Ftf 
???glad they have good treatment plan in place for you, it sounds like they’ve seen this before so know exactly what to smack it in the goodies with ?:male_sign:?:male_sign:?:male_sign:???don’t forget you’ve a bag of ???from us Bccf girlies too to help blast the blighter out of you darling ???
shi xx
Thanks ladies. ???
Your messages of support really do mean a lot to me. Xxx
P.s.
Carole, thanks so much for the name of that surgeon. I’ve been in touch with him via email and he’s given me the names of two top surgeons closer to me in the north who he thinks would be prepared to operate.
Xxx
Angela hi how are you doing xx hope you are enjoying the lovely sunny weather we have had the rain is here but all good as long as the sun comes out again tomorrow ??? having Ella cuddles today
Tatanya hope you are managing your new drugs and they are ok in terms of SE are you enjoying the lovely summer too, its been fab l am still in work limbo land unfortunately they can offer an alternative post so looks like redundancy is on cards my gp and counsellor at maggies who has been fab says i should just stay on sick leave till they offer it as its unfair on me to phase me into work to then have nothing at the end of it, i think they have known this longer than they let in as when i was at meeting may about return the told me to stay off longer as it was quite heavy due to shortage of staff i think they have been hoping the board would review it so unfortunately for me still no job thank god i was entitled to some esa as my savings have dwindled
Carole kimi how you doing x
Hi Michelle.
I’m doing well. Loving the sunshine. Grandson slept last night and had me up before 5am so slightly knackered but worth it. ?
Liver biopsy Wednesday to see if the receptors have changed. Can’t wait to get it out of the way. Oncologist appointment Friday at 9am then me and hubby are driving to west Auckland to a spar for a couple of days. It’s nothing fancy, a cheapy really, we’ve been a good few times before and it’s just nice to get away.
Really hoping I can swim by the weekend ?
Sounds like you’re still having a nightmare with work. Nothing is ever straight forward is it.
I’d be off for as long as possible if I were you. The less stress we have to encounter the absolute better.
Hopefully you’ll be able to continue claiming the esa.
It costs a fortune cancer. Instead of me going back to work this year as planned it now seems hubby will have to keep supporting me indefinitely. He obviously doesn’t mind, but trying to live on one wage with all of the expenses that cancer brings is a nightmare. ?
Hope everyone else is doing well. Xxx
Ah glad you enjoyed the baby sitting i know what you mean about it tiring you out but its worth it isn’t it bet you will be glad to get wed out the way i never realised the receptors could change? Thst is really important in terms of you getting the right drugs the money situation isn’t great and the prospect of being unemployed isn’t ine i would have thought this time last yesr i would be in but health is def more of a priority for me now i definitely don’t want the stress as you say, i def think it was probably a contributing factor for me i think greif for my dad has slowed my recovery significantly for me as i never dealt with it at the time needed to get head down and in with treatment i have had to engage in counselling because of it all, on a nervous edge tonight missed my call from genetics my results are back ???
Good luck for wed xxxx
Carole why don’t you try and get some help maybe tax credits to bump up your hubby’s pay or maybe you could get esa if you are struggling i the 20hours i was devastated about my job made me feel really inadequate as i loved the job i did as it was very rewarding and physically i could manage it, i had a previous neck injury back in 2005 which resulted in cervical fusion spinal surgery which of course gives me a lot if pain as rhe years have rolled on coupled with some post treatment stuff im just physically not up to a physical demanding job which is what the are offering!!! So for now im going to have to sit it out and wait for redundancy carole then look for something part time yes this cancer business has turned out to be bloody expensive!!
Thank you for the message im currently a bag if nerves missed a call from the genetics late afternoon when at shops going to call me tomorrow think my results are back ???
Morning ladies.
Michelle, hoping you get the answers you want from genetics. I was told the same as Carole. Probably a genetic gene for cancer somewhere but there isn’t a test for it yet.
I’m going to have genetic/ dna testing on this biopsy so I’ll be curious to find out what comes from that. They can pin point drugs to match you cancer variants now with this test.
I hope you can figure a way to stop working now Carole. Your boss sounds like an ***. You have enough on your plate without work stress.
I can’t belive that at 44 I don’t think anyone will want to employ me now either. ?
It’s a lot to take in. Other people don’t understand what an absolute machine I am and that I’ll be around for a long time yet. ?
They just hear secondary cancer and think ‘oh, her number must be up’
Maybe I’ll have to go back to working for myself. I used to write newsletters and press releases for charities and small businesses. That could be an option.
I wish I didn’t have to worry about it, but unless we win the lottery anytime soon I’ll have to sort something out.
I hope your diep prep goes well Carole. Mine couldn’t of turned out any worse. Ha. ?
Apparently there are a handful of surgeons who will consider recon for secondary ladies if you’ve been stable for a long time. ???
Let me know how you get on Michelle.
Xxxx
Haha, you’re not rubbing it in Carole, it just is what it is!! You should still be able to talk about yours.
And it’s absolutely disgraceful that the government decided to change the goalposts on pensions. ?
