Have caused great excitement at the hospital today as nobody knows why I’m yellow and my bilirubin is raised. It is 76 so up but not dangerously yet.
My bilirubin levels were normal 3 weeks ago. The Ct scan from 11th June has been rechecked and there is nothing wrong with my liver apart from the 9mm met at the back of my liver and is nowhere near my main blood vessels or bile ducts so they are mystified as to why I’m yellow.
It is getting more noticeable - daughter asked me this morning why I was yellow and so has worsened since yesterday night.
Had ultrasound today which showed that my bile ducts are enlarged and full of gas!! I know my whole tummy feels full of gas and that I’m not digesting anything. Lost 6kg in 2 weeks despite eating huge amounts. Everything I eat comes out the same a few hours later now. They don’t know if it is an infection - apparently that causes gas but not got temperature or seem ill with an infection. Other possibility is that the cancer has caused my bowel and bile ducts to fuse together but too small to see on scan yet.
Got CT on tuesday and if nothing seen then either MRI or exploratory op to see exactly why there is gas and bile duct enlargement.
Onc feels my lungs could cope with the op and wants to treat me with whatever is right eg operation, chemo, stent so at least he is on my side now and I’m keeping them all busy with a different as yet unidentified diagnosis - so they are all excited and I’m scared stiff I could be dead in matter of days/weeks if bilirubin levels rise and no cause found or no treatment available or have an overwhelming infection as my bone marrow is so worn out from previous chemos.
Will see how goes over weekend and will go straight in if worsen. Have also got a wee infection for some reason - suppose it is the poor state of my health generally
Must go - need to lie down as only thing that relieves pain and wind.
Kate
Hi Kate
Really sorry to hear about this you must be terrified.
Really hope they get to the bottom of it soon.
Good luck with it all love FB xx
Hi Kate
sorry to hear of latest developments and hope they can sort you out asap.
Love Debsxxx
Hi Kate
This is a really hard time for you, but it sounds like you’re getting the best care possible, and that they’re getting closer to solving the mystery of your jaundice.
Sending you love & strength.
Marilyn x
Thinking of you Kate and hoping this can be resolved. It must be so scary for you.
You know we are all with you in spririt and with you every step of the way.
Love Sarah xx
so sorry you are facing this new problem, hope they can get it sorted out soon.
Love Lilac
Thinking of you Kate…cyber hugs your way. Hoping you are able to get some rest - hopefully you’ve got them hopping at the hospital, and this setback will be resolved quickly. Hugs…
Kate
thinking of you and hope you get some answers on this, its all so frustrating to get some mystery thing now - I am glad they are on your side and looking for ways to resolve this for you.
love
cathy
another one thinking of you kate , sure hope they can get it resolved soon
lotsa love Tracy xxxx
Kate I do hope this is sorted out for you. Thinking of you
love Margaret
Thinking of you,
Love
Jane
I hope that the doctors can sort this problem out for you Kate. I know how much you want a good summer with your children.
Best wishes
xx
Heya Kate
We’ve not spoken before I think but just wanted to let you know that I follow your posts and will be keeping fingers and toes crossed that they find the cause and put a stop to that sharpish. Best, best, best of luck and lots of love.
Angie
Hi kate
Hope they can figure out what’s going on and sort it out for you, hang on in there, I know the worry must be hellish!
Diane
xx
Dear Kate
So sorry to hear that they don’t know what is going on - think that must be one of the the scariest places to be. It is good though that the onc feels your lungs would cope with an op if need be - really hope the CT scan gives some idea as to what is going on. Thinking of you.
Lots of love
Kay xx