Thank you - I will monitor how I feel and try doing them at night. Yes have to keep thinking positively. Sxx
The not knowing is terrifying .. I just hope that it isnāt as bad as we imagine.
Hi start next week , already suffer from anxiety so Iām extremely anxious - ecd 3 weekly for 6 sessions
I am so petrified, any advice or anything at all welcome
Have already had my surgeries
Thanks - picc line is now in and other than hassles around wearing a waterproof sleeve for showering itās not as cumbersome as Iād thought it would be. I have 8 fortnightly cycles of chemo so perhaps not long enough for needing a portā¦?
Hello! I totally understand as thatās how felt last week before I started on Wednesday. My best tip is to take everything day by day (or even hourly) as it can be quite overwhelming to deal with at first, and Iām learning quickly how not to worry you will get all of the side effects just because someone else does. I have been so scared of starting chemo but itās almost a relief to be underway and the care is excellent. Itās a lot though after operations too isnāt it?
I was thrown into a panic around midnight as I woke from a nap really warm and my temperature was showing as 38.1. I checked a few times and the lowest it went was 37.9. I rang the helpline and was told I needed to go to A&E so spent 4 hours there overnight having blood! Luckily they said thereās no sign of an infection and think Iāve just picked up a virus and all of the chemo side effects are throwing how Iām feeling out. I explained the worst side affects so far (which started on day 3) are the constant stabbing/electric shock feelings all over my body, the feeling of my scalp being tight and like itās in a vice (hair related Iām sure!) and the exhaustion. Every day there is something new at the moment!
Let us know how you get on, Iām finding reading posts on here a great support
x
I am terrified too and tend to overthink and catastrophise everything. I had my first infusion last Tuesday. Iām not a brave girl. We can buddy up if you like or you can steer well clear of me ![]()
I think buddying up with others is a great idea! Iām not brave at all, this is literally scaring me daily but am trying to stay positive
How are you today? x
Thanks girls I go to have my picc in tomorrow and I think the thought of it starting has really set me off
This wasnāt really on cards to begin with but due to one pesky lymph node it became an option
So as much as I donāt want it , I just want it over and done with
I had a picc inserted last Monday and it was ok. I cried when I arrived and the staff were really kind and patient with me. The nurse who did the procedure was really friendly and she and my oh kept me distracted. She did have to try twice but once she got the right place, it was done in seconds. I donāt like it, it makes me go ewww ewww ewww and I havenāt showered for a week. Iāve been washing at the bathroom basin with a flannel. I truly am a definite wuss.
I have been so lucky with side effects. Iām hyperaware all the time, scared to move my picc line arm much, scared to touch my hair, but apart from feeling anxious Iāve been ok ![]()
Itās horrible that we are all having to go through this , it feels never ending , but i know the storm wonāt last forever ![]()
![]()
I feel like Iāve done nothing but cry , but feel like Iām getting stronger ![]()
Glad you havenāt had many side effects
Are you are Ecd also ?
Iām 42 with 3 children and still getting use to complete up turn of my life. Iāve got TNBC and I start Paclitaxol weekly on Thursday for 12 weeks, then move onto EC/Red devil. I had my picc line last week and although I found having it put in fine I had some heart palpitations so they had to pull it back a bit and now Iām suffering with heartburn. I got diagnosed end of Nov so desperate to get started finally.
I donāt think we will ever get used to it , Iām still coming to terms with it now
Everyone deals with it differently I suppose
@bird25 Iām having 12 x weekly Paclitaxol with Carboplatin every 3 weeks.
@loutnbc I also have TNBC and we are on the same regime except Iām having Bisphosphonates added in too. I think because of my advanced age.