I’m hopefully starting docetaxol and phesgo next week! I’ve had to have a week off as my bloods were low. Dreading starting docetaxol as it’s fear of the unknown! Good luck with yours
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Sorry to hear youve been through this i hope you heal and have a smooter path x
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Hello everyone,
Trying to catch up a little on the posts, theres a lot. I had a reaction again to the dc and ended up in hospital twice so have been non computing in eyes and mind, i will continue to catch up with you lovely lot, i hope your all finding ways to manage abd small joys.
My oncologist has decided to stop my chemo due to the reactions and a neuropathy in leg ( hopefully not permanent)
Its a weird feeling good, also odd as so much of life was changed no sea sun etc hospital go bag foods etcetc now to readjust into a different way of being and thinking of ability to return to work.
I had an mri on spine as they were concerned about mets due to leg, that was clear thankfully .
Anyway really sorry about not being present and replying to your happenings. Just want to say your thought of and i appreciate you a on these threads. X
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It’s interesting hearing people saying they had quiet in the chemo suite. There are never fewer than fifteen people in the chemo suite I’m in. Nurses usually working with three to four people at once. I think I may be a victim of the infamous postcode lottery…
In better news, my paclitaxel went well and I continue to have few/no side effects other than tingly feet and fingers. I tried the cold gloves and socks but only for twenty minutes because I needed the loo and no one was around to help me out. I’ll do it properly from now on. It wasn’t at all painful and completely bearable, if anyone’s thinking about it.
Thank goodness your MRI came back clear-that must have been terrifying. Will you have radiotherapy & hormone therapy or are you now finished with active treatment? Sounds like a lot to get your head round but I hope you can focus on recovering from chemo.
Thank you @jenny4 yes radio next then the injections and i believe letrozole as gynea consultant thinks the tamoxifen originally intended will be be the wrong option.
Im not feeling 100% sore throat heavy chest but desperately avoiding the hospital.
Healing to you.
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Wishing you well @trix1 - it sounds like a worrying time. I hope you have a good recovery from the chemo and side effects.
I had my first paclitaxel on Tues. So far, completely different to AC - thank goodness. I’m using compression socks and gloves to try to guard against peripheral neuropathy. The nurses were supportive of that. I’m still waiting for my polybalm for my nails to arrive though!
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Hi all, catching up on messages. How you’re all ok and been able to enjoy some of the sunshine. Started Paclitaxel yesterday. All went well - went in by 8:30 and out by 2:30 - I’m still cold capping 30 mins before and 90 mins after. Went quick and the anti histamine IV made me quite sleepy so dozing off quite a bit. On the plus side no pre or post meds at home apart from the pegfilgrastim. Some diarrhoea during first 12 hrs after but fine today apart from some tiredness. Temp went down quite a bit last night but I had been sitting in the garden for ana hour. Cross fingers. Only 3 more to go. Take care all x
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Hi everyone, I’ve just been catching up on how everyone is doing. Hope you’re all doing as well as we can be 
For some reason I’ve avoided the group forever as I’ve just been in a prolonged period of grump! Which is the total opposite to my normal personality. I find it very hard
I am almost at the 2 week mark after my first Docetaxel. Last week was particularly awful! I know it sounds terrible but it was good to read you’re all feeling similar with side affects.
I really have just been so fed up. Docetaxel just hasn’t seemed to agree with me at all.
Sorry for the negativity.
Some positive news my daughter passed her A-Levels and has a place at her first choice uni.
I cannot remember who’s child was sitting GCSEs but I sincerely hope they went ok xx
Hope everyone is doing ok.
I had my 2nd paclitaxol last Tuesday abd for the second week I have developed diarrhoea 4 days after the treatment. I was thinking it was the phesgo causing it but this time hadnt had phesgo.
@rach49 I see you have had this symptom straight after treatment. Is anyone else getting delayed runs?? I am taking immodium which is helping!
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I had a case of sickness and diarrhoea after docetaxel on day 6 I think it was. The immodium worked for me too eventually and then haven’t had tummy issues since except for nausea. I’m glad to hear it seems to be helping you too, the nurse said if it stops helping they can give something different so thats something to keep in mind if anything changes for you x
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@cheche I was wondering if it was a side effect of the stomach lining tablet I had before they gave the chemo - forgot to ask what it was called. Congrats to your daughter @mummybear1 - brilliant news.
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Thank you so much @rach49 we were so thrilled and relieved x
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Hey, yes 
I have now had 2/12 doses of Pax … and had chronic diarrhoea for 3/4 days after both, inability to hydrate ( ie mouth constantly gasping no matter how much I drink) shooting pains, aches and nerve pain and general hard to pin point pain, insomnia that isn’t helped by the Zopiclone and the 50 % of hair I had left after 4 rounds of EC has all rapidly just fallen out … I was hoping it was going to easier to get brought this 3 month stint after a rough ride on EC but doesn’t look like it hey
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Sorry to hear you are getting so many side effects. Ive had a bit of pain in one hip and the diarrhoea for a couple of days.
I have been waking up early in the morning and not able to go back to sleep but thats probably to do with the steroids!
Have you tried antihistamines?
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Same back at ya! I take fexofenadine prescribed 4 x a day anyway for long term histamine intolerance so probably why I’m struggling with it… my oncologist is too busy to get hold off to discuss she was supposed to call my thursday but didn’t so I have dropped an email for an appointment next week
I had my 1st paclitaxel and i am very tired but my everywhere aches, cant sleep at night x 8 more to go.
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Sorry to hear that, hope it improves. Are you allowed pain relief? Can sympathise with the tiredness.