Thank you for the tip! I shall
Make enquiries 
Just had my second of 4x EC and so far side effects have been same as first. Completely poleaxed with tiredness and then spending a lot of time in the bathroom! In some ways the second round side effects have at least been expected and I know that I will come out of this bubble by next week. The meds I’ve had for nausea have so far worked so I’d definitely ask for a review on yours. We are all so different in our reactions, so one size can’t possibly fit all in the meds department. I’m trying to look on the positive side in that I’ve had 2 out of the 4 lots of chemo. I have a lengthy programme after EC but I’m knocking off the stages bit by bit.
Keep going, doing your thing, whatever that thing is that gets you through and look forward to not being July Starters but new life starters. Good luck everyone.
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Love this! x
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Thanks for sharing! I totally agree, next one means I’m 50% done with the EC 
Then just 4 sessions of docetaxel and 18 sessions of herceptin and perjeta with a mastectomy somewhere in the middle. Is your treatment plan similar?!
I’m hoping to have some normality by this time next year, and starting to think about a holiday to celebrate.
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Morning all , had my 2nd of 3 EC yesterday. Feel ok this morning but a little more nauseous than the first one . Just forced some toast down in the hope that it’ll help . Did the cold cap again but over the last week I think I’ve lost about 50 per cent of my hair already . Got a wig at the ready so am thinking about braving it tomorrow to watch my daughter play football . Losing the hair is the most traumatic but for me …. I was meant to get a pic fitted yesterday but arrived and told I’m now getting a port due to having surgery on both arms which then could cause lymphoedema . Anyone had or having a port ?
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Had my 2nd round of Docetaxel, Carboplatin and Phesgo on Tuesday and, so far, it’s not been nearly as brutal as last time. 
My oncologist rang on Wednesday and suggested I simply take things as they come and manage any side effects with the medication I’ve been given. The most important thing is to contact the hospital helpline straight away if anything doesn’t feel right or if I develop a temperature.
Very tired this time around, and everything tastes or smells wrong. I’m still getting awful stomach cramps, especially at night, but I’m managing those with codeine, so I’m just about coping. I keep telling myself I’m one-third of the way through now, and after the next cycle I’ll be halfway there!
Hope everyone else is coping with this awful heat. I’ve spent a couple of nights on the (too short) sofa as it’s a bit cooler downstairs…
Hi,
I have a port fitted. It made things much easier on my 2nd round last week. When it went in, it did bruise heavily but that has gone down now. I wasn’t given an option. - just told I would be having a port x
Hi @anyakuro
I am a few days ahead of you with the same regime. I had my 2nd round last Thursday.
I’ve found this time, the tiredness and fatigue has been off the scale, much more than last time
I’ve also noticed some vision disturbances- however, I am registered blind so I have a hyper sensitivity to anything eye related and when I get tired my eyes are the first to show.
Keep thinking one third of the way through x
Hi @cfc_jc Thanks for sharing and I’m sorry you’re finding this round so much tougher 
Certainly I’ve heard that the fatigue can really build up with each cycle, so try to be kind to yourself and rest whenever you can.
The vision changes must be especially worrying given your eyesight. I hope it’s just related to the tiredness, but suggest mentioning it to your chemo team (if you haven’t already) just so they can check everything is okay.
You’re right though - one third done is a milestone, and after the next one we’ll be halfway, so that’s something to hold onto. Wishing you a gentler few days ahead 
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I hope everyone is getting on as best you can.
I am 15 days after my first Carboplatin, paclitaxel and immunotherapy treatment and my hair has started shedding drastically today. I did cold cap so I’m hoping that will minimise it. Has anyone used any Daniel Field hair products for cold capping?
I’m going to a wig consultation on Monday as I want something just in case.
My programme has taken a different path. I saw my GP on 10th February and was having a mastectomy on 10th March. I had a 7cm lobular tumour. Then I had to have sentinel lymph nodes removed as 4 out of the 9 biopsies were cancerous. After waiting until surgical wounds were up to it I started 4 x 3weekly cycles of EC and will then have 12 weekly paclitaxel. This will be followed by radiotherapy and hormone therapy which is on the far horizon at the moment. Got to take the chemo first! It’s amazing all the different regimes you read about different cocktails of chemo that are involved. We were due to celebrate my husbands birthday on 3rd July and instead I had my first chemo - what a celebration! To be fair, all the breast nurses sang happy birthday to him. Like you I’m looking towards next year, hopefully with this all behind me, and will be looking to treat the family to a well deserved holiday. It’s good to have a positive focus I think. Hope your journey is as painless as possible lets hope to ‘see’ each other on the other side.
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Hi all I’ve not posted for a while. Started treatment Friday 17 July on 3 weekly pac/carbo/pembro for tnbc and I’m having pac every week for 12 weeks too. Have had 2 infusions so far and then Thursday (the day before my 3rd treatment) got a call to say white blood cells too low to have it so I skip a week and will have my pac/carbo/pembro next Friday as planned. They said not to worry. It happens. Could be my body adjusting to the hard core treatment. But I’m absolutely gutted to have a setback so early on. Sitting here this morning just wishing I’d had my 3rd infusion yesterday and another ticked off. So frustrating when I’ve been feeling fine and side effects have been very kind. I reached out to a lovely lady on this forum who had posted about low neutrophils in the past and she’s sent me some great advice on things to eat to help boost levels so I’m trying that because at least that is something I can control. Nonetheless I’m gutted and worried about what will happen next week and if it continues to happens what will they do then. Surely I won’t be denied treatment. Maybe I’ll be given injections? I suppose the plus side is that the chemo must be blasting me hard and is doing its job. Anyway, just thought I’d share. Feeling fed up. If anyone has any words of wisdom please send my way. X
@daffodil10 did you have any reaction to the paclitaxel whilst it was being given ? First week as soon as it started I came over dizzy and they had to stop it for half hour and then went again. This week they slowed it down to over 2 hours instead of 1, and 5 minutes in I came over dizzy again with horrible lower back pain. They stopped it again for half hour and when going again it was ok. I’m really worried for this week now that it’ll happen again. They said they might start with a 4 hour rate and see how it goes but I’m worried I’ll still react to it
Xx
Hi @fried_eggs , sorry to hear that. They’ll be used to this I’m sure and will adjust as they are doing to how you react. Try not to worry (I need to tell myself this!) they know what they’re doing. I didn’t experience this myself. My infusions seem to have been okay so far and side effects minimal which is why I was so shocked to be told my white blood cells haven’t recovered in time as I’ve felt fine really. It’s early days for us and I think it’s a bit trial and error at the beginning and they have to adjust to every individual as we all respond so differently. Good luck for your next one. I’m just praying my next one goes ahead as planned. I don’t think I’ll cope mentally with another delay! Xx