Just diagnosed with DCIS

Hello, I am completely new to this forum, but I guess everyone was at some point. Trying to adjust to life since being diagnosed on Wednesday. Everyone has been so supportive but I don’t want to keep burdening people with how I feel, which is all over the place. Thought it might be helpful to be able to chat with people who are going through the same thing. My prognosis is good and I know I need to focus on that but feeling bit lost tonight. I think its just starting to sink in.

Hello Princessbear

Welcome to the forums.

Whilst waiting for replies to your post maybe you would like to talk things through with a member of our helpline staff who are there to offer emotional support as well as practical information. The free phone number is 0808 800 6000 and the lines are open again in the morning and normal hours are Monday to Friday 9.00 to 5.00 and Saturday 10.00 to 2.00.

best wishes

June, moderator

Hi, feeling the same for me so wanted to reach out to you. I was diagnosed a week ago and so much has happened so far. It is sinking in for me but first night on my own since and low tonight. I have found feelings coming in waves: fine for ages and thinking I’m getting to grips with it then a wave of emotion hits me.

Thank you Coco53. I appreciate you replying. I I am also finding that when I’m on my own its much harder, trying to keep busy which helps and I feel fine and in control, then all of a sudden its back. I guess its normal to have these huge ranges in emotion. I am trying not to fight these feelings but just go through them and except them for what they are. I hope you have a better day today and wish you all the very best. X

Hi coco53, I’m wondering how you are? I think its all starting to sink in a bit now trying to remain positive but generally feeling low with the enormity of what’s a head. I hope you are doing OK. Take care xxx

Oh god I’m so glad to hear someone feels like me. I was diagnosed on Tuesday. …i can’t even remember what they called it so don’t know what DCIS means but i have grade 1 lump slow growing. I haven’t told anyone I’m so worried about different reactions and the people I’ve hinted it to. … That I’m not well seem to be off sunbathing and saying ‘here for you babe’ in texts! This is too much right? ! If love to chat abs hear from you. …
Isla
It’s starting to sink in here too by the way. Im happy to talk because I feel just like you. I don’t know where I am supposed to go. … To meet others. …
my sister mer a big group but. …I don’t know how.

Hi lyla, so sorry to hear of your diagnosis. I am recovering from surgery which I had on Tuesday. I completely understand how you are feeling about telling people. I only told my family and closest friend initially. I was having trouble taking it all in myself and telling people was much harder than I thought. I gradually told some friends and told a few more people just before going in for surgery. The whole thing is very scary but I have amazed myself really at how I have just got on and coped with it. You do find the strength from somewhere. This forum has helped enormously because there are lots of amazing ladies on here at different stages and their experiences all help to prepare you for what’s to come.

Ask any questions, and know that you are not alone in how you are feeling.

Take care. Xxx

Hi all, this is so new to me and is my first post.  I was diagnosed with DCIS a week ago, had a biopsy then MRI and see the consultant again next week but the roller coaster I am on is gut wrenching.  Telling people is hard, and I only told my close family and very close friends.  I keep thinking what have I done to cause this, I have never smoked, hardly drink, exercise to the point of competitive level and watch my diet so carefully so I am in a state of shock, I keep thinking they have made a mistake.  I have been looking at things about diet to beat breast cancer, alkaline diets, alternative therapies and am so confused not sure where to turn next and all the time waiting to see what the consultant has to say about my cancer and the way forward.  I have never been on a forum but reading what everyone has posted I feel less alone than I did an hour ago but I too feeling so so lost.

Hi everyone

So glad I saw this forum misery loves company as they say! lol, I like you was diagnosed with DCIS 3 weeks ago, the doctor originally told me it was a papillioma which is a benign tumour and I would need a small operation to stop the bleeding from my nipple, I had the op and everything was great. I had to go back for a check up and results of the tissue the sent off for analysis and was fully expecting him to say off you go your fine, so when he said breast cancer I nearly fell off my chair.

 

I was supposed to have an MRI last week before we discuss surgery options but I am a larger lady and when they pushed me into the scanner I could feel the machine on my back and I freaked out and had a panic attack so had to be pulled out, so now just waiting for another scan date in a larger machine.

 

Been reading a lot about the condition, surgery, radiotherapy etc and there is a lot to think about so as soon as I am a bit further down the road I’m sure I will be back with more questions, in the meantime if I can help anyone out even if its just to have a moan or chew the fat I would love to be some help.

Hi Everyone

 

I am new to this forum and have been reading all your supportive comments.  I was diagnosed with DCIS two weeks ago and have just had surgery (WLL).  I am fine apart from soreness and a little bit of pain.  My doctor says that after the results of the sample removed, if the margins are not clear, he will do another surgery to remove more.

 

I am thinking that if I have to do a second op then I will go for an mx but my doctor thinks that this would be an overkill for the kind of cancer I have.  Have any of you been in this situation andif so I would appreciate your views.

 

Would really appreciate your views.  Thanks

Hi wilsbury and welcome to the BCC forums

Along with the support here please feel free to call our helpliners on 0808 800 6000 to talk things through, lines are open weekdays 9-5 and Saturdays 10-2

Here’s a link to further support ideas and information which I hope you will find helpful:

breastcancercare.org.uk/breast-cancer-services

breastcancercare.org.uk/breast-cancer-information/about-breast-cancer/primary-breast-cancer/types%C2%A0of%C2%A0primary%C2%A0breast%C2%A0cancer/ductal-carcinoma-situ-dcis

Take care
Lucy BCC