Well, I answered my own question! Rang the helpline, and they advised calling BCN tomorrow to see if I need a blood test to check my platelets
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@lmack95 I hope you are looked after well and feeling better soon. Let us know how you go xx
I got bruising for the first few cycles but platelets were ok. It did settle as I went on. Hopefully you will be the same x
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I got out around 4pm and they had absolutely forgotten about me. Got antibiotics for an infection/possibly UTI and they wrote down bilious colic?! Ultrasound still to be done. The Dr said may be gallstones. And apparently I have a small hernia?! X
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Hi not sure if helpful but I have a 1.5 year old snot bag. I read somewhere giving saline solution when snotty helps reduce risk of passing it on (your kids would have to take it). And my partner always disinfected the toddler after nursery. I avoided meeting anyone apart when outside. Still had quite a few colds and had to take a tonne of antibiotics as prevention for chest infection but made it through
She even had chickenpox a month before getting the vaccine 
Good hygiene,.drink plenty and ask them to clean hands and faces before they can hug you.
And stay positive that your body can take on things. I was lucky that my bloods always showed immune system was fine so it is possible X wishing you all the luck and hope this is over as quickly as possible x
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@lmack95 gosh Iām feeling for you. Hereās hoping youāre on the mend now. x
Oh @dilly that looks nasty. Hope it settles down for you and that your platelets are fine. Does this shit show ever end?
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First Kadcyla done today! Shall see what side effects head my way! 
But if you havenāt had it yet, pre warning for your first one, they did it over an hour and a half period (it will be 30 mins normally) and then had an hour and a half for observations to make sure i didnt have a reaction to it. So took much longer than I expected (also didnt help the pharmacy took 2 hours to send up the drug, so was in the chair for 5 hours!)
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Hi,
Iam on my 3rd now I get very bad headacheās any one else paracetamol help a bit
Camt wait for end been told I might be haveing 10 of them which seems alot
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Thats what ive had today a bit of a headache but I didnt sleep well last night because of the heat and worrying about side effects so not sure if thats why ive had a headache.
So far ive felt like I havent had chemo.. like yesterday didnt happen, weird.
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Hi,the 3 times I had it i have had headache must be side effects
I didnāt feel as ill on this seems to be about day after chemo tired and a bit strange but by day 4 feel nearly normal 
It still makes my taste odd
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Hi all, I was diagnosed with hormone positive and HER2 positive breast cancer back in October. Iāve completed chemo (4 EC and 4 Docetaxel) and am 4 weeks post surgery (lumpectomy and 7 nodes). I had 5 cycles of Phesgo prior to surgery but due to residuals Iāve been moved on to Kadcyla. First cycle is on Tuesday.
Its been really useful to read about other peoplesā experiences so far.
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Welcome aboard @londongirl! There are quite a few new starters so hopefully you will find some support here x
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Not sur eif someone will mention it further down but my sister suggested trying to take magnesium (sheās a GP) cause thereās some indication it can be preventative of migraine (which my headache felt like). It helped a lot when I took it afterwards but hoping itāll help preventative as well but weāll see!
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@Jaygo in the end they thought I had a UTI (I think it was actually leukocytes from a cyst thatās still bothering me but whatever) and they sent me home with antibiotics. Two days later I spoke to my nurse during Zoladex injection and she got worried about the bruising. Turns out they hadnāt looked at my thrombocytes and I had really really low markersā¦.. but two days later fine again. Anyway thatās something to keep an eye on as itāll likely happen again and I have a fairly physical job coming up but at least I didnāt just imagine feeling rubbish!
Does anyone else feel like their life has become and endless slog of appointments and worrying about health? I am already a person that can feel everything in their body and people donāt believe me (e.g. I felt baby flutters really really early, my milk came in super super early, I can feel my blood sugar levels to an abnormal extent . List goes on. Sometimes I wonder if my bodyās just supercharged and thatās what caused the cancer?! )
I honestly take my hat off to anyone whoās chronically ill or was it before this cause at least I have a potential end date but this is my personal form of hellā
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Just had call with my oncologist and Iāll be starting āas soon as possibleā apparently - just need to wait for local team to get in touch about when. Iām having 15 cycles of Kadcyla because I only ended up with 3 of Phesgo before surgery and they want 18 in total.
Itās great to have other people experiences here to know what to possibly expect!
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Oooh thatās interesting! I only had 3 Phesgo too, but only getting 14 Kadcyla
Boo, Iāve got oral thrush! Luckily Iāve got a bottle of Nystatin on standby after I also got it on Docetaxel.
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I am 5 days since my first Kadcyla and still got a headache, its not extremely painful, still just feels like I had a couple too many wines the day before. Had a little bit of blood when I went to the loo today, but thats it so far ātouching woodā.
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The oral thrush was a bit of a sharp reminder that I am still on chemo!
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