@Jaygo it’s so weird, trying to get my head into Chemo Mode again! Thank goodness I kept everything, including my trusty Asda Chemo Hoodie lol
Dear Dilly and Jaygo, I’ve just ordered some very stylish cold socks and gloves to wear during infusions from now on. The joys!
Good luck Dilly on your first and subsequent cycles. I was really fine, energetic, eating well etc etc for months .
One fear I have is the neuropathy being permanent, after getting worse; that might be quite disabling. I too have nerve injury in my right hand from the tumour in my armpit; some recover over months but I do know that nerves can take a very long time to recover, so not lost hope! It d love to hear from anyone re this ( I’m aware that most of us are in the process, not beyond it). I’m seeing onc team about it all this afternoon so I’ll pass on anything useful!
Xx
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For those that suffer with peripheral neuropathy, there has been some promising research recently about acupuncture and PN. It’s a bit of a niche area of expertise but maybe worth a try if you have someone in your area that is experienced with oncology acupuncture.
@camustigh If you search this board for kadcyla, there are some that have had similar experiences to you and either chose to go back to herceptin or phesgo rather than continue with the kadcyla or just stop altogether. Some MOs prescribe a combo, 14 total made up of herceptin/phesgo/kadcyla, 10 kadcyla, 7 kadcyla. I’ve seen all sorts of permutations.
The 14 cycles is a pretty arbitrary number which came from the methodology of the original katherine trial and some oncologists are starting to think that it might be overtreatment and the benefits can be achieved with fewer cycles. I don’t think they’ve found the perfect point yet where you get the max impact with fewest SE. At the end of the day, long term QOL is as important as reducing risk of recurrence. There was some quote about the number of years in your life not being as important as the amount of life in your years - quality over quantity.
@dilly I did zero dietary restrictions for kadcyla. My team never mentioned anything and what I ate didn’t impact my treatment at all. I only had to push back one cycle because of illness. I caught covid on a business trip to the US and had to wait until I had completed the antivirals and recovered to have the next round.
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@dilly Hi I have been eating everything again as usual not limited like when on tchp although my stomach bowels are not very happy. I do suffer with irritable bowel anyway and I think the whole treatment etc has made it flare up. X
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@camustigh sorry to hear you’re struggling with SEs! People may say it’s not as bad as EC/Pax/Doc but it is still chemo which takes a toll on our bodies. Sending hugs!
@dilly hope all goes well for you tomorrow! Back on the treadmill! From my reading it shouldn’t impact immunity as much so my plan is to play food by ear (or stomach I guess) and cut things out as and when they disagree with me rather than cutting everything out just in case 
I read a Penny Brohn eating during cancer treatment resource the other day which said “it’s generally safe to have regular live natural yoghurt during cancer treatment” so I’m going with that!
Glad I’ve help my chemo gloves and socks and hoodie - will have to dig them out again!
My additional pathology results have been delayed so another week to wait before anyone will say anything definitive about my ongoing treatment - very frustrating! Given HER2+ and lots of residual cancer I can’t see it being anything other than Kadcyla
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@kcim yes my BCN called me today to say that though I am booked for results on 10 April, they may not be in by then and it may be a week later that I am told.
@dilly I shall be with you every step of the way tomorrow. Stay strong Kad Kween. x
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Here we go, Class of 2026! 
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Pioneer. x