I do wonder why some have radio before cape and why I am after? Have a planning scan on 26th Aug what does that involve? Hope Cape treating you well.
Xx
Hi @caz1970
My tumour was in my upper inner quadrant and i had no response to chem in the three affected lymph nodes. When i saw the radiologist, he steengthened my fear of recurrence b telling me that cells would have travelled to my mammary glands and i aas high risk of recurrence without radiotherapy. So I think my area of recurrence concern is more local and maybe thats why i had radiotherapy first? I did mention the conversation to my oncologist and she was surprised he was so forthright with me but although i was very troubled at the time, Iām glad he spelt it out for me.
I have felt at times that the surgeon and oncologist do not want to discuss what might happen in the future and their only focus on the current treatment. I wonder if this is the experience of others too? I suppose it might change once Iām not on cape and not having trouble with my implant!!
I didnt mind radiotherapy- they were very matter of fact and cheerful at my hospital. I hope your radiographers are the same and itās an ok experience for you! Xx
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To my fellow July starters- I havenāt written much recently but reading your messages. Which gives me comfort that Iām not alone in this journey. As we are in July 2025, we are all having our one year anniversaryās of starting chemo. What a year it has been, not one I want to repeat or dwell on. I was reading some of the early messagesā¦ how far we have come.
To my fellow TN ladies, I am still on cape, I will be until October. I had 15 sessions of radio after surgery, my boob tumour responded well to chemo and then surgery but it was still in 4 lymph nodes, I had full clearance levels 1&2.
Cape is ok - Iām on 5th cycle. My energy levels are meh but Iām ok. Iām on holiday with my family in Greece. Iām rocking a crazy curly mullet 
which I hate, because itās not me in the mirror- everyone says embrace it- they have no fāing idea but I donāt know what else that they can say to be fair. So I just smile and suck it up.
Keep it up - enjoy the summer, this will be over soon enough. Xxx
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Hey. Everyone
I went on the ABCD retreat at the weekend and it was amazing. Met a bunch of lovely ladies and we did Nordic walking, yoga, head massage and more walking . Treated like princesses all weekend. Fully recommend
I have my appointment. To discuss having my 45 year old ovaries out! Xx
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Hi @bex1 Iām on cycle 5 of cape too. Are you hoping to get to 8? Iāve been reduced to 60% of my full dose because of hand foot syndrome but no other side effects at the moment besides the tiredness. I think about bed from 6pm onwards.
I hope the holiday is fun. I havenāt ventured further than an hour from my hospitalā¦thatās my next challenge! Xx
Ohhh can you tell me me how the appt goes ?
Iām contemplating is as the injections are see for at least 4 yrs!
I was 49 when all this started and I was told 4 yrs of injections then to come off them and āseeā if my ovaries have retired
Feels like a slog ! Xx
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Will do xx
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Hi all, I wanted some advice please.
I had a right mastectomy and a year on all of a sudden Iāve stared to get a sudden pain in it that absolutely floors me for a couple of minutes each time. I get it a couple times a day but itās worried me slightly ā¦.
Any advice or anyone has the same?
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Flag it with the breast care team @louc, that doesnāt sound right.
I had the same surgery and I genuinely havenāt had a problem, no twinges at all, in fact Iām still quite numb. Have you had your annual/1 year review yet? I had mine last week and was physically examined. I mentioned the numbness and was told that was to be expected.
Seriously, get it checked, ring them tomorrow. It may be normal and have an easy explanation, but donāt wait for it to go in case something is catching on scar tissue or something and causes a bigger drama xx
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Thankyou Iāll get in touch with them x
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Hope its okay sweetie, my money is on scar tissue having āa momentā, but youāll need peace of mind x
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Let us know how you get on.
I sometimes get a tingle pain where the sentinel nodes were taken but did have it reviewed.
Hope you see /spk to your BCN soon x
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Hi hope everyone is doing ok??
So finished Cape mid July so having a bit of a break thank goodness 
but will soon pick up again with onco appoint on 21st Aug, radio planning scan on 26th Aug and next zoledrolic acid IV on 16th Sept, still not sure when my 5 days of radio will be but just want this over with now 
I finished IV chemo in Nov 24 so canāt really believe I am still waiting for radiotherapy!!
What a long journey, but hope you are all coping ok with any ongoing treatment 
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Morning
Sorry to hear youāre still waiting for radio.
I completed mine mid Nov (!).
After 3 weeks off being btw Jobs & a cheeky trip to Portugal Iām back to work in a new place.
Itās been very busy and an information overload but gosh itās done me a world of good. I forced myself to do a bit of shopping and really pleased I am āscrubbingā up well. I think I was becoming complacent in life esp after my diagnosis.
