Lindy, anyone who looks after twins is an absolute hero in my book and that’s without throwing cancer into the mix.
Thanks everyone for all the chemo tips, will try anything that helps. Problem I’ve got now though is that is seem to have got a stinking cold which I need rid of by Tuesday or I’m pretty sure I won’t be starting chemo. Psychologically that will be a massive blow, I was diagnosed way back in March.
Anyway am mainlining Berroca and Strepsils do keep everything crossed for me that it goes. To be delayed because of a piffling cold would not be good x
Hi Tess
Sounds as though you’ve got lots going on at the mo. Your poor husband! Def a pretty drastic way of avoiding the hospital appointment but you’re both going to need looking after now. Like you say though the fact that you can still laugh about things is really good. I think the cold cap is supposed to be good. The main reason I didn’t consider it is that it adds so long to your treatment time and I’m already getting everyone to babysit so much it didn’t really seem like a doable option for me. Good luck with it though.
I ama bit worried about chemo brain though. If you see anything on the news about a woman in an odd looking wig leaving her children in the post office that’ll be me!
Hope your first treatment went well, sending positive thoughts
Sarah x
Hey ladies, just wanted to say good luck if you are starting this week. Thinking of you all x
Ladies it’s lovely to meet you all.
Tess I can totally relate to the forgetfulness. I feel I have just continued on from being pregnant last year,
dropping things, bumping into things and forgetting where I put the carkeys… where did I leave the babies 
having twins has been a challenge but a joy,and they decided to push through another couple of teeth and had major nappy rash during chemo week… My poor husband was up with them in the middle of the night as well as going to work when he could. changing nappies every half hr. because I had lymph nodes removed I can’t lift heavy weights so i can’t pick them up or do nappy changes because they wriggle around so much. that has been the hardest thing to deal with so far. not being able to pick them up when they have a bump. but I do cheat every now and then.
What a terrible thing to happen to your husband, hope he recovers well. Glad you have the support you need.
It’s weird how other bad things follow. even down to spilling milk or dropping toast butter side down… some days you just say… it’s bad enough I have cancer but you throw this at me as well! but then you take it in your stride. This is my new normality and yes say goobye to 2015, will be happy to be rid of it.
Had my second round of chemo yesterday and surprisingly am feeling better this time around.
I think because I have been more sensible in my eating (no chinese takeaway mid chemo) and took it easy straight away. also sleep and water seems to be key. so I’m writing from my bed, going to do a few online errands and back to sleep hopefully for me.
My hair has started to fall out big time. I have curly hair so I think it has all knotted because the hair that falls is caught up in the curls. Anyhow I’ll do a very brave brush through and there may be tears, because my hair was my trademark. Would love to say that i will take on my new head with gusto and walk around with amazing makeup on and flashy earrings but as I’m a ‘tinted moisturiser’ sort of girl I may just hibernate for a while until I’m ready.
have a lovely day !
Lindy x
Sar I really hope your cold goes soon, anything the docs can recommend other than the normal thing ?
I used to take the vit c+zinc as a preventative during cold season, it’s effervescent and can be found in boots or superdrug. hand as it’s a drink in the morning and you’re all set.
Tess hope your first session goes ok, i can only speak from my experience but I was surprised at how painless(and mundane) the whole process is considering, but time goes quicker than you would expect.
I found the last hr and a half I got a bit woozy/tingly and almost felt like a little sleep. but that’s all down to the amt of drugs they put in you.
I brought a notebook to write on,a book, magazines… and to be honest I didn’t get through half the things
because I was on the phone most of the time.
Be good to yourself and have snacks, I brought a banana. my own teabags and mug, gingernut biscuits,
and had chicken for lunch.
If you have friend who you can assign jobs to… pick the one who is a great cook. he/she will be your best asset.
mine has made me 5 portions of chicken broth and it was a godsend last night before going to bed. felt I was getting some nourishment with a bit of flavour without threat of nausea.
she also got me this book called cancer fighting kitchen(hate the name) so it took me a few weeks to actually open it and although the recipes are measured in american standards it has some nice options.
that the whole family can have as normal meals.
