Hi everyone,
Just got back from the clinic and got my results after having WLE and sentinel node and axillery sampling on the 25th july. Good news my nodes are clear which is a great relief.My tumour was 2.3 cms and unfortunately grade 3 so will be seeing onc soon for treatment plan which i have been told will most proberly now be chemo followed by 5 weeks rads. Im still waiting for the Hormone receptive test to come back so ill have to wait a bit longer for that . The waiting is horrible isnt it emotions are up and down still and proberly will be untill all this is over , but im a bit more positive now knowing that im on the way to trying to beat this horrible desease. Ive been told not to return to work for now as im a homehelp /carer for the elderly and i will be supseptical to infections while on treatment so sad about that as i realy enjoy my job. My thoughts and best wishes are with you all . God Bless.
Lindiloo
hiya…im grade 3 as well…just finished chemo, well 3 weeks ago anyway…so feeling a bit lost today…got used to going up the hospital for it…hmm sure im supposed to be somewhere today…oh nope…thats all done. Ive got 5 weeks of rads as well ahead of me and that starts next week. Your hormone results will be back very quickly, will have been done once theyve chopped your lump up and done whatever it is they do to it…burn it in my opinion on a blooming big bbq…just dont eat it lol! Your HER2 results can take months to come back…thats for your herceptin if you need it. I was er and pr pos but her2 neg. You are right though, the hurry up and waiting bit is the hardest part…but youve done the first bit in having surgery…just get to the next bit…although scary it does fly by after the first one. I know…easy to say when youve finished it…but it does feel like you are actually part of it rather than being a subject of it…if that makes sense. A shame youve had to stop your job for the time being…you can always go back at the end of your treatment…but right now YOU and YOUR health is whats important.
Hiya lindiloo,
I too am grade 3, but I also had nodes involved. Have since found out that its hormone receptive and HER2+. So, they’re throwing everything at this little bu**er and I for one am not complaining! Well, I do have a little cry every now and then but thats another story!..
You’re soooooo right about the waiting being horrid, it really is the pits! Its a weird sort of relief when you get your results, cause although it can be scary, at least you know what you are dealing with (if you see what I mean?).
I wish you well as you start you next phase of treatment. I started chemo in May (E-CMF) which is due to finish in Oct, then its rads, hormones and Herceptin for me! Phew!!! Chemo is going ok so far and nowhere near as bad as I had allowed myself to imagine it would be!
Take care and let us know how you get on with the onc,
Kelly
-x-
Thanks everyone, it realy helps knowing that none of us are alone here. Im worried about the chemo as you hear such horror stories . I know its pathetic but losing my hair is bothering me the most (how sad is that in the scheme of things ) they mensioned something about a cold cap that might help has anyone tried it ? so sorry kelly that you have so much treatment to go through, all you ladies on here are an inspiration to all of us who are just at the begining of treatment…I too have a little cry now and again but hey thats good eh its good to let it out. Thanks for the advice buttons, i will go back to work as soon as the treatments over .Take care everyone and pleases let me know how you all get on
Best Wishes Lindiloo x.
Hello Lindiloo
Great news that your nodes are clear. If you do have to have chemo then it really isn’t that bad - they give you very good drugs these days to help with the side effects. It’s not nice but it is ‘doable’ and you will get through it.
No it’s not at all sad to worry about losing your hair - I think for many women that’s the worst part of this ghastly business. Definitely try the cold cap if you are offered it. I tried it and unfortunately it didn’t work for me but there are several women I see in the chemo clinic who are using it successfully and have lost hardly any hair. The cold cap can feel a bit uncomfortable for the first 5 minutes but it gets better after that.
Good luck with your onc appointment. Let us know what happens.
Love Anthi
Hi lindiloo,
I would say give the cold cap a go - if it is offered. I had quite thick brunett hair (well actually quite grey underneath!) and it has worked quite well for me so far. The first ten minuits of having it on your head are horrid - like putting your head in the freezer but after that it’s OK (although i get a bit of a stiff neck for the next couple of days - might be because of the hat or the chemo - not sure). Also the nurses can give you a mild sedative lozipan? to help relax you before treatment (either for the chmo or the cold cap - think it helps a bit)
cheers
Caroline