Oncewild, I’ve popped over from June thread … Good your not having se’s…so yes do it! Have fun and continue to be ‘wild’. Xxx
With the hair loss, I was like you, hated to see it coming out, but then I hated myself in the mirror. I was bald at the back and kept a little bit on the top. Didn’t want to shave it off. Covered up all the time with wigs and scarfs. I looked poorly when I saw my half covered head!! Ironic.
But yesterday…i did it. I shaved it all off and it felt great! I looked great. Its not half as bad as your thinking it will be. I wish I had done it sooner now. But each to your own. Its a big thing to accept.
Stay strong and what you can do…do. Enjoy your holiday. Xx
Oncewild surely there can be no doubt get on that zip wire ? as long as it is safe. It’s amazing how the simple things in life become so much more special at times like these and playing frisbee on the beach on a beautiful day sounds wonderful. Please don’t worry about the hair, I have to say with the heat we’ve had I’ve appreciated not having any and find it a lot cooler. I tend to cover up if I’m out in the sun but the rest of the time I do go without. More so because I find it more comfortable in this heat. My 20 yr son prefers it properly bald to the ‘plucked chicken’ look as he phrased it when it was falling out. Get on that zip wire before the weather changes, let me know how it goes xx
Do the zip wire!! Absolutely! Do it for all of us who can’t even face getting out if bed today ? And I agree with the hair thing. I shaved mine short first then all off. Much prefer the look of it all gone for some reason!
Off to feel bleurgh a bit longer now…xx
Do it!!! Oncewild, always wild ; ))
What a fab opportunity, chemotherapy or no chemotherapy, it will be awesome!
ooh, and on the hair thing, having cut my long hair into a pixie last week and now wishing I’d done it years ago, I’m now believing I’ll feel the same about the shave when it has to happen next week. The anticipation is always worse than the event…which can be surprisingly liberating!
And thanks Taran and Nellie for your encouragement yesterday when I was feeling pretty down with the abdominal pains. I’m much better today and hope that you too, Taran are feeling less nauseous every day. I think my pains were due to the Senna tablets I took to try to avoid constipation!! That’ll teach me to try to pre-empt problems!
Hi everyone again! I’m due my first gcsf injection today and was wondering if anyone had any tips on what’s the best time to do it, the best position (I’m quite slim and don’t have much stomach fat to grab). I’m not a wuss generally but have never, ever had to stab myself in the stomach with a needle before, so I’m feeling a bit apprehensive! Any advice would be very welcome. Thanks ladies. Pookie x
Hi Pookie, glad to hear the pains are better. At least you know for next time that you don’t need quite so much senna!! For the injection I would try sitting as that should give you the most area to grab hold of if you are slim. And try not to be too anxious doing it as it’s better to just use one smooth swift motion than lots of little ones. As for time, I have to do mine 24 hours after chemo so I never really get much choice in it. But haven’t had any problems with them being done about 2pm both times. If you are having them for a number of days (I only have 1) I would suggest picking a time you will roughly be able to do them all at. Doesn’t need to be exactly the same time each day, but if you can keep them around the same sort of time that might be better for you. Good luck xx
Sue, you are a star for posting all this helpful information.
Personally, I prefer liquidising ginger root rather than buying commercial ginger drinks, which tend to be loaded with sugar. I liquidised a 2 inch piece of ginger root in a little water, then strained it to get rid of the fibres and kept it in the fridge, adding a little to water, tea or food. I had two days of feeling nauseous but I think the ginger helped.
I hope all of you have a good SE-free day!
Thanks Taran : ) Lucky you only having to have one injection! I’ve got six and have now freaked myself out by reading all the horrendous side effects…including more flipping nausea, thought I’d finished with that and I don’t have any more antinausea drugs after today : (
Hope you’re managing ok with your four little ones off school, I’m guessing the house isn’t quite as calm as before! My two have had a few sleepovers with friends and relatives which has helped keep me calm and them entertained, but they’re here at the moment wreaking havoc! I love having them around though and hate to be without them, I feel a bit useless at the moment and can’t wait to get back to being normal Mummy again as soon as possible!