Dahl seems to crop up as a nice stomach friendly option as well.
right getting off this thread for a snooze,
Lindy.
Cold didn’t get in the way so cycle one is done and dusted and I don’t feel too bad. Rubbish nights sleep from the steroids, also think I may have overdone the water and kept needed to get up for a wee - was worse than being pregnant! Seriously though for those of you not yet started it was a relief to get it over with and nowhere near as bad as I’d thought. Water and sleep seem to be the key.
Kids packed off to nursery and I’m just having a lie in before going to buy the wig. Still have so many mixed feelings about but at least I’m still in control before my hair starts falling out.
Someone sent me an article yesterday by Marian Keyes, (love her books), on the benefits of having a wallow in self pity occasionally, Suns the way I feel up at the moment perfectly. Can’t post the link but if you google ‘Marian Keyes Sunday Times June 7th’
it might make a couple of you smile xxx
Well first chemo,session, sat with the cold cap on- so far it’s annoying me but bare able! More the chin strap than anything - having to put my finger round the front to ease it a little - wish I could have a nap with it on.
Hope you ladies are all doing well, Lindy I have twins and I feel your pain after surgery - but cheeky cuddles and comfort won’t harm - I counted as part of my exercises xx
Sar, Great that the cold didn’t affect treatment.
I didn’t go cold cap, hadn’t a choice as I’m doing treatment every 2 weeks so no point.
Thanks Sazza, yes I will count as exercise 
how old are your two ?
So cant decide if am being daft, but feeling normal and ok, so planning tomorrow morning to go into work…feeling quite nerd like but looking forward to some normal! Especially while still have hair!
If you feel well enough do it. I’m sure we’re all going to have enough cak days so make the most of feeling well. Listen to your body though and call it a day if you feel tired or someone is coughing and spluttering all over you.
I was still on maternity leave when this happened so going back and picking it back up after a year with this as well isn’t a goer for me, will be more like a career break than mat leave!
Cheers ladies, can hide in office downstairs from rest of team, just liking the thought if a non medical day!
Hi ladies another newbie here had first FEC-T 15 June I think anticipation was worse than actual treatment experience. I have a portacath fitted which will save my shy veins I hope!! Feeling slightly sicky and tired haven’t had the steroid rush I am afraid! 1 down five to go!!
Hi Debbie, not heard of carboplatin before, am on FEC T. 1 done, 5 to go! Well managed two mornings at work and am about to go back to hospital for a Reiki session…so nice to be non medical. Have a lovely weekend ladies.
Hi ladies, I’m just had my first chemo session Wednesday- have been given steroids and also have to have Zarzio injections for five days- any tips for the pains? I’m in so much pain no painkillers are touching it - I thinking of stopping treatment altogether- I’ve got three little ones to deal with and for passed two days I’ve been a rubbish mum??
Not sure I can cope with another 5 rounds of this! - pain is excruciating x
Sazza, so sorry to hear, have you called your team? Bit random but are you drinking plenty of water / eating much? X
And sazza, you are not a rubbish mum. You are going through a horrible crappy time x
100% call them! I called mine about a blinding headache last sat. They expect it at weekend / evening. Ok re food, but would suggest try to drink tons of water. I feel like I was lucky on first cycle, but was told any concerns get in touch. They can suggest alternatives / give your more meds. Keep drinking though, push it through your system xx
Ring them! I’ve had a problem with my steroids and they stopped them no, it’s what they’re there for and I’m sure it’s happened before. You shouldn’t be feeling like this.
Re food sweet chilli sauce has been my saviour this week (and I’ve gone off wine boo!)
Seriously though, make the call xxx
And with regard to being a crappy mum I spent my boys first birthday afternoon asleep and his birthday tea in my pyjamas on Thursday so you’re not on your own feeling like that. I keep telling myself I’m doing this for them so I’m actually supermum xx
Hi all, sazza stay strong, it will be worth it- I keep saying all of this is a means to an end. Has anybody started loosing their hair yet, mine started going on Thursday (day 1 of week 3) and now it’s coming out really quickly my hair already feels thinner, I’m not sure how long to wait before getting it shaved and starting to wear my wig. Anybody having the same experience/dilemma?