July 2017

Hi all…
Thought I would join you in Julys group . I’m one chemo down of a course of 6 for FEC-T then radiotherapy.
I’ve decided not to drink alcohol during treatment although I was told I could, in fact tax has alcohol in it! Personal choice for diet and well being but cheers to anyone who fancies a tipple.
So far so good with side effects too touch wood.

Hi ladies,

 

just popping over from the June thread. 

 

Feelthefear, good luck today. We’ll be rooting for you. Just try and get through the first 15 minutes of the cold cap. it gets loads easier! 

 

Ive just sent a request to the FB group too. I started EC on June 26th so feel like I’m going through it at roughly the same time as you guys. Hope that’s ok x

Hi Everyone,

Off for my wig fitting this afternoon!  Not sure I will ever wear one as I think I will prefer the caps and hats you can buy which are quite funky!  I am very nervous, worried about how I will feel. Tomorrow is pre-chemo consult and then the first of my FEC on Friday morning. I think there may be a break down at some point, I have been fine up until now but think its starting to sink in that this is really happening. I will get through it but not looking forward to the journey. xx 

Doggymum had my pre assessment yesterday starting Monday, had my Meltdown last night :frowning: OK now though yeah I think we realised this it when it becomes real, still trying the cold cap although unsure but hair is getting cut tomorrow I spoke to a lovely woman in Maggie centre when I went to book the look food thing and she has been using it hair very thin and had to crop it she said her hair had been really thick but apparently it comes back a bit quicker afterwards x I will definitely try it but not going to beat myself up if it doesn’t work and I stop x

Welcome to everyone else who has joined us x

Hey everyone. Quick update on first session.
I feel over the moon I’m now on the road to the end of all of this. First the cold cap; much much easier than I’d anticipated. I took a 500 paracetamol about an hour beforehand. It was very cold for about 15 minutes, but nowhere near as bad as the brain freeze I used to get after eating too many ice lollies as a child. After that, you more or less forget it’s on. In fact I started to think it had defrosted. I was shocked to find ice in my hair when they took it off.
As for the chemo, no problems at all with that. To be honest, I ate my way through it. I’d taken nuts, seeds, dried fruit and ginger biscuits. Once I’d made my way through those, I sent hubby to costa for a cappuccino and cake. Then I got home and had a decent size meal. They may need to increase my next dose if I continue eating at this rate. ?
I feel absolutely great at the minute. I was pretty much expecting this though. Now I’m just waiting for the drugs to wear off and the side effects to kick in. ??

Hello all. I’m new to the site. I start my first round of chemo on Friday. EC and Taxol and Carboplatin. Have been reading up as much as possible on here to prepare. Had nails done in black shellac (I’m kinda Goth so dark nails are a normal look for me anyway ?) and was planning to get hair cropped short at some point - now thinking might get it done on Thursday? Will be fasting beforehand and after too. Had one session of microblading on my eyebrows, wondering if I’ll get away with having the second or not.
Got a soft toothbrush, alcohol free mouthwash, fruit tea, bottles of water etc on hand. Bag of books, crochet and notebooks to help with boredom, panadol to help with the brain freeze headache, blanket to keep me toasty and loads of small healthy snacks in case I need a nibble. Anything else I might need?? Thanks in advance!
Zara I’m at the Christie in Manchester too.

Well done feal the fear sounds like you have done really well today good on ya one down eh!!

Hey Annie how are you doing now hope you are feeling better now xx

Hi Annie.
A particular hairdresser in boldon (tribeca) was highly recommended me to by numerous people so I had my heart set on having one of his wigs. I’m dreading having to wear one, and I’d heard his was more realistic. Unfortunately, gateshead will only allow you to use your voucher towards their two recommended suppliers.
Bc is like a money pit.
Angela. X

Hi miss a. That’s sounds like a pretty good list to me. However, if chemo is Friday I’d probably give the blading top up a miss as they take a week to heal. X

Hi Louise. How are you feeling after your first chemo? I had the first of my fec yesterday. I felt great last night, then felt like I’d been to a rave for a couple of hours this morning. Forgot to eat with one of the meds. Think that may have been to blame. I’m back on track now, just sooo hungry. Apparently we could feel a bit rotten for a couple of days once the steriods stop.
I’m ER+ and her2 negative. 7 nodes out of 26 involved. Grade 2. Mastectomy and lymph removal was may 2. X

Yeah, I was awake from 3am last night. That’s probably got something to do with why we feel lightheaded. I don’t start the injections till tomorrow. My hubby forgot to put them in the fridge last night. ? Apparently they’re very very expensive and now mine need to be replaced. He’s a senior microbiologist so knew better. He’s so embarrassed. I think he also had chemo brain yesterday after sitting with me for five hours bless him. X

AliOG I too started FEC on the 26th June so have joined this group as a newbie.
How do I look for the forum group on facebook?
All new and daunting…

Hi Annie. My hospital’s suppliers were quite far away from where I live as well. To check them out it would of meant hubby taking another day off work to ferry me around. He’s used most of his holiday’s so far taking me to appointments. So I just thought as I’d heard such good things about the wig supplier near to where we live, it was worth just taking the plunge. He’s charging just under 200. He says he receives discount, which he’ll pass onto me. Really hoping I don’t even need it with using a he cold cap. ?
Here I am wide awake before 5am again. Hoping it’s just the steriods as they finish today. X

Morning ladies. I have to start the white blood cell/ marrow booster injections today. Is there a best time of day to take them? Or just whenever you build up the courage? X

MissenQuinn the Facebook group is Breast Cancer Care July 2017 Chemo starters

Feelthefear I do the injections at about 6 in the evening. Think they said that’s best because of back ache and soon to go to bed.?
Actually my daughter does them for me as she’s a nurse. ?

That’s perfect Carole.
Hubby gets home from work about six so he can do it. X

Also, I’m wondering if everyone is continuing with the anti sickness meds? I know I’m only on day three
but haven’t suffered any nausea. I took two of the three tablets I’d been given yesterday. I’m now constipated. My chemo nurse says it’s the sickness meds that do this. I’m wondering whether it’s worth risking seeing how I go without them. Is everyone else planning on taking the whole course? I’ve been given a week’s worth. X

Feelthefear I had 3 days worth of Ondansetron. No sickness but I’ve had the worst constipation of my life. Day 7 today and just getting over it. Will have to do something different next cycle as I can’t go through that again.