Hi Everyone,
I’m age 42 and recently diognosed with a 3cm TN breast cancer. I’ve had a senternal node biopsy which came back negative. I’ve had same emotions as everyone else on here. But since no lymph nodes I’ve really being positive. My dr kind of described it that if it was hormone bc it would be op and tablets but because hormone tablets don’t work on TN only chemo available. This has made me see things much clearer. I’m having chemo first then op. I’m actually glad I’m having chemo now. At least I know I’ve done everything and had every chance to prevent secondary. I have my first chemo on Friday. I’m going to try cold cap but if it’s to much for me I’m not stressing about I’ll just stop.
I’ve got my head around everything now and feel ok. In fact at my pre assessment I had a stress test and gave myself a 4 out of 10. My main stress being kids, hubby and elderly family. As to what it’s doing to them. I thought for was good concidering I would of given myself a 10 a few weeks ago. I’ve found keeping a diary helps. When I have dark thoughts and good! I write it down. Which has really helped.
Anyone else starting chemo soon?? Lou xx
Hi Jean yeah your bang on with the TN bit only chemo works so it’s a must to help prevent a recurring I too have accepted it has to be done and thinking about we are very lucky really to be given all the treatment x after watching the program last night about cancer I feel so lucky the drugs I need are available to me on NHS some are not so fortunate including children which is so sad, we all have our off days I’ve had a few lately think it’s cos my routine has been totally changed x and yeah definitely different trusts do things differently following letter from app I realised my MDT have planned my treatment just for me hence no scans so I think it’s important we don’t read into other peoples threads and panic if we don’t have same treatment regime xxx
Sorry I meant lou!!! Starting week of 10th July x already had my op x
Hi…I was also diagnosed with triple negative breast cancer and was devastated. Just saw my life flash before my eyes. I had a sentinel node biopsy and had spread to 1 node which was removed. I had a bone scan, breast MRI and CT of chest, abdomen and pelvic area, all of which were clear - much to my relief. i had my first chemo cycle last Thursday and am starting to feel ok now… Really wasn’t as bad as I expected. Just so happy treatment has started. Most important for me is not to look too far ahead. I have 6 chemo cycles 3 weeks apart then surgery then radiotherapy. Need to remain positive…
Hi Mishy,
One of the first things my Dr said was that my treatment plan is tailored for my cancer. She explained that for some people will have op then chemo others the other way round.
My initial appointment I had ultra sound, mammogram and then whilst there said I needed a ct scan, as the mammagram wasn’t clear enough.
So maybe they’ve got all their info from your Mammagram.
I later had breast MRI scan. My oncologist said this was quite grainy image. So it maybe they have all the info they need.
Remember your having bloods takien all the time checking liver functions and stuff. So this will flag up any problems. Which then would lead on to scans.
If this is playing on your mind. Give your breast nurse a ring. I’ve rang them about stuff that I’m worried about and they’ve answered my questions.
I went for my clip put into my tumour on Monday and it was the same dr who did my biopsy. She remembered me. (Not sure why!) we were chatting and she told me that she new it was TN before she did biopsy because it looked like a TN tumour. Apparently they are round with a hole in the middle. Mine looks like a mini Doughnut! Has anyone else’s TN tumour looks like this. She also said it is really solid. So much so she struggled to get clip in and bent her needle. I think this is why it’s not gone to lymph nodes as it’s such a hard mass.
Lou x
Hi everyone, I think all trusts work different, I had mammogram, ultrasound and biopsy on 3rd of May, started my chemo in 15thJuly having 4xAC 4xTaxol every 2 weeks because of lymph involvement, will have surgery later. No mention of Mri or pet scan, having clips in on the 10th of July. Having my 2nd chemo today and it’s not as bad as I expected, it was the waiting that was the worst, as soon as I started my plan I felt much better. Stay strong everyone we can and we will fight this cruel disease ??
Can I also add I joined the closed group on face book it’s called triple negative warriors it’s been a godsend for me everyone is supportive and in the same boat xx
Hi jay15 and welcome.
Sorry to hear of your problems and wife’s health problem.
I had fec-t and surgery to remove a 90mm lump and am awaiting radiotherapy.
I have been very well since the surgery, so there is life after chemo and surgery.
You will need to be very supportive when your wife is feeling poorly, but there is light at the end of the tunnel.
My husband had to do the shopping during the week after chemo as I was very sick and tired, but I ordered it to be delivered the following week and was able to do the shopping myself during the third week, but we are all different so you will have to see how it goes.
I can’t give any diet recommendations. I did drink a lot of dilute orange cordial after the chemo. She will have to drink plenty so will have to find something that she likes.
Best Wishes.
Thanks a ton. …I want to be with her all her life not just this period. …so thank you for your positive answer. … god bless you and your family.
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Hello, ive recently been diagnosed with triple negative but so far hasnt spread to lymphs. Like everyone else i was/am devastated, thought my life was over. Realise every ones treatment is different. Mines every week for 12 weeks (chemo), then different chemo for 4 x 3 weekly cycle up to Xmas. Then surgery around Xmas (hopefully). Started chemo without any scans but got CT scan booked for 12th July. And a MUGA booked for next Weds. Petrified what those 2 are going to show up and will be worrying until someone tells me the results are ok (hopefully). I do know i cant do this alone though so will be on here alot reading other peoples experiences. We must stay positive and help each other through this horrid experience. Talking helps xx
Hi Kaicorie,
I have also recently been diagnosed with triple negative grade 3 with node involvement but in my right breast. The original tumour was 3cm at the first ultrasound but they found that it almost doubled in size 2 weeks later when an mri showed that 1 6mm tumour 16mm away and a 6mm tumour in my lymph nodes. I start neoadjuvant chemo next Friday (EC x 3 & T x 5) but mastectomy is probable because I have small breasts. Node removal is certain. Also, double mastectomy is a possibility if the BRCA 1 or 2 gene is present but that is my call.
I completely understand how scared you feel but you are not alone. All the love and support will be here when you need it. I’ve found that the waiting is the worse bit as the fear of the unknown sends your brain into overload.
I felt emotionless until I got my treatment plan and I think the relief of finally getting it gave my brain time to rest and that’s when my emotions got the better of me. It did me the world of good, I think, as I can now prepare myself for the battle I face with a clear head. Yes I’m still scared but I can now properly focus on getting through the first stage.
I have started to realise that I have to stop focusing on what I can’t control and stick with the things I can.
Sorry for the long post but if it helps one person, it’ll have been worth it … I hope! xx
My story is very similar Iamstillme, triple negative grade 3 with 1 lymph node affected. The lump seems to be growing so fast I’m worried the chemo won’t be able to shrink it! It literally feels like my right breast is one big tumour 
I’ve just had my first EC of 4, then T x 12. How do you feel?
Hi. I was diagnosed TN at Easter, following mammogram and ultrasound. I found the lump myself initially. Unlike most, it seems, I had surgery ™ and am now having chemo (3xFEC, 3xT). Two cycles so far, then rads to come. It is all doable, a means to an end. Just keep positive and trust in your team. Kxx