July 2016 starters

Hard to believe the end of chemo is in sight for so many of us. I will (hopefully) be having my last chemo tomorrow. Hope everyone is doing ok. It’s been a rollercoaster to say the least hasn’t it. I’m not sure what normal feels like anymore!! I’ve been in weekly chemo for the last 12 weeks so like Pookie I never quite feel back to normal in between treatments. Next challenge radiotherapy and hormone treatment…hope everyone is coping with various regimes. We did it!!! :))))) xx

Bookworm, good luck for today. I’m sure it will feel weird at the hospital knowing it is your last one. My last chemo is next Tuesday. Mixed feelings about it. On one hand want it over and done with and on the other, really don’t want it as side effects are awful ? Definitely been a rollercoaster, one we wouldn’t want to get on again! But as you say, we did it (or nearly have, the end of this stage is definitely in sight).
x

I had my last chemo today! SO pleased to have two treatments ticked off, and the two big ones too - MX and chemo. Just four more treatments to go - radiotherapy,  6 more Herceptin jabs, 5 more Zometa infusions and Letrozole for ages. Who knows what lies ahead but for now I am just happy to be here.

 

hope you are all managing the SEs ok and enjoying your weekends. 

Oncewild, Suze and Bookworm. Well done on reaching the end of your chemo! I know you have side effects to get through, but must feel like a milestone. I am so pleased for you all. How are you all feeling? Anybody anything nice planned once side effects over? Have you Radiotherapy or surgery still to get?
My last chemo is on Tuesday (fingers crossed). Can’t wait to be able to say chemo is finished, but hard knowing I will be quite unwell for 10 days or so. And the exhaustion never leaves. Wonder how long it takes for taste buds to to normal after chemo?
Mad hatter, is your last chemo this week?

Well girls, that’s my last chemo done yesterday! Just to get the next 7-10 days over with.
I had my Radiotherapy Planning Meeting on Monday. A good 2 hour appointment in between hanging about. Hopefully be commencing in 3 weeks time. Felt a bit rushed into this initially when I first got appointment letter. Felt like saying, give me a break lol. However, glad now I know what’s happening.
Have Appointment for Cardiac Clinic in December.
Got script to start Tamoxifen in 3 weeks time. Also got 2 appointments for January. A 2 hour appoint for new patient clinic and then a 6 hour appointment for the following week to get first Herceptin.
So yes, Bookworm, we are still very much on the BC conveyor belt!
Hugs to everyone. We will get there eventually x

Well done Alex. That’s great news. Ta ra to chemo!!! I’m going for my planning for RT tomorrow. I’ve got to have rads to my neck nodes as well as breast area. Do they tattoo you? Hope SEs bearable following your last chemo. Onwards and upwards xxxx

Bookworm, yes I got 3 tiny tattoos. I can’t even see them without my reading glasses lol. I thought I was to get radiotherapy where I got my nodes removed under my left arm, but apparently not, just where the tumour was on left breast.
Was a bit worried about baring all, but wasn’t as bad as I thought. 3 Radiographers and all chatted away whilst sorting me out. And all female. Was able to keep wig on too, but had scarf on standby just in case.
Good luck for your appointment. x

Blueash, nothing like this was mentioned. I’ll maybe start practising! Just holding your breath for 22 seconds? When do you start Rads?

Onto the next for all of us! I saw Rad cosultant on Tues and have planning appt on 21st prior to 15 treatments. Starting Letrozole soon too. Ongoing Herceptin and Zometa too. It’s certainly not over but am sure the worst is - SO pleased to be finished chemo, especially today as for the past nine weeks I have lost every Friday through the weekly treatment, then felt out of sorts for four or five days. Best of all is having my Hickman line out. It was a godsend for treatment but a hassle to live with. A little trio of scars to join the large red brute that crosses my chest. Hope they all fade with the memories!

 

I am am troubled by an itchy rash on the outer elbows and each calf. It flares up every now and then but has persisted for three weeks. Asked pharmacist for advice and was told to treat the symptoms as it is probably chemo related but I’m not convinced. Minor niggle in the great scheme of things. Anyone else had the same? 

Audrey, so glad to hear you’ve had your last session. Now just the side effects to get over.
I’m 12 days post last chemo and only really starting to feel semi normal now. Had been pretty rough as usual. to be honest thought I would have felt more optimistic, less emotional, but was as difficult as ever. Managed to get out yesterday for a few hours for the first time. Came home exhausted, but do good to get out. Think the effects are definitely accumulative, as I don’t think I have ever felt such exhaustion.
Looking forward to taste buds returning to normal in time for Christmas though. There’s still so much I can’t eat that tastes disgusting.
But enough of the negativity from me! No more chemo! I’m going to treat myself to nice relaxing facial and maybe a pedicure with glitter gel nails in the next week or two. Something to look forward to.
Really hope you get through the next week ok. Hugs x

Hi Everyone, it’s a very quiet board! Hope you’re all doing ok. For those of you who have started rads, how’s it going? I hope that you’re finding it manageable and not too exhausting.

I had my final chemotherapy yesterday, after so many delays I expect I’m the last one on this board to have finished, I think even some on the August board finished before me! But on the plus side, if I do have radiotherapy (consultation in a couple of weeks) at least it’ll be after Christmas and when the kids are back at school. I was dreading having to go in every day during the holidays. So there’s always a silver lining : ))

I’m sending lots of love to everyone here, we’ve had a horrendous few months, but we did it!

Poookie xxxx

Hello everyone 

just checking in - can’t believe it is six weeks since I finished chemo and four week since I started phased return to work! The time has flown. I have my final radio on Monday so the end of hospital visits is in sight. Yay!! 

 

Radiotherapy is a breeze compared to chemo. I have been lucky and had 8.15 slots each day so easy to park and in and out in a flash. Skin is doing really well too. Onward - withdaily Letrozole tablets, three weekly Herceptin jabs and six monthly Zometa infusions - to a brilliant 2017 for all of us! XX

Well done Oncewild and to all in this group - what a rollercoaster we’ve been on and are still on! I had my last radiotherapy yesterday. Can’t believe what this year has put us all through but here is to a happy and healthier 2017. X

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Finished chemo (ecp) on 10/11 and started radio 17/11. Last session on Monday! No picc line for chemo as the thought of it scared me - thankfully the veins lasted! I have the same rash on my elbows abs very sore feet. Comforting to see that this appears ‘nodnsk’ from reading posts here. Radio has been tiring but at the last hurdle! I will be on arimidex fir 5 years but tolerance for coming off is low as my response to progesterone was low anyhoo. Looks like I’ll loose my hair again from this. Anyone else on this tab?

I just wanted to add my best wishes to all of you for a happier and healthier 2017. What a journey we went on last year!

 

I finished radiotherapy on 22nd December and really haven’t had many problems with it, although my skin is getting a bit itchy now and I have to keep exercising my arm to relieve stiffness in the armpit.

 

What I am experiencing is chronic insomnia, which I think must have something to do with taking Anastrozole, as that’s when it started. Has anyone else had this problem?