Iām unsure how I feel about my new boss - someone described him as Marmite. And I love marmite so letās see 
Ref treatment im meant to be offered Ribociclib now itās been NICE approved but not sure when that approval kicks in. My year is up mid Nov in order to take it.
I just want as much armoury as possible against a distance reoccurrence.
Iām still having my monthly ovary suppression and will plead to move to a 3 monthly to sync with my next Zometa infusion in Nov.
The trips to the chemo unit are exhausting and much trickier with a new job.
Think someone here is chatting ref ovaries out ā¦ I would love to know more.
I also get reconstruction for my lumpectomy and more details to follow in Oct.
Think I mentioned the new surgeon I saw was surprised I had it- cancer was 3.2cm and DCIS 3.3cm! No one told me this and I do feel slightly annoyed as I may have pushed for a SMX.
Anyways we are where we are.
Anyone holidaying??
My daughter gets her a levels today !!!
Next week is my sons GCSEs
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Love your post about scrubbing up taking stock of making the best of our current versions. Can I put in a request for some eyebrows? Might improve my look they come and go so often!
Donāt be too disappointed if the Zoladex stays monthly, Iād pleaded to make the monthly harpoon quarterly, but the pharmaceutical company does not recommend it 3 monthly for breast cancer. Prostate cancer patients can but not breast cancer is what my nurse showed me on screen. I donāt know why but there must be a reason.
Hope your daughter is happy with her results 
x
I thought it was just me re the brows! Iāve had to restart growth serums (castor oil)
Ahh re the 3 m shot. Now I know why my onco wasnāt too keen. I was umming about ovary removal but keep having panics the meno symptoms will be worse & no going back.
Daughter is v pleased. She got into the Uni of Birmingham. And itās only 2 hrs from us. So a win!
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Thatās great news about your daughter 
dead chuffed for you xx
Iāve only about 15 months of the Zoladex to go, but Iām waiting on gynaecologist meeting this week on ovarian cysts Iāve had half a lifetime to see if weāre going hysterectomy or not. Honestly I hope not, if it aināt broke and all thatā¦ 15 months takes me to 56 and onco happy Iād have naturally menopaused by then. This month is just 1 year since my last period during chemo, so Iām not looking for an ovary removal unless its to reduce cancer spread risk.
The hair situation, actually on whole of body, is on a chemo style cycle - hair on head growing great, but rest is a bit Taxol on and off. Donāt misunderstand me, Iām happy with the body hair situ, not looking for armpit hair to be rampaging down my sides anytime, my legs are a bit sparse too but the eyebrows and eyelashes make for an irregular make up appearance 
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I just noticed tiny hairs on my big toes !
Argh
Hope you donāt need more surgery
The only one I want is to make my boobs nicer looking
The lumpectomy / radio has deformed my breast and I feel so self conscious you can tell itās tiny compared to my left.
I will find out more in Oct
X
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Those pesky toes hairs!
Hopefully they will give you symmetry with surgery, feeling right is half the battle to moving on.
In light of your scrubbing up well post, Iām reviewing my cosmetics situation. Iāve gone from blonde hair to a dark dirty rat colouring and my old make up colours donāt look so good, so having a play with ones I wouldnāt have considered before. Hair currently standing up like a bog brush, so I need as much help as I can get. 
Saw Gyno yesterday who wants to proceed with hysterectomy, nothing urgent, but he feels it will be good for prevention. Heāll see me again in new year and weāll take it from there.
Iām seeing breast surgeon week after next for second mastectomy discussion and thatās my priority surgery to move on. My hand altered, fits like a glove, half underwired 38gg/ half flat bras are on their last legs, so a time frame on the surgery would be useful
Canāt quite believe how fast this year is going, nearly September 
xx
I canāt believe we are nearing Sep too!
How did that happen?
As for your cosmetic revamp I would defo hit a dep store for a free makeover!
I went to Selfridges (I had a voucher - Iām more of a John Lewis/ M&S lady ) and spent silly money via the voucher on a Victoria Beckham eyeliner
Itās lush!
Re post cancer news, Iāve just been consented for RIBOCICLIB
Total last min call from my onco with my running to clinic for an adhoc appt
I start after my holiday and seems there is a lot of ECGās & blood work at the beginning
Wasnāt prepared for that!
But I keep thinking how lucky I am to still qualify and had my diagnosis been a year later this would have always been part of the plan (or if I had had private last year, it was prescribed from Nov)
Anyways if I donāt get on with it, I will ask for a doce drop
Will cross that bridge if it comes
Re 2nd mastectomy - is this preventive ? Itās v common in the USA where Iām originally from but no so much here
Anyways off to collect GCSEās soon
Really need this holiday ! Xx