pookie xxx
Hi Pookie I didn’t get any nausea with the injections. Like you I have 7 to do, I’m quite slim so sit down and get a little roll of fat and push it in. I swap sides each day and this time I take a ibuprofen after. On my first round of injections I did all right until the last one when I got a few bone aches so this time round I am trying to pre empt and so take a tab. I tend to do it in the evening so that if I do get any side effects it doesn’t ruin my day but day 5 this round and nothing so far. It is a case of grit your teeth but far better than getting an infection. Xx
Thanks so much Bella and Sue. So glad for you that you didn’t get any nausea Bella, fingers crossed I’ll be the same. I’m going to grit my teeth and do it this afternoon when husband is back…just in case!
thanks again ladies, what would I do without you all xx
Well I did it! With your encouragement I took to the skies and flew - well down a Welsh slate quarry attached to zip wires at least. It was wonderful and freeing, and fun to do with my big son. Thought of you Taran and hope your bleugh stage is passing. My hubby thought the rushing wind might blow off what remains of my barnet but I still have a light covering. Had to hoover the pillows this morning which was pretty gross but as my hubby bravely ignored my wailing to clip it to just 2cm yesterday it could have been worse. Going to have to do a massive cleanup of the holiday cottage or they will definitely think the dog has been rolling all over the house.
Hope you’re all doing well x
Well done Once Wild. That’s brilliant! Loved reading that xx
Well done Oncewild I’m really pleased you did it I bet it was a fabulous feeling. Let the hair go and change your name to Stillwild ?. I hope everyone is doing ok and had a good weekend. Pookie I hope the injections are going ok. Taran I hope your out the other side now and can enjoy some holiday time with the little uns. Here’s to more SE free days xx
<li-spoiler>Well, what a difference a week makes. From having my head in a bucket to scoffing M&S apple pie and ice cream. ?. I hope all you ladies with nausea problems are feeling better by the day. <br>I know I’m immunosupressed this week but have been unable to keep away from potential sources of infection. Took my elderly dad to his eye clinic appointment and although I didn’t sit with him like I would normally do, I did take him up to the desk etc. It’s my parents 68th anniversary tomorrow so I’ll be taking them to a restaurant. Also, I have seen my grandchildren although didn’t attend Flo’s last day presentation at pre school in case I picked up any bugs from the little angels.<br>My scalp has started to tingle so I think the great shedding will begin soon. I had my hair cut short in preparation and have liked my new style ?</li-spoiler>
Woohoo, OnceWild! Amazing. Any photos? : )
Bella, the injections are going fine so far, you really helped me over that fear, thank you so much. I had an incredibly bad evening and night on Sun (day 5) where I felt like I had flu, was in the middle of labour and had also just been hit by a truck. I honestly didn’t think I’d make it through til morning! But I did (obviously!) and although yesterday was still pretty rough, I am feeling better today. Hopefully on an upward trend now.
Dianabrew, Apple pie and ice cream! I’m not quite there yet but it’s something to look forward to! Hope you have a lovely time with your parents for their anniversary!
pookie xx
Hi everyone, how are we all doing? I feel like I’ve been out of it for a week but finally starting to feel more normal today so hoping I’m on my way back up now. Hope everyone else is getting by with minimal side effects. xx
Hey Taran, glad you’re feeling better, I’ve been thinking about you. I had a bit of a rough week too but definitely can see improvement now. Hope the next few days are even better xx
Yes definitely Pookie! Really hope we get a good couple of weeks now before the next round!! I feel so bad that I’ve not felt well for one day of the school holidays yet. That was really bad timing to have chemo on the last day of term!! Hoping to start making up for it tomorrow and get some fun things done while I can. Would be great if the weather would play ball too ? xx
Taran and Pookie, think I’m joining you on the hopefully feeling better vibe! Had a pretty rough few days last week after first FEC on Tuesday. Started to feel better from Sunday afternoon onwards. Totally great yesterday. However, went backwards today with tiredness and pretty sore mouth/throat. Phone the Unit who say I need a script for special mouthwash and toothpaste. Unfortunately I left it until they were nearly closing to phone, as kept thinking I didn’t want to make a fuss. So have to wait until tomorrow to collect. Mouth is on fire. I think that will teach me in future to phone quicker if worried about something. Just hope it doesn’t get worse overnight. But at least nausea has more or less gone.
Sue - thanks for posting last week about nauseau and vomitting.
Once wild - so glad you enjoyed your family break in North Wales. You certainly made the most of it.
Hello to everyone else I have omitted. Hope you are all good (and being good!) X