycles then dose dense Paclitaxol every 2 weeks for 4 sessions because of the aggressive cancer I have. Anyway I had the first dose and then the second dose after 2 weeks. Getting ready for 3rd fortnightly dose and my neutrophils were too low at 0.92. The thing is mine were low before I started at 1.87. So my question is why were they low to start? Now that I’ve missed a fortnightly cycle I’m worrying as I’ve been give dose dense for a reason. So what if this continues to happen and I revert to 3 weekly infusions. Is there nothing they can do to boost them - I am already having 5 daily G-CSF infections in between sessions. Hope everyone is ok Sxx
Having to wait and ‘monitor’ something that you know is suspicious sounds so stressful I can barely handle a few weeks, nevermind months! My heart goes out to you, especially with all the ‘rug-pulls’ and changes.
So far I have been lucky that we haven’t had to change what has been planned. I am on a knife edge of stress waiting to see what will change though and how. Bah!
Yesterday ended well though, spent a couple of hours on a call with friends while doing some lego in the background. Just chatting rubbish, but was a good distraction.
About to start round two.. nearly got sent home as my liver results for ALT were too high. Luckily I can get going with a reduced dose . Has anyone else had this ? Xx
I’ve not been too bad last couple of days! I’ve got a cardiology consult on Monday because of my heart rate issues - it’s been fine this week but I’m happy to have a bit more monitoring. I don’t want long-term heart issues if I can avoid it!
I want to keep doing dose dense if I can but I suppose that depends what the cardiologist thinks, also how bloods go Monday.
Oh no ! What reaction did you get ? That must be really annoying to say the least. There do seem to be a variety of drugs available so I hope they can find something! Wishing you luck
Thank you. I reacted this time with severe flushing, racing heart, itching all over followed by acute heartburn. They turned off infusion having given me Hydrocortisone, and sent me home after a while. I now have to wait until the 13th to see the oncologist, to see what they plan to treat me with. Am finding the wait anxiety provoking….what are all those mean cancer cells on the loose doing?!!
Oh no , don’t know which is the worst of those awful effects! I have to have Esomeprazole for reflux anyway so at least that helps a bit with the chemotherapy. Let’s hope that they have something better for you up their sleeves but the waiting and uncertainty must be stressful. If my infusion had been cancelled yesterday there would have been tears. I wouldn’t worry too much ( easy to say) about any potential floating c cells as you might not have any and if you have then they will already have had a taste of chemo and hopefully will get what’s coming to them before long. Wishing you luck x
I can barely handle a few weeks, nevermind months! My heart goes out to you, especially with all the ‘rug-pulls’ and changes.