just diagnosed

scared so scared. i can’t stop crying. can’t sleep, eat, can’t turn my head off. please someone tell me when will this stop and i can be me again (at least for 5 mins in a day)?

Calm down. Yes, it’s really scary but not the end of the world,. Get the facts. We’ve all been there and know how scary it is. Take one day at a time. The treatment is good and will serve you well.

 

I’m over 5 years out and life is good. It will serve you well.

Hi Jayneh

 

I am so sorry you have received this news. It is so hard to accept. Can you you tell me a bit about what has happened to you?

 

Mary

You will be OK. Trust me. We all feel the same at the start.

Hi Jayneh,

I know it doesn’t feel like it at the moment, but things will get better. They call it the “waiting room” when you are first diagnosed and I can honestly say it really is the worst time. You just feel in complete limbo - I personally just felt completely numb and like the floor had just opened up underneath me.

BUT, I can honestly say, it does get better. Once you have a treatment plan in place and it gets underway, you will begin to feel you’re getting back a bit of control.

I couldn’t get my head around it at the beginning - looking ahead at chemotherapy, surgery, radiotherapy - it all just seemed to surreal and like it wasn’t happening to me. The best bit of advice I was given though was to break it down into day to day, bite size chunks. I know that sounds such a cliche, but it really did help me get off the starting block. To be honest, once treatment started, it flew by. I finished radiotherapy in June and am now back at work. It hasn’t been a bed of roses, but it was easier to cope with than I ever imagined at the beginning.

I hope you get your treatment plan together soon and that you have friends/family around you to support you. This forum is a great source of information and a good place to ask any questions. Please feel free to ask me anything.

Take care, big hugs.

K xx

It will get better. Honestly. I’m over 5 years out and feeling fine.
xx

Hi Jayneh,

I was diagnosed 3 weeks ago and I know how you feel.

Please listen to these ladies, especially what Kam80 said, she gave me advice when I first came on here.

Has your consultant told you any information yet, about your grade or hormones (ER PR HER2?).

Xxxx

Firstly, welcome to the forums, I am sure you will find it a great source of information and support.

I’m sorry to read of your diagnosis, the first few days and weeks are always difficult when coming to terms with things and getting to grips with your treatment plans, etc.

As well as the support you are receiving on the forums you might find it helpful to order the BCC resources pack. It has been specifically designed for those newly diagnosed and contains information to help you better understand your diagnosis, test results and the various treatments available. If you would like to order a copy just follow the link bellow:-

www2.breastcancercare.org.uk/publications/diagnosed-breast-cancer/resource-pack-primary-early-breast-cancer-bcc145

Also, do give the helpline a ring if you need any further support or information. They’re on 0808 800 6000. Open 9-5 Monday to Friday and 10-2 Saturday.

Best wishes Sam, BCC Facilitator

Hi Jayne, the way you feel is totally normal, we’ve all been there. Please take on board what others are saying, things will get easier once you have a confirmed treatment plan. I was advised to break my treatments down and address / worry about each one as they occur and it’s definitely working for me. I’ve got through the surgery ( 4 weeks on now) and start chemo on the 29th November. I’d be lying if I said I wasn’t worried about this as I am however I see this as once step closer to the end of treatment. Come this time next year it will all be over with and we’ll all slowly start to move on with our lives - one step at a time. Good luck with your biopsy results. Kind regards Tracy XXX

This a message for ashby. I too was told biopsy results on Wednesday. Had my pre op assessment today and have surgery on Thursday. Our dates much up and it would be lovely to stay in touch. I haven’t got anyone to be there for me and support me. I have two boys and it is painful and distressing seeing how they are coping and managing with this news. For me it is being and feeling so so alone. I haven’t posted any comment since finding out and I do want to find someone I can confide in. Good luck to you and you and everyone else’s posts I have read in the last week - you are all so amazing women and I really never expected that I would ever go through something like this. Mand xxx

Hi Mand and welcome to the BCC forums
In addition to the valuable support you will find here please do feel free to call our helpline to talk through your queries and concerns on 0808 800 6000, our team are here to offer you emotional and practical support

You may find the following link to the BCC ‘Just diagnosed’ section where you will find lots of information and further support ideas including our ‘One to one’ support whereby you can be in touch with someone in a similar position via telephone or email:

breastcancercare.org.uk/category/cancer-journey/just-diagnosed-primary-breast-cancer

Take care
Lucy BCC

Hi

I do hope you are now feeling a little calmer .I too was in a state of shock when my bopsies confirmed the worse news.I panicked too and worried how i was going to come out the other side of this news.

Like others i try and break down the time and am now able to concentrate on other life issues other than my dilemna.

My op Thursday and know that will not be good to wake up to and face but am thinking Thursday that bit will be over then RD to follow.

I am only told the next appt at hospital and then when thats over the next plans.Fortunately my life can cope with all this but must be hard if children or a hectic life

Thinking of you and do hope your anxieties are less now after these few days.

I do hope that you are now able to feel a little calmer.Know just how you were feeling .it does lessen and i can now share a laugh with people ,Me Diagnosed just 10 days ago.Op Thursday so hope you are getting a plan by now.

Hi there, this is only my second post. I’ve been reading parts of the forum for the last week whilst I waited for my results. I had had a lump for a very long time and when I saw my consultant I thought he was just going to do a small examination and tell me it was nothing to worry about as I had convinced myself!

Suddenly, everything happened at once. An immediate mammogram. That was when I saw it and realised the worst. A big white mass on the monitor screen. Then I was whisked to another room for ultrasound. The room suddenly filled up with people. There was the mammogram nurse, a new doctor was called, the ultrasound nurse, a Macmillan nurse and then the consultant. All the time them saying don’t worry!

The biopsy next and I remember the nurse saying I have to press down on your breast otherwise you’ll get bruising. After about 5 mins of this pain I felt like saying I’d rather have bruising thanks! Lol

The week waiting for the results was the worst week of my life. To be told and confirm what I thought was mixed emotions - relief, dread and fear.

I am slowly coming to terms with it. The hardest thing is trying to remain strong and dealing with people who don’t know what to do or say to me.

I know I am lucky. I have a lumpectomy on Thursday and a biopsy on the lymph nodes. If it has spread to the LN then I’ll go back down to surgery that day to remove all the lymph nodes. I have told that story so many times over since I was diagnosed. I know it off by heart now! Lol

I do really think not having anyone that I can share how I feel with you all. Women that are just so so brave and amazing. That you can understand how I am feeling. Thank you all and especially to Ashby. Xxx