Hi. First go tomorrow. I’ll let you know how the cap goes
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Good luck!
I’m sure they’ve told you this already but these are the things to take when cold capping
Headband
Conditioner
Head covering for after (going home with wet hair)
optional blanket for comfort if you feel the cold.
Good luck.
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OK - Day 8
Positives - Able to eat better. More energy - so can go for walks again and work a little. Being careful with immune system.
Negatives - they found a clot in the ultrasound and I thought I could manage the appointments by myself but ended up calling a friend as I was sobbing uncontrollably in the waiting room. It was the panic of the unknown. What does having a clot mean? How will this affect my treatment? This is really sh*t? etc
Ultimately it’s ok - it’s a known side effect, they can manage it with medication on top of everything else but the additional - we need to check this was too much today.
Love to everyone going through this.
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Thank you for your post.
This is reassuring for me to hear- I too started on 6th June and spent a lot of yesterday texting friends and family about how well I felt. But today - day 4 I’ve been exhausted with some reflux- peppermint tea helped.
I start my injections tomorrow which im a little apprehensive about.
The infusion for me was fine and I quite enjoyed the cold cap- I had a stress headache and it helped
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Hi all, I’m on day 5. I’m mostly tired but just going with it and resting. Had a bit of indegestion after dinner but I too found peppermint tea to sort it out. Did my first filgrastrim injection this evening. Absolutely fine, needle is very thin and didn’t hurt at all. Felt a bit despondent this morning, it all seems like such a long journey that we have to go through. Fingers crossed I don’t get any bone pain from this injection.
Hope everyone else is ok.?
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Thank you 
Hi all, hope everyone is doing ok. Yesterday was day 6 for me and the first time I felt a bit off - really tired with a sore head and throat. I’ve been absolutely fine every other day.
On my last Filgrastim today but it’s been no hassle at all 
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I didn’t get to start on Monday. My daughter was off sick from school and I felt off so they postponed a week. I actually think it was a reaction to the local after having the port installed on Friday. It has happened to me before when I have been out of it for days after local. Try again on Monday
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I also start my chemo journey next Thursday. I’m on various ones and immunotherapy as i have triple negative. The treatment is aggressive as the type is aggressive.
Haven’t a clue what to expect except for flu like symptoms, sore mouth, exhaustion.
I am using a cold cap but my oncologist said its 50/50 if i lose my hair
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Hi
I had my first Chemo yesterday. On EC for 4 3 weekly cyles then Paclitaxol for 12 weekly cycles. I have triple + BC.
I cold capped which was fine after the first 15 mins. The infusions were fine. Just felt a bit lightheaded afterwards. However in the evening I had a headache and felt sick.
This morning not feeling so sick but still have a headache. Hoping that it’s not going to get any worse. But 1 down!
Good luck to everyone starting their journey!
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Hi, another June starter here. Started on the TCHP regime a week ago (4th June) Felt ok for first couple of days but have had fatigue and a very sore, dry sandpaper type mouth since day 5. Really thought a week on I might feel a bit better. Also cold capped and that wasn’t as bad as I’d feared, fine after the first 10 mins. Good luck to everyone starting this week and already on this journey.
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I start my treatment 18th June, same cocktail as you.
I can’t figure out how to post, only seem to be able to read everyone’s messages
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Hey @picks
Sorry you are on this journey too.
I don’t have triple negative but mine is also aggressive and am on a dose dense aggressive chemo schedule.
I’m still on cycle 1 - Day 10. Feeling more human today. I get my next dose after Day 14.
Everyone’s body is different and not knowing what to expect is really hard.
Ditto - for the cold cap - my oncologist recommended I try it as I have lots of thick hair but also said 50/50 chance of losing it anyway. Guess I will find out in a week or 2 if it was worth it.
Best Wishes and positive thoughts to everyone
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Hu @cheche
I am on EC too. I found Day 1-3 were manageable - I took all the anti sickness etc and didn’t feel too bad. Although wasn’t keen on eating much as it all tastes like …!
Day 4-5 for me wiped me out - no energy.
Gradually improved after that. Day 10 now - eating more normally, more energy. Able to go for normal walks again.
This journey sucks and we can only take one day at a time and try not to get too frustrated with ourselves.
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This is just the same as what happened to me. I thought the surgery was going to be the hard bit but now facing the chemo I’m thinking that the mastectomy was the easy bit. Must admit I’m still in denial that this is all happening.
Start my treatment next Wed and I just don’t know what’s ahead! When they read you through all the side effects it’s really scary. Im just enjoying this last week of normality and trying not to worry about things until they happen, or not.
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Also no drugs pre-chemo, but drink water, drink water, drink water!!
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I feel exactly the same, the mastectomy seemed like the easy part once chemo entered the conversation. I know I’m still in denial about chemo. I’ve also had a really easy week, I’m on day 8 and I honestly feel completely normal so I keep having lots of “oh is this really happening” moments.
The fear of the unknown, the list of side effects… it’s a lot to take in. Not all the scary side effects will happen — and if they do, your team will be there to sort you out 
It’s just all about being kind to ourselves now and taking everything moment by moment.
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Tiredness is my main thing. Literally just sleeping and eating, think I’ve turned into a cat 
Seriously though it’s so tough how it just drains you completely. Day 7 for me today and still tired but different today. I had a shower this morning then had to sit down to recover! A general overall weakness / tiredness feeling but mentally a bit brighter or more accepting maybe. Just moving from sofa to kitchen as needed.
Oh also day 2, I started my period! How unfair was that 
The mild heart burn from the first few days has gone and I slept properly last night. I had been waking up at 4am starving hungry which I think was probably due to the steroids. Also days 5 & 6 I was quite tearful.
Yesterday I felt really achy in my glands and flu-like from the Filgrastim injection the night before (days 5-10 I have to do that). I was worried it would get worse today but actually feels better after the second one.
I know what you mean about not fully processing it yet. It did hit me a bit more the last couple of days that this is cancer & chemo and it’s happening to me. Then the thoughts start … how am I going to do this? How do I live with this always on my mind? This is not fair, will I always be this tired? But last night I lay in bed and I thought I’m not ok and I’ve not been ok for a longtime but that’s ok right now. Today I feel a bit more peaceful with it. (Expecting to change my mind a million times though).
Didn’t know I was going to off load when I started writing, best wishes to you all x
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Hanging in there with you.
Day 10 and feeling more human.
A friend asked me how I was doing earlier. She encourages me to be honest when I answer which is great.
But started me thinking. That’s not an easy question to answer anymore. Maybe I should just say that to people then ask, what are you really ready to hear?
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