You look beautiful!!! What a gorgeous smile made my morning opening that up!!
Ok wow!! Iāll be having a look at your etsy shop for sure!!! I love sunflowers and these are gorgeous xxxx
Hi ladies!! Been reading about all the abemaciclib stuff. Im also on it and im on 100mg. I have to take Loperamide twice a week usually and i know what not to eat now because ive figured out what sets it off (too much dairy, too much fat, spicy food⦠so basically all the nice things lol)
I had a conversation with my oncologist yesterday about how bad the aching is in my feet and she said its a side effect from the Letrozole. Shes changing me to Anastrozole as of tomorrow⦠im bricking it!! Lol. Its another new drug⦠what if this one is worse⦠the usual ya know?
Anyway. Its been lovely to read all your msgs. Sorry again for how long it takes for me to get back to people!! Life seems more hectic now, compared to not being able to do anything properly because of surgery/chemo haha.
Thanks so much for your lovely comment. Came through at just the right time. Ive been feeling a little down. I know i look so much older now and i didnāt think it would bother me this much. Its lovely to hear from you and I hope the new meds work out. Xxxx
I know how you feel, a man mistook me for my sisters mum the other day. Shes 28 and Iām 37. I was horrified. But then i gave my head a wobble and thought āIāll see my son grow upā and thats whatās important. Youāre beautiful. Be kind to yourself please
Aww bless. Its weird how it bothered me more than wearing a bandana. Im also going to give my head a wobble . We are here and stronger
. Ive cheered myself up by booking in to have my nails done for my jollies. She said she can build my big toe nails up no problem so they wonāt look as bad. . Its all about working with what youāve got i suppose
take care lovely lady xx
I would check with your team if wanting gel/acrylic nails as its advised not to for risk of infection, your nails may be affected by the chemo, cracking, brittle, lifting.
Hi thanks for the advice. I finished chemo in October and my nails did lift and fall off but have grown back ok just havenāt reached the top of my toes yet. Ill look into though thankyou
Let me know how the new drug is
I gave myself a drug holiday from Letrozole and was gently reminded at my appt last week , the first 2 years are high risk
So back on the letrozole
Had a scare re liver looking dodgy and had to have it scanned BUT ALL GOOD
I have to say the dread of last year came flooding back
Hope everyone is well!!
So far the Anastrozole has given me the same side effects I had when first taking the Letrozole. UTI symptoms, diarrhea, nausea and headaches. Its only day 3 of the Anastrozole.
These side effects stopped with the Letrozole about 1-2months in. Itās frustrating for sure. I canāt drink anything other than water because it feels like Iām peeing acid.
Iām feeling a bit sorry for myself tbh my husband said "its to be expected"
I was thoroughly unimpressed lol.
Hope every has had a lovely weekend though!
How long did you have the drug holiday for @idcand49 ? Xxxx
I typed a long reply and I deleted it ! Argh
Before I press the wrong button again ā¦vaginal estrogen for wee pains
GAME CHANGER and safe !
Ask your onco
More tips to come xxx
So ladies I straightened my bit of hair for the first time today and people commented on how nice it looked so thatās a positive!
I went to Italy last weekend for a post treatment European break with a friend. It was very hot and we had a power whilst in the lift (even hotter!) but defo gave me more confidence to travel again.
I am going on an ABCD retreat at the weekend on my own so proud of myself for that.
Abemaciclib still giving me the D sometimes but managed my trip to Italy absolutely fine
Just being nosey but wondering how they were concerned about your liver and wanted to scan it? Was it your blood results?
So happy to hear it was all clear x
Morning
So fab to hear you went away! What fun it must have been
We are meant to get cholesterol checked every 6 m if on an AI (you have to remind the GP lol) And the GP rang to say my liver readings had shot up since my last blood test and seemed to be under metabolic stress
It took me back to those horrible days when the pit of your stomach is feeling dread
My onco suggested re running bloods /doing a scan as sadly we are patients that need scans anytime symptoms appear - this also threw me off
But thankfully all good !
It may be meds or lifestyle /recovery still from chemo infection etc
But nothing sinister
Hi everyone, hope all doing ok?
I am on my final cycle of cape so will be finally finishing chemo soon still waiting for radiotherapy appointment, apparently it could be a 3 month wait and then I may have to travel about an hour to get there
Had a week in Spain in June which luckily was when I had my week off Cape it was lovely to get away after so long!
Hope you are all ok with ongoing treatment?
Take care
How do you feel being on the last cycle ?
Must feel like a milestone !
This time last year I took my first steroid tabs to start my chemo the day after
How much has changed !
So lovely to hear you had a cheeky break. It must have felt bliss .
Hope you donāt have too many radio sessions
An hr each way sounds tiring
How are you feeling otherwise x
I am excited to finish but guess I may have the odd feeling of feeling vunerable of not having this safety net anymore! But due 5 days of radio so not quite there yet!
I started IV chemo on 2nd July if I knew I was still going to be on oral chemo a year later I may have run for the hills
You never know how this journey will go, my original plan meanāt I should have completed all treatment in March, but hey ho not to be! I still also have 5 more Zoledronic Acid infusions over 3 years, 2nd one due Sept!
Hope your doing ok, a holiday was well needed went with my two boys and sisterās family
Take care xx
Feeling ok btw, just tired and dry mouth, odd bouts of diarrhea, so not too bad xx
Just wondering if your husband knows my oncologist ⦠itās the standard reply.
Feels mighty weird to think a year ago was the big stuff starting. Just weird and where the hell has that year gone?
14 months on from my breast surgeon referral I finally saw gynaecologist this week. 30 year old trouble free ovarian cysts are to be investigated and either ignored or hysterectomy to happen. More at risk of ovarian cancer now, so I suppose it wasnāt a wasted appointment. Thinking of getting an Industrial Dyson so I can just have a good hoover out might save a whole heap of trouble in the long run
Big hugs to all on our anniversary month. Whoād have thought weād get this far?! Youāve all been true friends when most needed. Thank you xxx
Hi all
Just checked in to see how everyone is doing. Happy anniversary!! What a year, eh?
@caz1970 Iām just starting cycle 5 of cape but I did my radiotherapy- 15 sessions- first.
Itās wonderful to have most of the treatment behind and hopefully none of us will be doing this again.
Iām still adjusting really. My ānew breastā is still swollen so when i donāt pad up my other, original breast, it looks as if Iāve had a mascetomy, just on the wrong side! Iām hoping when i next see my surgeon, she will say itās much better but Iām not sure.
Iām reading another cancer book called The Cancer Survivorās Companion. Itās a good read- some useful coping strategies.
Xx