Hiya, think the E part of FEC can cause flushed face, but I was told it was straight away going in. Would ring your onc team holly to check. Is your temp normal?
Hi all, I had round two yesterday and have ended up in hospital overnight because I couldn’t keep any food in me at all yesterday! Please tell I’ll feel better soon! Hated leaving my daughter, but I know it’s for the best x
I had my head shaved on Tuesday because my hair was coming out so quickly, I’ve got various things from annabandana as well and have my wig for when I leave the house!
He is giving me something different for my next round but I can’t remember the name, if they don’t work I’ll ask him about them thank you 
I got emend for 1st cycle, worked really well. Onc said sickness was worse younger you are so they wanted to start me on something good. Reading this, thank god! NMT have you had 2nd cycle yet? Trying to work out when it will be head shave time…
Sorry ignore, just read it…so you kept hair fir 20 days??
Ok, random query, in grand scheme of things not important, but has anyone been told you cant have nails done? Just had appt cancelled, as tech insurance doesn’t cover me!! Its just nails, don’t get the issue.
Ahhh ok. Its just annoying that something nice and kinda a treat is a no. Also feel like a child having to get a doctors note to say I can have stuff done!!! Rant done. Finding I can cope with big stuff, but little things like this really grate.
I hear ya on the small things that upset you .
I live abroad and have had to organise wigs to be sent over to me, this is the second place I have been to having been let down by the first crowd, and they have just called me to say the wigs they ordered ‘express’
on wednesday won’t get there til monday. my sister is flying over tomorrow and was supposed to bring them with her.
they are now putting together alternatives which I have no faith in and just had a meltdown there.
it’s soul destroying enough having to chat to someone about wigs and looking online trying to visualise yourself with them on, but then to be let down twice is just too much.
on the upside, I had a bone scan yesterday and couldn’t go near my twins for 24 hrs… those 24 hrs are nearly up !
Lindy x
God Lindy that must be hard. What winds me up as well is that we all get told different things. I had a bone scan and was told I was fine to pick up and cuddle the baby and Vic our chemo nurses have told me that gel nails might help protect my own from the chemo. Just get them soaked off properly and acrylics are a def no no. It’s hard enough without all the conflicting advice. I’m trying to eat healthily but have been told this week that as I had a bit of diarrhoea after the chemo not to eat fibre and veg, go figure! On the plus side Warburtons White toastie bread with butter is lush Lol!
Have a good weekend ladies xxx
I have shellac and been told they’re okay - it’s the cuticle pushing they tell you to avoid to stop infection.
It was acrylic they told me to avoid but their the reason I have shellac as my own nails are weak from having them!
I’ve taken to neon colours - the idea if my hair does go they’ll be too busy staring at my nails! X
Yup nurses had said okay for shellac, just had nail tech cancel on me due to insurance issues!! Found another one, just need the docs okay. Its really frustrating, if on the teeny tiny chance I got an infection, I wouldn’t never blame her! Irony is nails would prob be fine, more likely to pick up a cold from her. Just stupid, people hear cancer / chemo and panic.
However need to just get over myself, not being able to cuddle your kids must be tough Lindy. Will stop moaning about nail appt! Have lovely weekend ladies, hubby bday on Sunday, so taking him car racing tomorrow. Cannot wait ?
Hi vic yeah my hair started coming out on day 15and I got it shaved on 20. Cycle two is done and I’m home from hospital.yey! I can’t imagine having to stay away from my daughter for 24 hours, overnight was bad enough! Have a great weekend everyone, we are hoping to make it to the local farmers market tomorrow
Just did it. Was getting tons out today. Scared of getting in shower. Decided that was stupid and to just bite the bullet. No. 3 all over. Love hubby for doing it. And actually relieved to get it done.
Good for you girl, and for hubby for stepping up to the mark and doing it. Have you seen the weather forecast for this week? Just think you’ll be lovely and cool whilst everyone else is sweating away under all their hair xx
That was another reason! I just had a word with myself when I realised I was getting to worried to touch it and get it wet in shower. Seeing friends for lunch today and family pre chemo on wed and just didn’t want to be stressing about hair dropping out. I’m kinda fluffy now, honestly not as bad as I thought. More of a relief!
First weekend over after treatment on thurs, had a real bad day yesterday crying a lot with not slit of sleep since thurs. I have finished the steroids this afternoon so hoping that maybe tomorrow night will be full nights sleep. Still haven’t washed my hair as to scared in case it comes out in clumps. Eating small and regular but really don’t have an appetite at the moment, and drinking litres of water which seems to help lots only problem is the need for the toilet lol xx
Poor you, feel your pain. Nothing worse than when you finally get to sleep waking up because you need a wee! I was exactly the same with the steroids so it was agreed I’d only take the morning dose. As I’d got the nausea under control they said I didn’t need the second dose as it was only for anti sickness. Might be worth asking, tiredness makes everything so much harder. Hope you’re feeling a bit better x
Well done vic! I felt much better after I’d got mine shaved and I even enjoyed seeing my 10 inch brain surgery scar properly for the fist time! I’m on round two day five and I’m exhausted, but I didn’t sleep well last night so bath and early night for me. How is everyone else getting on? Any weird side effects?