Can I join the grouse about pensions? I’m 64, but I have to wait till I’m 66 to get my pension. Hubby is 70 and has been drawing his for 5 years already. I worked just as many years as him, so how is that fair? I was pretty cross about it anyway, but now I don’t even think I’ll live long enough to get it at all! Although I’m obviously going to try my best, out of sheer pigheadedness!
Meanwhile my ancient dad with creeping dementia is very grateful to me for looking after his finances, and keeps saying"it’s worth your while because it will all come to you in the end." Well, that’s if there’s any left from the care home fees… and even then, only if I outlive him, otherwise it will all go to my brother in Canada. I should say at this point that the pigheadedness thing runs in the family, so dad will probably be around until he’s at least 104!!
No such luck, Carole! When I started my working life I expected to get my pension at 60. Some years later, they changed it to 65 in the name of equality, but because I was already a certain age they adjusted it pro rata, so it was supposed to be 64 for me. I had several years to adjust to that. But then came the second change of rules, where they are aiming for 67. Again, because of my age I get it phased in gradually. Ha ha. In practice I’ll be 66 and two thirds!
I am lucky because I have quite a good pension from my work and also some savings from when I was freelance. So I’m ok really. But I feel really angry on.behalf of all those other women of my age, who never had the time or opportunity to make up the shortfall and basically got dumped in the you know what. It isn’t right. Least of all for some of our friends on here, who don’t have the choice to go on working anyway, because of the Alien.
Morning Michelle.
We didn’t hear back from you yesterday. Are you okay? Xxx
Hi Angela hi yeah im ok x sorry didn’t post got the call back 6pm!! Braca is negative was really relieved as i really dreaded passing it on to my daughter and possibly Grandaughter however tgey have told me the same as you and Carole, interesting!!! They also will see Holly in about 5 years when she will be in her mid to see if there is any development in the screening process and with her permission tgey will contact her gp to get tge ball rolling for screening at 40 not 50 which is great i think Angela will they screen your daughter earlier??? I don’t know about anyone else it was the fear of passing it on which worried me nit about myself i woukd have dealt with it like i have the bc took it in my stride just couldn’t imagine how guilty i would have felt if my girls were at risk from braca
Thank you bith for thinking of me Angela good luck for the biopsies i know you as you say you are a machine i still remember you sitting on a bucket in a building site bang in the middle of chemo you’ve got this ??? guve it a bit of ??? us Northerners are hard mother - - - - - - - ??? here for you remember ??
Carole Tatanya is stinks about the pension thing I don’t blame you both for feeling cheated my aunt is in same position she was made redundant 6 months ago really struggling to find a decent job with part time hours and should have got her pension Oct so she’s fuming
Me i bloody well hope i can find something too i will look for part time now balance my life out so to speak the alien could still knock on my door at some point so want a happier balanced kut life before it was stress stress and more stress lovely to hear from you Tatanya ?
Mishy, so pleased the test came back negative, you must’ve been so worried! Good luck with finding something part time and getting a good balance in your life. Hugs to all you lovely ladies.xx
That’s great new Michelle. The only reason I was worried was for my daughters. Yes, they’ll get early screening, as will my cousin.
What’s worrying is that we probably do have a gene it’s just that they haven’t found it yet. One of my daughters is in her last year at uni studying genetics. Who knows, maybe she’ll find it for us. ?
I’m not worried about the biopsy. I’m looking forward to finding out the results. No pain, no gain. ??
Xxx
Thanks Tatanya hows things going for you i know you had a change of meds, i know you have had a lot of things to deal with and pleased you have a pension which will make things easier for you and you don’t have to worry about it xx well the suns out after 2 days if cooler weather and rsin, it was definitely needed my garden was dry luckily my back garden in a gravel garden with lots of containers a few small trees it was my border at the back which has suffered the most which is normally a really shady area but thr plants were nit looking their best i love my garden it has kept me sane!!! No holiday for me this year just can’t afford it might go to Seahouses for a night or two xx byr for now ladies speak soon x
Angela i know what you mean my genetics counsellor said just that i think when Holly goes back she will be in hrr mid 30s shes nearly 28 now its just not something you can totally dismiss is it i have drummed it in to her to be aware of any changes i think she will be, im really pleased you are being so positive about everything you have a really great treatment plan there and tge best attitude to get you through it, i hope this sun keeps shining for you as you have your spa day x ? for later ?
Mishy pleased you got the all clear on BRCA. Yes I was more worried for daughter and grandkids. In a way BRCA would have been more straightforward for me. Could have just got second Mx and been done with. Instead we have to wait for new research. My daughter has also been told she can get screening from 40.
Hey all you lovely ladies, which of you have been secretly doing the neutrophils dance for me? Whoever it was, it worked! Last Friday I scored 1.08, so definitely no chemo for me. Today: 5.1, which is higher than before I started! So it’s all systems go for my next dose this Friday. Having been sent home twice in a row, this is really good news!
I don’t know how you guys all cope with the genetics stuff, I haven’t had to worry about as I’ve no kids of my own, only my two lovely stepkids and step grandkids, who can’t possibly inherit this horrible disease from me. I’m sending love and hugs to all of you and your families.
Good news Tatyana
I remember being pleased when chemo could go
ahead ?