Wed next week. Rads 4 weeks after. So want this done! X
Me too! Want answers about my gene testing so I can prepare myself for surgery and then get on the road to recovery! X
Gutted, blood test this morning and white blood cell count not high enough. Being re tested tomorrow. Stupidly upset at the thought of a delay. Want this done.
Oh no vic! Gutted hope you get a better result tomorrow and sar I didn’t realise there would be a delay I returning to work after rads…I’m not sure I am having it but I’ve no idea! fingers crossed for you both xx
Ohh I just need to get over myself a week isn’t that bad. Completely stupid I know, but have had wed in my head as the end of it all…and yet again another blip means delay. I have zero patience at the best of times and to miss my end date has just really got to me. ( am kind of thinking tomorrow will confirm it, current count is .77 it needs to be 1 or over that’s a hell of a leap) I also don’t feel that bad!! I’m tired but have been so for months!!!
So…WBC nearly doubled, FINAL CHEMO DONE!! I know next few days will be crap, but so relieved to get it done. Hope everyone is doing okay, as at the moment…am feeling kinda pleased.
So pleased you got it finished vic, hope
You are recovering well… I’m seeing my surgeon tomorrow, how much say did people get between lumpectomy and mastectomy? X
Yup sleeping tons. I need it!! I had the total choice on surgery, the consultant suggested lumpectomy (which I went for in end) but said I could pick mastectomy and decide literally up to day! If you want reconstruction on day then longer surgery but it was my choice. They got mine with good margins, but does leave scars. However for me, easier surgery, recovery and you cant tell when am dressed have had anything done.
Appointment today was better than I could have hoped for, my MRI shows that the tumour has shrunk so that it can no longer be seen on the scan! Yey! I’ve decided to go for a mastectomy and reconstruction all in one go and will probably have to have rads after but not sure yet for how long, I have a provisional date of October 26th for my surgery… Eek! X
Yeahhhh!!! Sounds positive NMT. Means you get few weeks off now to rest/ relax? Pleased it had shrunk so much x
Hi ladies, how are you all getting on? Has anybody got any hair growing back? I have a definite covering of fluff and was wondering if I should cut it off to encourage it to grow I thicker ( I have heard that in some cultures parents do this to their babies!)
Mine is coming back, but mix dark and grey. Still need scarfs, slightly worried its monk like, def more at back then crown!!
Sar if it makes you feel good…buy it ?! You could always donate it if you barely use it
Definitely buy it Sar! I have 2 and love the option to change styles for special ocaisions! I’m still in my wig I’m hoping my hair starts coming back fairly quickly now but we will see, it’s definitely grey at the moment! X
Is anybody else suffering from chemo Sid effects without actually having the chemo? My body seems to remember how I felt after chemo and has gone into auto pilot! X
Er no…but I’ve had a fairly s@@t week. I just wasn’t picking up after final round, no temp or sickness just exhausted. Last Mon went into hospital, had bloods done, haemaglobins dropped to less half what they should be. Got admitted, they clocked a problem with my kidneys, so spent Mon / Tues in ITU, then have been transferred to a renal ward in cov. Am still here. Got something v. random called HUS. body has attacked red blood cells. They think the chemo drug did it. Consultant here only ever seen 5 HUS patients and it being caused by chemo is even odder. So last few days have involved 8 units of blood being transferred, dialysis, and plasma! My arms look horrific (4 canulas in ITU) to be honest, its been quite surreal and full on!!
Treatment seems to be working, but not fair doesn’t quite cut it. Sorry for long ranty post but I really cant take much more crap!
Mate that’s b*****y b*****y awful. Rant away!
Must have been scary for you and your family and you’ve done so amazingly all the way through as well.
Sounds as though you’re being well looked after and on the mend but even so it must be pretty grim.
Sending lots of love, hugs and positive thoughts xx
NMT I’ve still got one to go (roll on Monday!) so can’t help with that one, got it all to look forward to I suppose x
Yup it sucks! Worst part oddly was being told in ITU I needed ct scan for kidneys (thankfully clear) last scan for me was cancer. No logically reason to think it had spread, but was said so casually I just lost it!!
Sar…good luck for Monday…will be fab to get it done! NMT…if you are concerned about anything call your team.
Vic that’s awful! Can’t believe I’m complaining about aches and pains! Hope you are back on your feet soon, sending you big hugs! Sar did you but the wig? Good luck for Monday x